Meeting Tuesday 1 st August 2017 (Covering period June 2016 to March - - PowerPoint PPT Presentation

Annual Meeting

Tuesday 1st August 2017

(Covering period June 2016 to March 2017)

Our mission

To provide meaningful activity and respite for younger people living with dementia working alongside other statutory provision, across the working week, within Berkshire.

Key Highlights

Move to CIO status (TUPE transfer) on 1 April 2017 – hence shortened year! Article published in Journal of Dementia Care November/December 2016 Bilbao Conference Replication of our model following training in: Milton Keynes, Prospect Park Hospital, Bucks Living through landscapes Nominated for Queen’s Award for volunteers Outstanding contribution to sustainability – Royal College of Psychiatry

Key Highlights

CCG funding for full-time model in east of Berkshire from April 2017 Funding for Admiral Nurse and Carer Support Group Adoption by poweredbypie as charity of choice Fundraisers: London to Paris Cycle Ride, Skydiving, Triathlons, bungee jump, LEWIS MOODY, Xmas concert and dinner AltoLounge, Wokingham Lions, Waitrose, Santander, Fasttrack Fit Camp, Berkshire Carers Service

Key Highlights

Children’s book and education toolkit (play in May 2017)

Partners

Clinical Commissioning Groups Berkshire Healthcare Foundation Trust Oxford Academic Health Science Network Young Dementia Network Sweettree Dementia UK

Our service

• Berkshire west – 272 workshops in the

period

• East Berkshire – 71 workshops in the period

Workshops:

• Berkshire west – 51 1:1s in the period
• East Berkshire – 21 1:1s in the period

1:1 support:

Workshops

Patient experience and outcomes

People with dementia Carers

Groups made them feel more confident.

88% 90%

The person’s (they care for) mood has improved since attending the workshops.

88% 90%

The person (they care for) can concentrate for longer periods of time since attending the groups.

75% 76%

The group was beneficial to the carer (ie respite time).

Not applicable 98%

Age and cognition scores of attendees

Age at

• nset

MMSE at 6 months MMSE at 18 months MMSE at 24 months Mean 58.9 20.6 18.0 16.3 Range 51-72 7-28 0-27 0-26

(n=30)

Outcome Measures

Neuro Psychiatric Inventory (NPI) scores of attendees

NPI At 6 months NPI At 18 months NPI at 24 months Mean 21.6 10.6 8.5 Range 35-6 32-1 20 -0

Outcome Measures

Average number of contacts in a series of 6 months periods

YPWD Intervention Medical contacts Average/person MHP + CSW contacts (NHS) Average/person YPWD Charity contacts Average/person 6 months before YPWD intervention 1.9 9.4 n/a 1-6 months after YPWD intervention 0.7 5.1 12.1 6-12 months after YPWD intervention 1.05 5.7 18.1 12-18 months after YPWD intervention 0.75 4.7 12.2

Outcome Measures

Financial performance 2016

1 June 2016 to 31 March 2017

• 65% from grants - £160k (£132k in 2016)
• 33% from donations, sponsorships and events - £83k (£64k in 2016)

Income £247k (£196k in 2016)

• 75% of this relates to staff costs
• 9% of this relates to respite activities

Expenses £255k (£190k in 2016) Bank balance at 31 March 2017 £157k (£165k in 2016)

Our Trustees

Dr Jacqueline Hussey (Chair of Trustees) David Fisher Trustee Frances Stradling Trustee Kathy Taylor Trustee Peter Watson Trustee Alain Wilkes Trustee

Our staff

Board of Trustees Charlie Draper Operations Manager Karen Ive Project Respite Worker (East Berkshire) Erin Locke Asst Project Respite Worker Debbie Lomas Asst Project Respite Worker Claire Watts Project Respite Worker (Berkshire West) Paula O'Connor Asst Project Respite Worker Sally Loseby Asst Project Respite Worker James Frecker Asst Project Respite Worker Jenny Vertigan Asst Project Respite Worker Phil Redrup Asst Project Respite Worker Caroline Blanchette Business Support Manager Julie Vernon Office Administrator

Our Volunteers

We currently have 17 volunteers (including our Trustees) What do they do? They assist on our workshops, undertake administrative support within the

• ffice, run fundraising stalls and events. The Trustees are responsible for the overall

governance of the charity. And ….. due to the amazing work our volunteers do, we were nominated for the Queen’s Award for Volunteers for the second year in a row!

The future: Our thoughts!

Sustainability and growth Training Meeting changing needs Research

The future: Your thoughts!