A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities SCALING-UP SELF-DETERMINATION Tools from the National Gateway to Self-Determination A National Training Initiative on Self-Determination
A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities AGENDA • Introduction to the National Gateway to Self-Determination Carl Calkins, Ph.D. and Michael Wehmeyer, Ph.D., Co-PIs of the National Gateway to Self-Determination • Role of Self-Advocates in the National Gateway to Self-Determination Activities Tia Nelis, Institute on Disability and Human Development, University of Illinois- Chicago; and Laura Jackson, MPA, Institute for Human Development, University of Missouri- Kansas City • Resources Available through the National Gateway to Self-Determination George Gotto, Ph.D., Institute for Human Development, University of Missouri- Kansas City • Questions and Answers George Jesien, Ph.D., Executive Director, Association of University Centers on Disability
UCEDD Leadership Consortium Members • Carl F. Calkins, PhD, Co-PI • Institute for Human Development at University of Missouri-Kansas City • Michael L. Wehmeyer, PhD, Co-PI • Kansas University Center on Developmental Disabilities at University of Kansas • Ansley Bacon, PhD • Westchester Institute for Human Development in affiliation with New York Medical College • Tamar Heller, PhD • Institute on Disability and Human Development at University of Illinois • Hill Walker, PhD • Center on Human Development at University of Oregon A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
National Self-Determination Alliance Members • Self-Advocates Becoming Empowered (SABE) • AUCD, including the Council on Community Advocacy (COCA) • National Leadership Consortium on Developmental Disabilities • College of Direct Support (CDS) • National Association of Councils on Developmental Disabilities (NACDD) • National Disability Rights Network (NDRN) • National Association of State Directors of Developmental Disabilities Services (NASDDDS) • National Sibling Leadership Network • National Family Voices including Kids as Self-Advocates A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Defining Self-Determination We understand self-determination to refer to a characteristic of a person that leads them to make choices and decisions based on their own preferences and interests, to monitor and regulate their own actions, and to be goal-oriented and self-directing. A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Self-Determination in Practice All of our work is framed through a social ecological approach which reflects the interaction of factors in both the personal and environmental domains. Mediating Variables • Social Capital • Social Effectiveness • Social Inclusion A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Self-Advocates Define Self-Determination What is Self-Determination and Why is it Important? A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Purpose The overall goal of this project is to: • Build the capacity of UCEDD network to scale- up self-determination; • Establish a sustainable, evidence-based training system that promotes self- determination; • Integrate these efforts through the DD network including individuals with disabilities, family members, professionals, and policy- makers. A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Task Forces Through an extensive literature review, the National Gateway to Self-Determination identified a number of barriers and training gaps. Based on this review, we developed five task forces, each of which are responsible for scaling-up research to practice efforts in their focus areas. A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Task Force Priorities • Self-Advocacy (Research to Practice Issue #1, April 2011) – chaired by Carl Calkins, PhD (Missouri) • Employment (Research to Practice Issue #2, October 2011) – chaired by Michael Wehmeyer, PhD (Kansas) • Health (Research to Practice Issue #3, December 2011) – chaired by Ansley Bacon, PhD (New York) • Aging (Research to Practice Issue #4, January 2012) – chaired by Tamar Heller, PhD (Illinois) • Community Living (Research to Practice Issue #5, April 2012) – chaired by Brian Abery, PhD (Minnesota) A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Role of Self-Advocates • 2010 National SABE Conference SABE Survey using National Core Indicators • Research to Practice Issue #1 • Reviewed and Participated in all products and publications A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Resources Available through the National Gateway to Self-Determination A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Self-Determination in Practice Includes videos of self- advocates discussing self- determination in their lives on subjects including: • Employment • Education • Community Living • Housing • Many, many more A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Resource Guide • Search products • Review products • Nominate products A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Related Materials Aging Abuse & Neglect Health Technology Person-Centered Planning Employment Self-Advocacy Community living Education & Transition Siblings Family Roles A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Scaling-Up Self-Determination • Self-Advocacy • Employment • Health • Aging • Community Living A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
News and Events A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Publication Highlights • Research to Practice Issues • White Papers • Practice Guides • Papers on Scaling-Up Efforts in Self- Determination • National Gateway to Self-Determination Releases. A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Social Media • Facebook (http://www.facebook.com/gatewaytosd) • Twitter (http://twitter.com/#!/gatewaytosd) • YouTube (http://www.youtube.com/user/GatewaytoSD • Listserv (http://www.aucd.org/ngsd) A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Resources in Development • UCEDD Self-Determination Self-Assessment Checklist is intended to provide each UCEDD with a tool to determine the degree to which its policies, activities, and staff are promoting self-determination for people with I/DD and their families. • Research to Practice briefs in each additional task force priorities – aging, community living, employment, health • Toolkit for developing social capital • Resources for advising self-advocates A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Coming in 2012 • Self-Determination Program Development and Resources Workshop at AUCD 2012 for Directors and Key Leadership A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
Questions, Suggestions, Input contact: Carl Calkins (MO) - calkinsc@umkc.edu Mike Wehmeyer (KS) - wehmeyer@ku.edu Tamar Heller (IL) - theller@uic.edu Ansley Bacon (NY) - ABacon@wihd.org Hill Walker (OR) - hwalker@uoregon.edu A National Gateway to Self-Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities
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