James McKillop The latest family member, copying Maureen Dementia - - PowerPoint PPT Presentation

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James McKillop The latest family member, copying Maureen Dementia - - PowerPoint PPT Presentation

Jan 06, 2023 111 likes •435 views

James McKillop The latest family member, copying Maureen Dementia The word dementia covers all the different types of dementia. Alzheimer's is the most commonly known one and accounts for sixty per cent of the dementias This means

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James McKillop

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The latest family member, copying Maureen

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Dementia

  • The word dementia covers all the

different types of dementia.

  • Alzheimer's is the most commonly

known one and accounts for sixty per cent of the dementias

  • This means the other forty percent are
  • ther dementias, such as vascular,

Pick's, Frontal Lobe. Lewy’s Body etc

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Were there warning signs?

E.g. Memory loss Making errors at work Driving errors Confusion and inability to perform familiar tasks Orientation to time and place Change in personality/behaviour/mood …to name but a few of many pointers

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Caution! Other illnesses can mimic dementia. Seek professional help

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How do we know what signs to look out for?

There is no training for the general public to know the early signs of dementia, so it can be difficult to spot.

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Discombobulation

Thanks to Trevor Jarvis

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While uncommon, dementia can start in your 40’s, 50’s and early 60’s.

You can have someone of 55 in the later stages and someone of 85 in the early stages. There are also childhood dementias.

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Early Diagnosis

It can mean different things to different people. My definition is being diagnosed shortly after symptoms arise. So you can have somebody of 55 being diagnosed late in the illness, and someone of 85 being diagnosed early in the illness.

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What was the Catalyst?

I met a dedicated support worker, Brenda.

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…Luck shouldn’t come into it!

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Person Centred Help

Does it really make a difference? How did it help me?

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Things I do now

  • SPEAKING TO AUDIENCES, SCHOOLS AND

UNIVERSITIES-STUDENT SOCIAL WORKERS, MENTALHEALTH NURSES AND DOCTORS

  • TAKING PART IN RESEARCH
  • DON’T MAKE THE JOURNEY ALONE
  • CHAIRMAN OF SDWG FOR 5 YEARS SINCE

INCEPTION

  • TOOK PART IN TRAINING AND INFORMATION

VIDEOS

  • TALK TO, ENCOURAGE AND EXHORT OTHERS
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  • TRAINED THE SCOTTISH DEMENTIA

HELPLINE

  • THE SCOTTISH GOVERNMENT

DEMENTIA STRATEGY AND WORKSTEAM1 DEMENTIA FORUM MENTAL HEALTH COLLABORATIVE CARE COMMISSION MENTAL WELFARE COMMISSION MEETINGS WITH HEALTH MINISTER MEETING WITH SENIOR CIVIL SERVANTS

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  • WROTE BOOK AND MAGAZINE

ARTICLES

  • I HAVE WRITTEN ARTICLES FOR

BOOK AND MAGAZINES AND HOPEFULLY MADE AN IMPRESSION

  • SOMEWHERE. I HAVE SOME COPIES

HERE IF ANYONE WOULD LIKE TO SEE THEM

  • HELPED WITH TALKING MATS
  • PHOTOGRAPHY
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  • PHOTOGRAPHS BEEN EXHIBITED AT

CONFERENCES AND MAY BE USED BY OTHER ORGANISATIONS

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Furthermore

  • READ REPORTS FROM OFFICIAL BODIES
  • PTLG
  • LEARNED THE BASICS OF EMAIL
  • ATTEND CONFERENCES, SEMINARS,

WORKSHOPS

  • MEMBER OF CITIZENS JURY
  • MEMBER OF QIS-ICP
  • VICE CHAIR AT EQUALS ADVOCACY
  • MEMBER OF SCOTTISH VOICES
  • UK CONVENTION
  • OPENED PEOPLES’ EYES
  • RECOGNISE LIMITATIONS
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Also

  • RECEIVED AWARD

FROM THE MILLENNIUM COMMISSION:

– Resulting in Help Card being taken

  • ver by Alzheimer

Scotland – Calendar for people with dementia

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CREATIVE WORK: MUSIC WITH LYRICS I cannot sing, read or write music

  • r play an instrument. However I

do compose pop music using a keyboard with a memory and playing with one finger. Here is an example

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I would now like to show a list of everything I was doing prior to my diagnosis.

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Things I did prior to my diagnosis

  • X
  • X
  • X
  • X

There are another three similar pages which I will not show you.

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I would now like to show a list of some of what I am doing after my diagnosis.

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  • PHOTOGRAPHY
  • MILLENNIUM COMMISSION
  • CREATIVE WORK
  • NAT CARE STANDARD
  • MAGAZINE AND BOOK ARTICLES
  • HELP CARD / LEAFLET
  • VIDEOS / SDWG
  • ENCOURAGE OTHERS
  • HELPLINE
  • E-MAIL
  • SCHOOLS / UNIVERSITIES
  • CITIZENS JURY
  • QIS-ICP
  • EQUALS ADVOCACY
  • UK CONVENTION
  • OPENED EYES
  • LIMITATIONS
  • PLETHORA OF COMMITTEES
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Outro

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No, someone in later stages will find it very difficult, if not impossible to do a presentation. Do I represent all stages of dementia? I represent the early to middle stages.

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Thank you for listening. You have the power to change peoples’ lives! I hope you have the will.

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To hear music and see photographs, go to www.youtube.com, and search for “Dandelion Clocks”. It should be the first video, user name: jamesmckillop1940 Talking Mats: http://www.talkingmats.com Alzheimer Scotland: http://www.alzscot.org Stirling University: http://www.dementia.stir.ac.uk