ATTITUDES TO PSYCHOSIS PUBLIC VIEWS AND PERCEPTIONS London Survey - - PowerPoint PPT Presentation

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ATTITUDES TO PSYCHOSIS PUBLIC VIEWS AND PERCEPTIONS London Survey - - PowerPoint PPT Presentation

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ATTITUDES TO PSYCHOSIS PUBLIC VIEWS AND PERCEPTIONS London Survey Findings September 2015 Within&communi+es& Early&alerters& Voluntary,,community,and, Aware,of,symptoms, faith,groups, Psychosis>aware&

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ATTITUDES TO PSYCHOSIS PUBLIC VIEWS AND PERCEPTIONS

London Survey Findings September 2015

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Within&communi+es&

  • Voluntary,,community,and,

faith,groups,

  • Aware,Londoners,

In&public&services&

  • Across,agencies,,such,as,

police,,social,workers,

  • First,point,of,contact,plays,

a,key,role,

In&general&prac+ce&

  • Psychosis=capable,GPs,
  • Engaged,primary,care,

workforce,

In&acute&care&

  • London,Ambulance,Service,
  • A&E,and,ward,clinicians,

In&mental&health& services&

  • Alert,referral,for,

assessment,by,whole,team,

  • Rapid,triage,

‘Early&alerters’&

  • Aware,of,symptoms,
  • Informed,with,locally=relevant,

knowledge,and,contacts,

  • Knowledgeable,about,the,RTT,standard,

Londoners&are…& ! Not,afraid,of,psychosis, ! Do,not,judge,or, sKgmaKse, ! Able,to,spot,early, signs, ! Know,how,to,access, help,

Within&mental&health& services&

! Streamlined,pathways,–,fast, referral,to,specialist,care, ! A,range,of,intervenKons,–, because,one,size,doesn’t,fit, all!, ! Reducing,inpaKent,stays, ! HolisKc,support,–,mental, health,,social,support,and, connecKons,to,leisure,,work, etc.,

Psychosis>aware& London&

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www.eip.london

IS LONDON PSYCHOSIS AWARE?

A review of existing research found limited insight into Londoner’s level of awareness, knowledge or attitudes to psychosis - specifically about when and how to seek help. An omnibus survey was developed to measure public perceptions in London:

  • The understanding of psychosis (or relevant proxies, such as

serious mental illness)

  • The kinds of behaviours which might prompt people to seek help
  • The actions which people might take.
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www.eip.london

CONTRIBUTION

With thanks to the following for their contribution:

  • Akram Abu-oun, TNS Global
  • Alison Cobb, Steve Buckley, MIND
  • Margaret Edwards, SANE
  • Claire Henderson, King’s College London, Institute of Psychiatry
  • Andrew Tapfumaneyi, SLAM
  • Philippa Garety and other members of the CRG
  • Members of the London EIP team
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www.eip.london

METHODOLOGY

  • Conducted by TNS LondonBus, an internet omnibus able to survey

a representative sample of Londoners.

  • Online self-completion questionnaire between 18 and 22 June 2015.
  • A sample of 1,002 residents of London boroughs aged 16+ were

interviewed (n=1,002). The sample was weighted to represent the adult population of London.

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www.eip.london

Base:&All&London&adults& 16+& & && Total& & REGION'THAT'YOU'LIVE'IN' & Inner' London' Outer' London'' North' London' West' London' South' West' London' South' East' London' North' East' London' && Unweighted&Base& 1002& 367& 635& 179& 228& 196& 171& 228& Weighted&Base& 1002& 369& 633& 179& 227& 196& 172& 228& SEX& Male& 493& 185' 308' 79' 125' 88' 84' 117' && 49%& 50%' 49%' 44%' 55%' 45%' 49%' 51%' && && '' '' '' '' '' '' '' Female& 509& 183' 325' 100' 102' 108' 88' 111' && 51%& 50%' 51%' 56%' 45%' 55%' 51%' 49%' && && '' '' D' '' '' '' '' AGE& 16I24& 147& 66' 81' 26' 34' 24' 26' 37' && 15%& 18%' 13%' 15%' 15%' 12%' 15%' 16%' 25I34& 246& 113' 133' 47' 60' 44' 32' 62' && 25%& 31%' 21%' 26%' 27%' 23%' 19%' 27%' && && B' '' '' '' '' '' '' 35I44& 204& 71' 133' 34' 50' 46' 26' 48' && 20%& 19%' 21%' 19%' 22%' 23%' 15%' 21%' 45I54& 165& 57' 107' 31' 33' 36' 36' 29' && 16%& 16%' 17%' 17%' 14%' 18%' 21%' 13%' 55I64& 148& 42' 106' 24' 33' 24' 34' 33' && 15%& 11%' 17%' 14%' 14%' 12%' 20%' 14%' 65+& 92& 19' 73' 18' 17' 22' 17' 19' && 9%& 5%' 12%' 10%' 7%' 11%' 10%' 8%' WORK& Working& 654& 250' 405' 127' 145' 126' 105' 151' && 65%& 68%' 64%' 71%' 64%' 65%' 61%' 66%' && && '' '' '' '' '' '' '' Not&working& 348& 119' 229' 52' 82' 69' 67' 77' && 35%& 32%' 36%' 29%' 36%' 35%' 39%' 34%' && && '' '' '' '' '' '' ''

'

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www.eip.london

QUESTIONS

  • 1. Attitudes and perceptions (strength of agreement with each statement)

– Overall perceptions about serious mental ill health – Psychosis – Seeking help and recovery

  • 2. Symptoms and behaviours which might prompt people to seek help

(likelihood of each)

  • 3. Categories of organisations to which they might turn for help and support

(likelihood of each)

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www.eip.london

SCALE

A B C D E F Score 5 4 3 2 1 Agreement Strongly, agree Somewhat, agree Neither, agree,nor, disagree Somewhat, disagree Strongly, disagree Don’t,know/ no,response Likelihood Extremely, likely Very,likely Somewhat, likely Not,very, likely Not,at,all, likely Don’t,know/ no,response

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www.eip.london

Q1 – OVERALL PERCEPTIONS

  • People,suffering,mental,health,problems,need,help,quickly,,or,it,might,

become,more,severe,,,, , , ,72%&net&agree&

  • If,a,friend,or,relaKve,showed,signs,of,serious,mental,health,problems,,I,

would,be,very,concerned,for,them,,,78%&net&agree&

  • It,is,important,we,take,mental,health,as,seriously,as,physical,health,problems,,,

, , , , , , , , ,81%&net&agree&

  • People,with,mental,illness,are,far,less,of,a,danger,than,most,people,suppose,,,

, , , , , , , , ,50%&net&agree&

  • Mental,health,should,have,maximum,waiKng,Kme,targets,,like,there,are,for,

cancer,services,,so,people,who,are,diagnosed,with,psychosis,can,receive,help, as,quickly,as,possible,,,, , , ,73%&net&agree&

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www.eip.london

Q1 – OVERALL PERCEPTIONS

!

Base:&All&London&adults&16+& & && SEX& AGE& WORK& PARENTS& SOCIAL& GRADE& &

Total& Male! Female! 16*24! 25*34! 35*44! 45*54! 55*64! 65+! Working! Not! working! Yes! No! ABC1! C2DE!

&& Unweighted&Base& 1002& 495& 507& 136& 249& 209& 167& 148& 93& 665& 337& 254& 748& 631& 371& & Weighted&Base& 1002& 493& 509& 147& 246& 204& 165& 148& 92& 654& 348& 251& 751& 598& 404& People!suffering!mental!health!problems!need! help!quickly,!or!it!might!become!more!severe! NET&:&Agree& 720& 325! 395! 89! 169! 154! 120! 115! 73! 460! 260! 178! 542! 438! 282! 72%& 66%! 78%! 60%! 69%! 76%! 73%! 77%! 79%! 70%! 75%! 71%! 72%! 73%! 70%! If!a!friend!or!relative!showed!signs!of!serious! mental!health!problems,!I!would!be!very! concerned!for!them! NET&:&Agree& 785& 355! 430! 98! 174! 166! 133! 131! 82! 492! 293! 185! 599! 480! 305! 78%& 72%! 84%! 67%! 71%! 81%! 81%! 88%! 89%! 75%! 84%! 74%! 80%! 80%! 75%! It!is!important!that!we!take!mental!ill!health!as! seriously!as!physical!health!problems! NET&:&Agree& 812& 368! 444! 105! 182! 170! 137! 136! 82! 506! 306! 188! 625! 491! 321! 81%& 75%! 87%! 71%! 74%! 83%! 83%! 92%! 89%! 77%! 88%! 75%! 83%! 82%! 79%! People!with!mental!illness!are!far!less!of!a!danger! than!most!people!suppose! NET&:&Agree& 501& 229! 272! 64! 120! 103! 84! 85! 45! 321! 180! 126! 375! 312! 189! 50%! 46%! 53%! 44%! 49%! 50%! 51%! 57%! 49%! 49%! 52%! 50%! 50%! 52%! 47%! Mental!health!services!should!have!maximum! waiting!time!targets,!like!there!are!for!cancer! services,!so!people!who!are!diagnosed!with! psychosis!receive!help!as!quickly!as!possible! NET&:&Agree& 730& 321! 409! 92! 166! 151! 123! 124! 74! 456! 274! 177! 554! 452! 278! 73%& 65%! 80%! 63%! 67%! 74%! 75%! 84%! 80%! 70%! 79%! 70%! 74%! 76%! 69%!

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www.eip.london

Q1 – PSYCHOSIS

  • I don’t know what psychosis is and I would not recognise someone

experiencing psychosis 38% net agree

  • Psychosis is a mental health problem that causes people to perceive or

interpret things differently from those around them, which might involve hallucinations or delusions 59% net agree

  • Psychosis is the general term for severe mental illness

40% net agree

  • When a person has psychosis, they may have symptoms of severe

depression 53% net agree

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www.eip.london

Q1 – PSYCHOSIS

  • When a person has psychosis, they may have symptoms of anxiety

62% net agree

  • When a person has psychosis, they may have symptoms of

schizophrenia 53% net agree

  • When a person has psychosis, they have have symptoms of bipolar

disorder

50% net agree

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16%, 19%, 22%, 19%, 13%, 23%, 14%, 34%, 34%, 40%, 34%, 26%, 36%, 24%, 22%, 21%, 17%, 24%, 26%, 20%, 24%, 4%, 3%, 3%, 3%, 9%, 3%, 18%, 2%, 2%, 1%, 1%, 7%, 1%, 14%, 0%, 10%, 20%, 30%, 40%, 50%, 60%, 70%, 80%, 90%, 100%, When&a&person&has&psychosis,&they&may&have&symptoms&of& bipolar&disorder& When&a&person&has&psychosis,&they&may&have&symptoms&of& schizophrenia& When&a&person&has&psychosis,&they&may&have&symptoms&of& anxiety& When&a&person&has&psychosis,&they&may&have&symptoms&of& severe&depression& Psychosis&is&the&general&term&for&severe&mental&illness& Psychosis&is&a&mental&health&problem&that&causes&people&to& perceive&or&interpret&things&differently&from&those&around& them,&which&might&involve&hallucina+ons&or&delusions& I&don’t&know&what&psychosis&is,&and&would&not&recognise& someone&experiencing&psychosis& Strongly,agree,(5), Somewhat,agree,(4), Neither,agree,nor,disagree,(3), Somewhat,disagree,(2), Strongly,disagree,(1),

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www.eip.london

Q1 – SEEKING HELP & RECOVERING

  • I am confident I would know how to seek help for someone with sever

mental health problems 49% net agree

  • As soon as a person shows signs of mental disturbance, he or she

should be hospitalised 27% net agree

  • If a friend or relative showed signs of serious mental health problems,

I would encourage them to seek help, or seek help for them myself 78% net agree

  • Once someone has an episode of psychosis or other severe mental

health illness, they are unlikely to recover 19% net agree

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www.eip.london

Q1 – SEEKING HELP & RECOVERING

  • With the right help and treatment people can make a full recovery

from psychosis 55% net agree

  • People can recover from psychosis without taking medication

31% net agree

  • People with psychosis cannot be employed/should not be employed

19% net agree

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www.eip.london

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Q2 – SYMPTOMS AND BEHAVIORS WHICH MIGHT PROMPT PEOPLE TO SEEK HELP

The symptoms and behaviours suggested were:

– Someone who becomes more withdrawn, socially isolated, stops caring for

themselves

– Someone who believes that they are being watched or that people are plotting

against them

– Someone who hears voices or sees things or people who are not there – Someone who shows extreme emotional outbursts or mood swings – Someone who is experiencing delusions, or disturbing fantasies about the world

around them

– Someone who is incapable of making simple decisions about his or her own life – Someone who is very tired all the time, or extremely agitated and unable to

sleep

Respondents could list as many of the behaviours as they wanted.

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www.eip.london

58%, 61%, 71%, 53%, 67%, 47%, 44%, 0%, 10%, 20%, 30%, 40%, 50%, 60%, 70%, 80%, Someone,who,becomes,more,withdrawn,,socially, isolated,,stops,caring,for,themselves, Someone,who,believes,that,they,are,being,watched,or, that,people,are,ploeng,against,them, Someone,who,hears,voices,or,sees,things,or,people, who,are,not,there, Someone,who,shows,extreme,emoKonal,outbursts,or, mood,swings, Someone,who,is,experiencing,delusions,,or,disturbing, fantasies,about,the,world,around,them, Someone,who,is,incapable,of,making,simple,decisions, about,his,or,her,own,life, Someone,who,is,very,Kred,all,the,Kme,,or,extremely, agitated,and,unable,to,sleep, NET,:,Likely,

Total,of, Extremely, Likely,and, Very,Likely,

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www.eip.london

Q3 – CATEGORIES OF ORGANISATIONS PEOPLE MIGHT TURN TO FOR HELP

This question explored the likely sources where people may turn to seek help. Options were:

  • A close friend or family member
  • A GP
  • Dial 111
  • A&E
  • Dial 999
  • The police
  • Local authority social

services

  • A mental health helpline
  • A local mental health group
  • NHS mental health service
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www.eip.london

56%, 48%, 52%, 27%, 16%, 22%, 26%, 38%, 55%, 55%, 0%, 10%, 20%, 30%, 40%, 50%, 60%, NHS,mental,health,service, A,local,mental,health,group,,such,as,Mind,or,Rethink, A,mental,health,helpline,,such,as,Mind,InfoLine,or,SANEline, Local,authority,social,services, The,Police, Dial,999,–,the,ambulance,service, A,hospital,Accident,&,Emergency,department,(A&E), Dial,111,–,the,NHS,helpline, A,general,pracKKoner,(GP), A,close,friend,or,family,member, NET:,Likely,

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www.eip.london

KEY CONCLUSIONS

  • Overall, strong ‘in principle’ support from London residents

for the introduction for a referral to treatment target and the key aims of the EIP programme

  • (Understandably) “psychosis” as a term and diagnosis is not

well-understood by the public

  • However, the public in London is in relatively good shape

– to spot the symptoms and behaviours which should prompt them to seek help – With a good understanding of the right agencies to turn to. Headlines

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KEY CONCLUSIONS

  • Agreement with key policy priorities: ‘parity of esteem’, early intervention,

recovery

  • We should consider the preferred routes through which people seek help, to

ensure that systems, communication and referral routes are aligned

  • Within the health service, preferred routes are primary care, mental health

services and NHS 111, and respondents to this survey said that voluntary agencies are as likely to be contacted NHS services

  • Could we use data on original point of referrals to London mental health

providers and/or EIP services to ‘triangulate’ what people said with what happens in reality, with a view to designing systems which can route people seeking help effectively?

Messages for the mental health system

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www.eip.london

KEY CONCLUSIONS

  • We should segment the London public. Clear differences

between: – Men and women – Older and younger people (possible mid-thirties transition) – Young people aged 16-24, who both hold different views and are in the age cohort most likely to experience first episode psychosis

  • Leading with the term “psychosis” is not likely to be effective -

the focus should be on symptoms/behaviours and next steps to take. Messages for public-facing communication

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www.eip.london

KEY CONCLUSIONS

  • Information about when and how they should seek help should

be clear and definitive - especially about ‘first ports of call’, ideally standardised across London

  • An important objective of public guidance should be to raise the

general level of understanding and confidence: – Positive messages about outcomes and recovery – Reassurance that an effective range of services is available Messages for public-facing communication (cont)

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WWW.EIP.LONDON