Meeting Tuesday 1 st August 2017 (Covering period June 2016 to March - PowerPoint PPT Presentation

Annual Meeting Tuesday 1 st August 2017 (Covering period June 2016 to March 2017)

Our mission To provide meaningful activity and respite for younger people living with dementia working alongside other statutory provision, across the working week, within Berkshire.

Key Highlights Move to CIO status (TUPE transfer) on 1 April 2017 – hence shortened year! Article published in Journal of Dementia Care November/December 2016 Bilbao Conference Replication of our model following training in: Milton Keynes, Prospect Park Hospital, Bucks Living through landscapes Nominated for Queen’s Award for volunteers Outstanding contribution to sustainability – Royal College of Psychiatry

Key Highlights CCG funding for full-time model in east of Berkshire from April 2017 Funding for Admiral Nurse and Carer Support Group Adoption by poweredbypie as charity of choice Fundraisers: London to Paris Cycle Ride, Skydiving, Triathlons, bungee jump, LEWIS MOODY, Xmas concert and dinner AltoLounge, Wokingham Lions, Waitrose, Santander, Fasttrack Fit Camp, Berkshire Carers Service

Key Highlights Children’s book and education toolkit (play in May 2017)

Partners Berkshire Oxford Clinical Young Healthcare Academic Commissioning Dementia Sweettree Dementia UK Foundation Health Science Groups Network Trust Network

Our service • Berkshire west – 272 workshops in the Workshops: period • East Berkshire – 71 workshops in the period • Berkshire west – 51 1:1s in the period 1:1 support: • East Berkshire – 21 1:1s in the period

Workshops

Patient experience and outcomes People with dementia Carers Groups made them feel more 88% 90% confident. The person’s (they care for) mood has 88% 90% improved since attending the workshops. The person (they care for) can 75% 76% concentrate for longer periods of time since attending the groups. The group was beneficial to the carer Not applicable 98% (ie respite time).

Outcome Measures Age and cognition scores of attendees Age at MMSE MMSE MMSE at 24 onset at 6 at 18 months months months (n=30) Mean 58.9 20.6 18.0 16.3 Range 51-72 7-28 0-27 0-26

Outcome Measures Neuro Psychiatric Inventory (NPI) scores of attendees NPI NPI NPI at 24 At 6 months At 18 months months Mean 21.6 10.6 8.5 Range 35-6 32-1 20 -0

Outcome Measures Average number of contacts in a series of 6 months periods YPWD Intervention Medical contacts MHP + CSW YPWD Charity Average/person contacts (NHS) contacts Average/person Average/person 6 months before 1.9 9.4 n/a YPWD intervention 1-6 months after 0.7 5.1 12.1 YPWD intervention 6-12 months after 1.05 5.7 18.1 YPWD intervention 12-18 months after 0.75 4.7 12.2 YPWD intervention

Financial performance 2016 1 June 2016 to 31 March 2017 Income £247k • 65% from grants - £160k (£132k in 2016) • 33% from donations, sponsorships and events - £83k (£64k in 2016) (£196k in 2016) Expenses £255k • 75% of this relates to staff costs • 9% of this relates to respite activities (£190k in 2016) Bank balance at 31 March 2017 £157k (£165k in 2016)

Our Trustees Dr Jacqueline Hussey (Chair of Trustees ) David Fisher Frances Stradling Kathy Taylor Peter Watson Alain Wilkes Trustee Trustee Trustee Trustee Trustee

Our staff Board of Trustees Caroline Blanchette Charlie Draper Business Support Operations Manager Manager Karen Ive Claire Watts Julie Vernon Project Respite Project Respite Worker Worker Office Administrator (East Berkshire) (Berkshire West) Erin Locke Debbie Lomas Paula O'Connor Sally Loseby James Frecker Jenny Vertigan Phil Redrup Asst Project Respite Asst Project Respite Asst Project Respite Asst Project Respite Asst Project Respite Asst Project Respite Asst Project Respite Worker Worker Worker Worker Worker Worker Worker

Our Volunteers We currently have 17 volunteers (including our Trustees) What do they do? They assist on our workshops, undertake administrative support within the office, run fundraising stalls and events. The Trustees are responsible for the overall governance of the charity. And ….. due to the amazing work our volunteers do, we were nominated for the Queen’s Award for Volunteers for the second year in a row!

The future: Our thoughts! Sustainability and growth Training Meeting changing needs Research

The future: Your thoughts!