Presented to CFSAC, December 13-14, 2017 by Courtney Miller, Board - - PowerPoint PPT Presentation
Presented to CFSAC, December 13-14, 2017 by Courtney Miller, Board President Simmaron Research: Goals Redefine ME/CFS through science Determine diagnostic markers Identify scientific characteristics of subsets of ME/CFS patients
Presented to CFSAC, December 13-14, 2017 by Courtney Miller, Board President
ME/CFS through science
diagnostic markers
scientific characteristics
subsets
ME/CFS patients
research that can lead to potential treatments
the clinical experience
Dr. Peterson and his deep characterization
patients
drive a strategic focus
immunological studies
peer reviewed publications
spinal fluid studies with published findings that reinforced immunological research
publishing subset findings:
duration v long duration
atypical cases
and without Irritable Bowel Syndrome
infusion
NIH funding for ME/CFS in
collective memory - $35 million
5 yrs
praise patients and experts for bringing change to NIH
praise NIH for doing the hard work to change its ME/CFS program, and we encourage more
grants:
for Solutions to ME/CFS
is clinical collaborator
with Columbia Univ.
metabolomics and microbiome, effect of exercise and stressors, and development of an app for patients to track disease details.
ready for publication in the new year.
additional publications from the CDC Multi-site study
change the field
is the most pressing unmet need
all have to build the field
evidence-based treatments collaboratively
trials are all but non-existent
field needs to study responders to Ampligen, cidofovir, antivirals, rituximab, etc
do its part
this committee has a part to do.
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