Ja c kso nville De ve lo pme nta l Ce nte r Ove rvie w Ba c kg ro - - PDF document

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Ja c kso nville De ve lo pme nta l Ce nte r

Ove rvie w

Ba c kg ro und Me tho do lo g y Re sults Pre -T

ra nsitio n

Clo sure Pro c e ss Outc o me s Re c o mme nda tio ns Co nc lusio ns

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Ja c kso nville De ve lo pme nta l Ce nte r (JDC)

Be g a n o pe ra tio n in 1851, Ce nsus pe a ke d in 1893 (> 1,200 re side nts) Go v. Quinn a nno unc e d c lo sure pla ns in Ja nua ry

• f 2012

Numb e r o f T ra nsitio ns fro m JDC b y F isc a l Ye a r

14 17 21 19 9 34 33 26 15 22 33 171

20 40 60 80 100 120 140 160 180

2002 2003 2004 2005 2006 2007 2008 2009 2010 2011 2012 2013

F isc a l ye a r

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Me tho do lo g y

Pha se 1 – Gua rdia n Sa tisfa c tio n Surve y Pha se 2 – Sta ke ho lde r I

nte rvie ws

Pha se 3 – I

ndividua l I nte rvie ws

Pha se 1 – Gua rdia n Sa tisfa c tio n Surve y

De mo g ra phic s o f re spo nde nt a nd/ o r individua l tra nsitio ne d

(a g e , g e nde r, ra c e / e thnic ity, e duc a tio n le ve l);

Sa tisfa c tio n with se rvic e s a t JDC a nd the de c isio n to c lo se

JDC;

Sa tisfa c tio n with the tra nsitio n a nd c lo sure pro c e ss; Sa tisfa c tio n with the ne w pla c e me nt a nd the se rvic e s

re c e ive d the re ;

E

ffe c ts o f re lo c a tio n o n visita tio n pa tte rns; a nd

Pe rso na l o pinio ns o f ho w the re la tive / wa rd is do ing sinc e

tra nsitio n a nd the impa c t c lo sure ha d o n the fa mily.

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De mo g ra phic s

88% o f re spo nde nts we re fa mily me mb e rs Pa re nts, sib ling s, a unts/ unc le s, nie c e s/ ne phe ws,

• r c o usins

T

he ma jo rity o f re spo nde nts we re …

At le a st 65 ye a rs o ld (55.4%), F

e ma le (67.7%) o r,

White (86.2%)

Pha se I I : Sta ke ho lde r I nte rvie ws

53 inte rvie ws a c ro ss the sta te T

he va st ma jo rity (95%, n = 36) o f the inte rvie ws we re do ne in pe rso n, tho ug h two individua ls (5%) o pte d to c o nduc t the inte rvie w o ve r the pho ne .

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Pha se I I I : I ndividua l I nte rvie ws

15 inte rvie ws with fo rme r JDC re side nts 12 living in c o mmunity pla c e me nts, thre e

living in o the r SODCs

Pre -T ra nsitio n

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I nitia l Sa tisfa c tio n with De c isio n to Clo se JDC

Very Dissatisfied, 69.2% Somewhat Dissatisfied, 13.8% Somwhat Satisfied, 6.2% Very Satisfied, 10.8%

I ndividua l’ s Re a c tio n to Clo sure

So me sta te d the y le a rne d o f c lo sure

b y ne wspa pe r, ra dio , o r te le visio n

“I a m g la d I a m o ut o f JDC!”

“I wa s a ng ry...b e c a use I he a rd Ja c kso nville wa s c lo sing . I ne ve r kne w it wa s c lo sing .”

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Be ne fit fro m a Mo ve to the Co mmunity

Strongly Disagree, 55.6% Disagree, 11.1% Agree, 12.7% Strongly Agree, 20.6%

Ac tive Co mmunity Ca re T ra nsitio n (ACCT )

“...we sa id to ...g ua rdia n[s], if wha t we b uild into the pla n, yo u fe e l it is no t suffic ie nt e no ug h, te ll us wha t yo u wa nt a nd we will wo rk it into the pla n. So so me fa mily [me mb e rs] c o uld sa y, ‘ My g uy ne e ds mo re tha n tha t.’ And we we re willing to put tha t into the pla n. I t's a g a in individua l.” - Sta ke ho lde r

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Pe rso n Ce nte re d Pla nning Me e ting s

“I think the a sse ssme nt a nd the pe rso n-c e nte re d pla n writing we re do ne e xtre me ly we ll. I think we re a lly lo o ke d ve ry c a re fully a t wha t e ve ry c o nsume r ne e de d a nd I think in just a b o ut e ve ry c a se we pro vide d the who le pro c e ss wa s ve ry we ll do ne .”

Pre -T ra nsitio n Pro c e ss

n %

T he re spo nde nt indic a te d tha t the y... Re c e ive d time ly upda te s o n re la tive ’ s tra nsitio n 39 60.0 Re c e ive d a ny info rma tio n o n o the r re side ntia l o ptio ns 40 61.5 Re c e ive d a de q ua te info rma tio n o n se rvic e pro vide rs 35 53.8 Re spo nde nts (n=62) indic a te d tha t the y visite d... At le a st o ne pro vide r a g e nc y 37 59.7 Re spo nde nts indic a te d tha t the ir re la tive visite d the ir ne w ho me ... At le a st o nc e (n = 61) 27 44.3 Sho rt visit (fo r le ss tha n 3 ho urs) (n = 59) 21 35.6 Da y visit (o ve r 3 ho urs b ut no t o ve rnig ht) (n = 59) 16 27.1 Ove rnig ht o r lo ng e r (n = 59) 11 20.3

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T ra nsitio n Pro c e ss

Sa tisfa c tio n with Clo sure Pro c e ss

Very Dissatisfied, 36.9% Somewhat Dissatisfied, 10.8% Somewhat Satisfied, 21.5% Very Satisfied, 30.8%

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Clo sure Sa tisfa c tio n b y whe the r Opinio ns we re Re spe c te d

100.0% 22.7% 77.3%

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

Opinions not respected (n=21) Opinions respected (n=44)

Dissatisfied Satisfied

Pe rc e ive d re c e ipt o f a de q ua te info rma tio n b y sa tisfa c tio n with c lo sure pro c e ss

76.7% 22.9% 23.3% 77.1%

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

Did not receive (n=30) Received (n=35) Dissatisfied Satisfied

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Clo sure Sa tisfa c tio n b y whe the r Re la tive Visite d Ne w Re side nc e Prio r to Mo ve

64.7% 29.0% 35.3% 71.0% 0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

Zero (n=34) One or more (n=31)

Dissatisfied Satisfied

Re a so ns fo r F e e ling Rushe d

“I think the re we re g ua rdia ns who we re pre tty ste a dfa st in the ir re fusa l to pa rtic ipa te in the pro c e ss until it g o t to wa rds the e nd a nd it a ppe a re d tha t a c tua lly the lig hts we re g o ing to b e turne d o ff. And so the n the re wa s tha t kind o f ‘ hurry up a nd g e t it do ne .’ ”

“…yo u ha ve b uilde rs tha t a re spe nding the nig ht in sle e ping b a g s to he lp yo u g e t thing s do ne just b e c a use the y wa nt to he lp yo u o ut a nd the y a re no t g e tting a ny e xtra mo ne y o r a ny e xtra a nything . We we re b a king g o o ds to ta ke

• in. L

ite ra lly the y we re g iving it a ll the y ha d, we e ke nds, e ve rything .”

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Co mmunic a tio n

“Yo u kno w, a t the e nd o f the da y, we ha d no le ss tha n fo ur pe o ple who b e lie ve d tha t the y we re in c ha rg e o f the pro c e ss.” “I fe lt tho ug h tha t JDC sta ff in o ur tra nsitio n me e ting s g a ve a lo t o f g o o d info rma tio n whe n the y wo uld c o me a nd I re a lly re lie d o n the m mo st o f a ll b e c a use a s we we re g o ing thro ug h this pro c e ss a nd a s the y're e xpla ining die ta ry thing s, b e ha vio ra l thing s, just diffe re nt a spe c ts o f tha t individua l, the sta ff c a n jump in a nd sa y, ‘ And b y the wa y, this is a q uirk tha t pe rso n ha s o r yo u kno w the y sa y this is wha t yo u kno w he like s, b ut he re a lly do e sn't like this kind o f fo o d type o f thing .’ ”

Cho o sing a Pro vide r

“…I wo uld sa y, ‘ I a lwa ys like to lo o k a t se ve ra l pla c e s. I t's like whe n yo u b uy a ho me . Whe n yo u wa lk in the ho me tha t is g o ing to b e yo ur ho me , the re is just so me thing yo u kno w it's the rig ht ho me . Whe n yo u g o a wa y to a c o lle g e , yo u kno w whe n it is the rig ht c o lle g e .’ Yo u c a n't e xpla in it. I t's just like a g ut fe e ling a nd I think whe n yo u visit diffe re nt fa c ilitie s tha t will ha ppe n.”

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Cho ic e o f Se tting

25 SODC 11 SODC 8 CILA 6 ICF/DD 21 CILA 21 CILA 8 ICF/DD 4 CILA 4 ICF/DD 1st Choice of setting Where they moved

Po st-T ra nsitio n

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Sa tisfa c tio n with Ne w Ho me

Very Dissatisfied, 3.2% Somewhat Dissatisfied, 4.8% Somewhat Satisfied, 25.4% Very Satisfied, 66.7%

Sa tisfa c tio n with Ne w Ho me L

• c a tio n

“I t [the c lo sure ] ha s e na b le d o ur re la tive to live c lo se r to his ho me to wn whe re his fa mily live s.” ~ F a mily Me mb e r “We wo rrie d a b o ut the tra nsitio n. We we re ve ry disa ppo inte d tha t o ur b ro the r mo ve d to the Chic a g o a re a . ... We a re ple a se d with the ho me a nd sta ff b ut no t the lo c a tio n.” ~ F a mily Me mb e r

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I nc re a se d Co mmunity Pa rtic ipa tio n, Priva c y a nd the De sire fo r Mo re I nde pe nde nc e

“I like it he re . I t’ s so fun. I c o uld do mo re a c tivitie s a nd yo u kno w do sho pping a nd thing s like tha t.” ~ fo rme r JDC

re side nt

“[Re la tive ] ha s mo re priva c y b y ha ving his

• wn ro o m. He ha s mo re

a c c e ss to the c o mmunity.”

De sire fo r mo re I nde pe nde nc e

“I

to ld my mo m I wa nte d to g e t o ut o f [the SODC] b y a t le a st 2019 o r 20, b ut she thinks I ne e d to sta y a little lo ng e r … Ge t se ttle d in b e fo re I mo ve o ut a nd do o the r thing s. I ke e p te lling he r, ‘ We ll I a m re a dy fo r a n a pa rtme nt,’ b ut she do e sn’ t think I a m re a dy fo r a n a pa rtme nt b e c a use she do e sn’ t think I c a n do it a ll b y myse lf o n my o wn in a n a pa rtme nt a nd stuff. I a rg ue d b a c k a nd fo rth se ve ra l time s, b ut I ne ve r win.”

~ fo rme r JDC re side nt

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Sa tisfa c tio n with Ne w Ho me Sta ff a nd Ro o mma te s

96% o f re spo nde nts b e lie ve d the ir re la tive

re c e ive d a de q ua te supe rvisio n

84.6% o f re spo nde nts fe lt the ir re la tive like d the ir

ne w sta ff

81.5% o f re spo nde nts fe lt the ir re la tive g o t a lo ng

with the ir ne w ho use ma te s

Co mpa re d to JDC

Somewhat worse, 13.3% About the same, 26.7% Somewhat better, 26.7% Significantly better, 33.3%

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Ob se rve d Cha ng e s in F a mily Me mb e r

“He is c o nte nt whe re he is, lo o ks a little he a lthie r b e c a use the me a ls

• ffe r mo re va rie ty, a nd he is a llo we d

to ta p o n his ma ke -shift drums (c o o kie tins) fo r lo ng e r dura tio ns, whic h a lwa ys ma ke s him ha ppy. T he ho me do e sn't ha ve the e c ho e s the la rg e da y ro o m ha d a t JDC, a nd [re la tive ] is upse t b y lo ud no ise s, so this is b e tte r.”

“E ve n the g ua rdia n ha s sa id just lo o king a t him, he lo o ks like he is mo re he a lthy. L ike he is e a ting b e tte r. His c o lo r is so muc h b e tte r. He just lo o ks like he is yo ung e r a little b it e ve n. She sa id, “I 've se e n this hug e tra nsitio n.” ~ Gua rdia n

Cha ng e in Sa tisfa c tio n T

• wa rds JDC Clo sure

More Negative, 3.2% No Change, 50.8% More Positive, 46.0%

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I nitia l a nd Curre nt Sa tisfa c tio n L e ve ls

69.2% 36.5% 13.8% 14.3% 6.2% 23.8% 10.8% 25.4%

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

Initially (n = 65) Currently (n = 63)

Very Dissatisfied Somewhat Dissatisfied Somewhat Satisfied Very Satisfied

Re c o mme nda tio ns

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Suppo rt I ndividua ls

Arra ng e in-pe rso n visits o f ne w ho me whe n po ssib le Use te c hno lo g y, writte n ma te ria ls, o r o the r me dia

to pro vide virtua l to ur o f ho me a nd me e t sta ff

Ma ke mo ving da y mo re c o mfo rta b le b y ha ving

SODC sta ff, re la tive s, a nd fa milia r o b je c ts mo ve with the m to ne w ho me

Suppo rt F a milie s

 Ge t fa milie s invo lve d in the c lo sure pro c e ss e a rlie r  I

de ntify po int o f c o nta c t pe rso n

 Use te c hno lo g y a nd listse rv to pro vide c o nsta nt, a c c ura te info rma tio n  Arra ng e in-pe rso n visits o f ne w ho me whe n po ssib le  Use te c hno lo g y, writte n ma te ria ls, o r o the r me dia to pro vide virtua l to ur

• f ho me a nd me e t sta ff

 Ha ve fa milie s who ha ve a lre a dy g o ne thro ug h tra nsitio n a va ila b le to ta lk

with o the r fa milie s

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Co mmunic a tio n

 SODC Sta ff  Ha ve sc he dule d c a mpus-wide a nd individua l me e ting s  Use a c a le nda r fo r PCP me e ting s a nd mo ving da te s  I

de ntify ke y c o nta c t pe rso n fo r SODC sta ff to c o nta c t with q ue stio ns

 Pro vide r Ag e nc y  I

de ntify SODC c o nta c t pe rso n fo r pro vide r a g e nc y to c o nta c t with q ue stio ns

 Use a c he c k list to a ssure tha t individua l a rrive s with ne c e ssa ry supplie s

me ntio ne d

Co nc lusio ns

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Co nc lusio ns

Clo sure pro c e ss still ne e ds wo rk Outc o me s a re still prima rily po sitive a nd simila r

to wha t lite ra ture ha s sho wn (L a kin, L a rso n, & K

• im. 2011)