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Paul Jenkins Chief Improving care Executive of for people with Rethink Mental schizophrenia Illness and psychosis Lancashire Early Intervention Service Shared Learning Conference 4 June 2013 Network Name EIS Shared Learning Conference


  1. Paul Jenkins Chief Improving care Executive of for people with Rethink Mental schizophrenia Illness and psychosis Lancashire Early Intervention Service Shared Learning Conference – 4 June 2013 Network Name EIS Shared Learning Conference

  2. Schizophrenia Commission Established to mark 100 anniversary of coining of term “schizophrenia”. Independent multi-disciplinary expert group chaired by Sir Robin Murray. Scoping current experience of people with schizophrenia and making recommendations for improving outcomes. 6 public evidence sessions, 8 experts, 2500 online responses. Report “The Abandoned Illness” published 14 November. Network Name

  3. Many of the outcomes we achieve for people with schizophrenia and psychosis are unacceptable Excess mortality – people dying 1 5-20 years earlier. Poor social outcomes – only 8% in employment. Overrepresentation of people with schizophrenia/psychosis in prison or amongst homeless population. Very high levels of stigma and misunderstanding. Cost to society of £11.8 billion. Network Name

  4. How is the system failing? Insufficient attention given to prevention. Priorities driven by risk not recovery. Services fragmented and service users and families insufficiently central to decision making or listened to. Not doing things we know work. Network Name

  5. Insufficient attention given to prevention Environment and experience have a major role in the development of schizophrenia/psychosis. Risks of cannabis use still not properly understood. Need for positive interventions in schools and elsewhere to support young people with mental health problems. Protect and extend early intervention services. Network Name

  6. Priorities driven by risk not recovery Therapeutic “negativism”. Impact of media and public stereotyping. Secure care consuming 20% of mental health budget. State of some inpatient care Lack of aspiration from commissioners and providers. Network Name www.rethink.org

  7. Services fragmented Failure to create a system of care and to industrialise good practice. Continuity of care undermined. Need for integration between primary and secondary care. Impact of social care and welfare cuts. Network Name

  8. Service users and carers insufficiently central to decision making Values based care. Shared decision making and personalisation. Peer support. Family friendly care. Network Name

  9. Not doing what works The best medication. Physical health interventions. Psychological therapies. Individual Placement and Support (IPS). Compassion and kindness. Network Name

  10. What we will be doing to follow through the report Keeping the issue prominent in the media. Campaigning for changes in policy and priorities. Supporting and evaluating a Development Network which implements the Commission’s recommendations. Creating a social movement to drive change. Network Name www.rethink.org

  11. This is about all of us please stay in touch For further updates about the follow through to the Schizophrenia Commission please contact us at: campaigns@rethink.org Network Name

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