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Presentation to CBS Board of Directors Part III June 27, 2018 - PowerPoint PPT Presentation

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Presentation to CBS Board of Directors Part III June 27, 2018 Presenter: Wendy Sauv, Co-President, CAP/ACP About Porphyria Porphyria is a rare, metabolic disorder occurring in 1/20,000. Of those, 1/50 will present with symptoms requiring

  1. Presentation to CBS Board of Directors Part III June 27, 2018 Presenter: Wendy Sauvé, Co-President, CAP/ACP

  2. About Porphyria Porphyria is a rare, metabolic disorder occurring in 1/20,000. Of those, 1/50 will present with symptoms requiring treatment. Symptoms Patients with acute porphyria often present with excruciating abdominal pain. If untreated, it can progress to convulsions and paralysis. Porphyria can be life-threatening. Treatment The only treatment for acute porphyria is a blood product called hemin. Panhematin was the first orphan drug approved in the US in 1983.

  3. Hemin Distribution Current Proposed * Héma-Québec has been successfully distributing hemin since 2011

  4. CBS Process of Review CBS PLASMA PRODUCT SELECTION PROCESS - Process Summary

  5. Now what? Now what? CAP Review of the Process Provincial/Territorial Blood Liaison Committee Dr. Graham Sher, CEO

  6. CBS Process of Review CBS PLASMA PRODUCT SELECTION PROCESS - Process Summary

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