SCALING-UP SELF-DETERMINATION Tools from the National Gateway to - - PowerPoint PPT Presentation

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SCALING-UP SELF-DETERMINATION Tools from the National Gateway to - - PowerPoint PPT Presentation

Jan 19, 2023 15 likes •239 views

A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities SCALING-UP SELF-DETERMINATION Tools from the National Gateway to Self-Determination A National

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SLIDE 1

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

SCALING-UP SELF-DETERMINATION Tools from the National Gateway to Self-Determination

A National Training Initiative on Self-Determination

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SLIDE 2

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

AGENDA

  • Introduction to the National Gateway to Self-Determination

 Carl Calkins, Ph.D. and Michael Wehmeyer, Ph.D., Co-PIs of the National Gateway to Self-Determination

  • Role of Self-Advocates in the National Gateway to Self-Determination

Activities  Tia Nelis, Institute on Disability and Human Development, University

  • f Illinois- Chicago; and

 Laura Jackson, MPA, Institute for Human Development, University of Missouri- Kansas City

  • Resources Available through the National Gateway to Self-Determination

 George Gotto, Ph.D., Institute for Human Development, University of Missouri- Kansas City

  • Questions and Answers

 George Jesien, Ph.D., Executive Director, Association of University Centers on Disability

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SLIDE 3

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

UCEDD Leadership Consortium Members

  • Carl F. Calkins, PhD, Co-PI
  • Institute for Human Development at University of Missouri-Kansas City
  • Michael L. Wehmeyer, PhD, Co-PI
  • Kansas University Center on Developmental Disabilities at University of

Kansas

  • Ansley Bacon, PhD
  • Westchester Institute for Human Development in affiliation with New

York Medical College

  • Tamar Heller, PhD
  • Institute on Disability and Human Development at University of Illinois
  • Hill Walker, PhD
  • Center on Human Development at University of Oregon
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SLIDE 4

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

National Self-Determination Alliance Members

  • Self-Advocates Becoming Empowered (SABE)
  • AUCD, including the Council on Community Advocacy (COCA)
  • National Leadership Consortium on Developmental Disabilities
  • College of Direct Support (CDS)
  • National Association of Councils on Developmental Disabilities

(NACDD)

  • National Disability Rights Network (NDRN)
  • National Association of State Directors of Developmental

Disabilities Services (NASDDDS)

  • National Sibling Leadership Network
  • National Family Voices including Kids as Self-Advocates
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SLIDE 5

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Defining Self-Determination

We understand self-determination to refer to a characteristic of a person that leads them to make choices and decisions based on their

  • wn preferences and interests, to monitor

and regulate their own actions, and to be goal-oriented and self-directing.

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SLIDE 6

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Self-Determination in Practice

Mediating Variables

  • Social Capital
  • Social Effectiveness
  • Social Inclusion

All of our work is framed through a social ecological approach which reflects the interaction of factors in both the personal and environmental domains.

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SLIDE 7

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Self-Advocates Define Self-Determination

What is Self-Determination and Why is it Important?

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SLIDE 8

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Purpose

The overall goal of this project is to:

  • Build the capacity of UCEDD network to scale-

up self-determination;

  • Establish a sustainable, evidence-based

training system that promotes self- determination;

  • Integrate these efforts through the DD

network including individuals with disabilities, family members, professionals, and policy- makers.

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SLIDE 9

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Task Forces

Through an extensive literature review, the National Gateway to Self-Determination identified a number

  • f barriers and training gaps. Based on this review,

we developed five task forces, each of which are responsible for scaling-up research to practice efforts in their focus areas.

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SLIDE 10

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Task Force Priorities

  • Self-Advocacy (Research to Practice Issue #1, April 2011)

– chaired by Carl Calkins, PhD (Missouri)

  • Employment (Research to Practice Issue #2, October 2011)

– chaired by Michael Wehmeyer, PhD (Kansas)

  • Health (Research to Practice Issue #3, December 2011)

– chaired by Ansley Bacon, PhD (New York)

  • Aging (Research to Practice Issue #4, January 2012)

– chaired by Tamar Heller, PhD (Illinois)

  • Community Living (Research to Practice Issue #5, April 2012)

– chaired by Brian Abery, PhD (Minnesota)

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A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Role of Self-Advocates

  • 2010 National SABE

Conference

 SABE Survey using National Core Indicators

  • Research to Practice

Issue #1

  • Reviewed and

Participated in all products and publications

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SLIDE 12

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Resources Available through the National Gateway to Self-Determination

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SLIDE 13

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Self-Determination in Practice

Includes videos of self- advocates discussing self- determination in their lives

  • n subjects including:
  • Employment
  • Education
  • Community Living
  • Housing
  • Many, many more
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SLIDE 14

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Resource Guide

  • Search products
  • Review products
  • Nominate products
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SLIDE 15

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Related Materials

Aging Abuse & Neglect Health Technology Person-Centered Planning Employment Self-Advocacy Community living Education & Transition Siblings Family Roles

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SLIDE 16

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

  • Self-Advocacy
  • Employment
  • Health
  • Aging
  • Community Living

Scaling-Up Self-Determination

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SLIDE 17

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

News and Events

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SLIDE 18

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Publication Highlights

  • Research to Practice

Issues

  • White Papers
  • Practice Guides
  • Papers on Scaling-Up

Efforts in Self- Determination

  • National Gateway to

Self-Determination Releases.

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SLIDE 19

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Social Media

  • Facebook

(http://www.facebook.com/gatewaytosd)

  • Twitter (http://twitter.com/#!/gatewaytosd)
  • YouTube

(http://www.youtube.com/user/GatewaytoSD

  • Listserv (http://www.aucd.org/ngsd)
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A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Resources in Development

  • UCEDD Self-Determination Self-Assessment

Checklist is intended to provide each UCEDD with a tool to determine the degree to which its policies, activities, and staff are promoting self-determination for people with I/DD and their families.

  • Research to Practice briefs in each additional task

force priorities – aging, community living, employment, health

  • Toolkit for developing social capital
  • Resources for advising self-advocates
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SLIDE 21

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Coming in 2012

  • Self-Determination Program Development

and Resources Workshop at AUCD 2012 for Directors and Key Leadership

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SLIDE 22

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Questions, Suggestions, Input contact:

Carl Calkins (MO) - calkinsc@umkc.edu Mike Wehmeyer (KS) - wehmeyer@ku.edu Tamar Heller (IL) - theller@uic.edu Ansley Bacon (NY) - ABacon@wihd.org Hill Walker (OR) - hwalker@uoregon.edu