4/21/2015 Ja c kso nville De ve lo pme nta l Ce nte r Ove rvie w Ba c kg ro und Me tho do lo g y Re sults Pre -T ra nsitio n Clo sure Pro c e ss Outc o me s Re c o mme nda tio ns Co nc lusio ns 1
4/21/2015 Ja c kso nville De ve lo pme nta l Ce nte r (JDC) Be g a n o pe ra tio n in 1851, Ce nsus pe a ke d in 1893 (> 1,200 re side nts) Go v. Quinn a nno unc e d c lo sure pla ns in Ja nua ry o f 2012 Numb e r o f T ra nsitio ns fro m JDC b y F isc a l Ye a r 180 171 160 140 120 100 80 60 33 34 33 40 26 22 21 19 17 15 14 9 20 0 2002 2003 2004 2005 2006 2007 2008 2009 2010 2011 2012 2013 F isc a l ye a r 2
4/21/2015 Me tho do lo g y Pha se 1 – Gua rdia n Sa tisfa c tio n Surve y Pha se 2 – Sta ke ho lde r I nte rvie ws Pha se 3 – I ndividua l I nte rvie ws Pha se 1 – Gua rdia n Sa tisfa c tio n Surve y De mo g ra phic s o f re spo nde nt a nd/ o r individua l tra nsitio ne d (a g e , g e nde r, ra c e / e thnic ity, e duc a tio n le ve l); Sa tisfa c tio n with se rvic e s a t JDC a nd the de c isio n to c lo se JDC; Sa tisfa c tio n with the tra nsitio n a nd c lo sure pro c e ss; Sa tisfa c tio n with the ne w pla c e me nt a nd the se rvic e s re c e ive d the re ; E ffe c ts o f re lo c a tio n o n visita tio n pa tte rns; a nd Pe rso na l o pinio ns o f ho w the re la tive / wa rd is do ing sinc e tra nsitio n a nd the impa c t c lo sure ha d o n the fa mily. 3
4/21/2015 De mo g ra phic s 88% o f re spo nde nts we re fa mily me mb e rs Pa re nts, sib ling s, a unts/ unc le s, nie c e s/ ne phe ws, o r c o usins T he ma jo rity o f re spo nde nts we re … At le a st 65 ye a rs o ld (55.4%), F e ma le (67.7%) o r, White (86.2%) Pha se I I : Sta ke ho lde r I nte rvie ws 53 inte rvie ws a c ro ss the sta te T he va st ma jo rity (95%, n = 36) o f the inte rvie ws we re do ne in pe rso n, tho ug h two individua ls (5%) o pte d to c o nduc t the inte rvie w o ve r the pho ne . 4
4/21/2015 Pha se I I I : I ndividua l I nte rvie ws 15 inte rvie ws with fo rme r JDC re side nts 12 living in c o mmunity pla c e me nts, thre e living in o the r SODCs Pre -T ra nsitio n 5
4/21/2015 I nitia l Sa tisfa c tio n with De c isio n to Clo se JDC Somwhat Very Satisfied, Satisfied, 6.2% 10.8% Somewhat Dissatisfied, 13.8% Very Dissatisfied, 69.2% I ndividua l’ s Re a c tio n to Clo sure So me sta te d the y le a rne d o f c lo sure b y ne wspa pe r, ra dio , o r te le visio n “I wa s “I a m g la d I a ng ry...b e c a use I a m o ut o f he a rd Ja c kso nville wa s c lo sing . I ne ve r JDC!” kne w it wa s c lo sing .” 6
4/21/2015 Be ne fit fro m a Mo ve to the Co mmunity Strongly Agree, 20.6% Agree, 12.7% Strongly Disagree, 55.6% Disagree, 11.1% Ac tive Co mmunity Ca re T ra nsitio n (ACCT ) “...we sa id to ...g ua rdia n[s], if wha t we b uild into the pla n, yo u fe e l it is no t suffic ie nt e no ug h, te ll us wha t yo u wa nt a nd we will wo rk it into the pla n. So so me fa mily [me mb e rs] c o uld sa y, ‘ My g uy ne e ds mo re tha n tha t.’ And we we re willing to put tha t into the pla n. I t's a g a in individua l.” - Sta ke ho lde r 7
4/21/2015 Pe rso n Ce nte re d Pla nning Me e ting s “I think the a sse ssme nt a nd the pe rso n-c e nte re d pla n writing we re do ne e xtre me ly we ll. I think we re a lly lo o ke d ve ry c a re fully a t wha t e ve ry c o nsume r ne e de d a nd I think in just a b o ut e ve ry c a se we pro vide d the who le pro c e ss wa s ve ry we ll do ne .” n % T he re spo nde nt indic a te d tha t the y... Re c e ive d time ly upda te s o n re la tive ’ s tra nsitio n 39 60.0 Pre -T ra nsitio n Pro c e ss Re c e ive d a ny info rma tio n o n o the r re side ntia l o ptio ns 40 61.5 Re c e ive d a de q ua te info rma tio n o n se rvic e pro vide rs 35 53.8 Re spo nde nts (n=62) indic a te d tha t the y visite d... At le a st o ne pro vide r a g e nc y 37 59.7 Re spo nde nts indic a te d tha t the ir re la tive visite d the ir ne w ho me ... At le a st o nc e (n = 61) 27 44.3 Sho rt visit (fo r le ss tha n 3 ho urs) (n = 59) 21 35.6 Da y visit (o ve r 3 ho urs b ut no t o ve rnig ht) (n = 59) 16 27.1 Ove rnig ht o r lo ng e r (n = 59) 11 20.3 8
4/21/2015 T ra nsitio n Pro c e ss Sa tisfa c tio n with Clo sure Pro c e ss Very Satisfied, 30.8% Very Dissatisfied, 36.9% Somewhat Satisfied, 21.5% Somewhat Dissatisfied, 10.8% 9
4/21/2015 Clo sure Sa tisfa c tio n b y whe the r Opinio ns we re Re spe c te d 100% 90% 80% 70% 77.3% 60% 100.0% 50% 40% 30% 20% 22.7% 10% 0% Opinions not respected (n=21) Opinions respected (n=44) Dissatisfied Satisfied Pe rc e ive d re c e ipt o f a de q ua te info rma tio n b y sa tisfa c tio n with c lo sure pro c e ss 100% 90% 23.3% 80% 70% 77.1% 60% 50% 40% 76.7% 30% 20% 22.9% 10% 0% Did not receive (n=30) Received (n=35) Dissatisfied Satisfied 10
4/21/2015 Clo sure Sa tisfa c tio n b y whe the r Re la tive Visite d Ne w Re side nc e Prio r to Mo ve 100% 90% 35.3% 80% 70% 71.0% 60% 50% 40% 64.7% 30% 20% 29.0% 10% 0% Zero (n=34) One or more (n=31) Dissatisfied Satisfied Re a so ns fo r F e e ling Rushe d “…yo u ha ve b uilde rs tha t “I think the re we re a re spe nding the nig ht in g ua rdia ns who we re pre tty sle e ping b a g s to he lp yo u ste a dfa st in the ir re fusa l to g e t thing s do ne just pa rtic ipa te in the pro c e ss b e c a use the y wa nt to he lp until it g o t to wa rds the e nd yo u o ut a nd the y a re no t a nd it a ppe a re d tha t g e tting a ny e xtra mo ne y o r a c tua lly the lig hts we re a ny e xtra a nything . We we re b a king g o o ds to ta ke g o ing to b e turne d o ff. in. L ite ra lly the y we re g iving And so the n the re wa s tha t it a ll the y ha d, we e ke nds, kind o f ‘ hurry up a nd g e t it e ve rything .” do ne .’ ” 11
4/21/2015 Co mmunic a tio n “Yo u kno w, “I fe lt tho ug h tha t JDC sta ff in o ur tra nsitio n me e ting s a t the e nd o f g a ve a lo t o f g o o d info rma tio n whe n the y wo uld the da y, we c o me a nd I re a lly re lie d o n the m mo st o f a ll b e c a use ha d no le ss a s we we re g o ing thro ug h this pro c e ss a nd a s the y're tha n fo ur e xpla ining die ta ry thing s, b e ha vio ra l thing s, just pe o ple who diffe re nt a spe c ts o f tha t individua l, the sta ff c a n b e lie ve d jump in a nd sa y, ‘ And b y the wa y, this is a q uirk tha t tha t the y pe rso n ha s o r yo u kno w the y sa y this is wha t yo u we re in kno w he like s, b ut he re a lly do e sn't like this kind o f c ha rg e o f fo o d type o f thing .’ ” the pro c e ss.” Cho o sing a Pro vide r “…I wo uld sa y, ‘ I a lwa ys like to lo o k a t se ve ra l pla c e s. I t's like whe n yo u b uy a ho me . Whe n yo u wa lk in the ho me tha t is g o ing to b e yo ur ho me , the re is just so me thing yo u kno w it's the rig ht ho me . Whe n yo u g o a wa y to a c o lle g e , yo u kno w whe n it is the rig ht c o lle g e .’ Yo u c a n't e xpla in it. I t's just like a g ut fe e ling a nd I think whe n yo u visit diffe re nt fa c ilitie s tha t will ha ppe n.” 12
4/21/2015 Cho ic e o f Se tting 1 st Choice of setting Where they moved 11 SODC 25 SODC 8 CILA 6 ICF/DD 21 CILA 21 CILA 8 ICF/DD 4 ICF/DD 4 CILA Po st-T ra nsitio n 13
4/21/2015 Sa tisfa c tio n with Ne w Ho me Very Dissatisfied, Somewhat 3.2% Dissatisfied, 4.8% Somewhat Satisfied, 25.4% Very Satisfied, 66.7% Sa tisfa c tio n with Ne w Ho me L o c a tio n “I t [the c lo sure ] “We wo rrie d a b o ut the ha s e na b le d o ur tra nsitio n. We we re ve ry re la tive to live disa ppo inte d tha t o ur b ro the r c lo se r to his mo ve d to the Chic a g o a re a . ... We a re ple a se d with the ho me to wn whe re his fa mily ho me a nd sta ff b ut no t the live s.” ~ F a mily lo c a tio n.” Me mb e r ~ F a mily Me mb e r 14
4/21/2015 I nc re a se d Co mmunity Pa rtic ipa tio n, Priva c y a nd the De sire fo r Mo re I nde pe nde nc e “I like it he re . I t’ s so fun. I “[Re la tive ] ha s mo re c o uld do mo re a c tivitie s priva c y b y ha ving his a nd yo u kno w do o wn ro o m. He ha s mo re sho pping a nd thing s like a c c e ss to the tha t.” ~ fo rme r JDC c o mmunity.” re side nt De sire fo r mo re I nde pe nde nc e “I to ld my mo m I wa nte d to g e t o ut o f [the SODC] b y a t le a st 2019 o r 20, b ut she thinks I ne e d to sta y a little lo ng e r … Ge t se ttle d in b e fo re I mo ve o ut a nd do o the r thing s. I ke e p te lling he r, ‘ We ll I a m re a dy fo r a n a pa rtme nt,’ b ut she do e sn’ t think I a m re a dy fo r a n a pa rtme nt b e c a use she do e sn’ t think I c a n do it a ll b y myse lf o n my o wn in a n a pa rtme nt a nd stuff. I a rg ue d b a c k a nd fo rth se ve ra l time s, b ut I ne ve r win.” ~ fo rme r JDC re side nt 15
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