An Introduction to Hospice Care Dallas Pounds, Megan Cambridge, Michael Savage, Juliette Mukoreka
About Hospices • Hospices seek to improve the quality of life and wellbeing of adults and children with a life-limiting or terminal illness, helping them live as fully as they can for the precious time they have left • Hospices offer wide-ranging, personalised care which is provided by a range of different professional staff and volunteers. As well as taking care of people's physical needs, they also look after their emotional, spiritual and social needs. • Hospices also support carers, family members and close friends, both during a person's illness and during bereavement.
About Trinity Hospice • Founded in 1891 • Based on Clapham Common • Covers 750,000 people across Central and Southwest London • Supports patients with a range of illnesses, including cancer, heart and lung disease, motor neurone disease and dementia. • We receive less than a third of our funding from the NHS. • All our services are free of charge.
VIDEO TOUR OF TRINITY
Hospices and BME communities • Evidence that people from Black, Asian and Minority Ethnic (BME) groups are less likely to access end of life care services • Barriers include: – Lower awareness of hospices among BME communities – Assumptions made by referrers e.g. families from BME communities want to deliver care – Less likely to talk about and plan for death due to cultural and religious influences e.g. God may be seen as the one to decide life and death • We are here today to raise awareness of our services and to understand how we can better meet the needs of all the people we serve
TYPES OF HOSPICE CARE Patient and Family Support Inpatient Community Outpatients Unit
1. Community For patients who wish to be looked after at home. • Community Clinical Nurse Specialists • Consultants • Occupational therapists • Befriending volunteers* • Hospice at Home**
2. Outpatients (Day Hospice) Support at the hospice for patients living at home. • Physiotherapy • Group classes e.g. art, exercise • Complementary therapy • Nurse and Consultant Clinics • Transport available
3. Inpatient Provides symptom control, rehabilitation and end of life care at the hospice. • 28 beds • Individual ensuite rooms and bay wards • Visiting times open • Families welcome to stay
4. Patient and Family Support Emotional and practical support to patients and their families. • Counselling • Welfare benefits advice • Practical planning • Bereavement support • Available across all services
Spiritual Care • Multi-faith Spiritual Care Lead and volunteers • Faith leaders regularly visit hospice • Our chefs cater to specific diets e.g. halal, kosher • Spiritual space under development for Autumn 2015 • We respect a patient’s personal wishes
ACCESSING OUR SERVICES
Where Trinity works We provide services in the following • Double column sample slide CCG areas: • Hammersmith and Fulham • Kensington and Chelsea • Westminster • Lambeth • Wandsworth • Richmond • Merton We sometimes care for people from other areas e.g. if friends or family live nearby.
How to refer Referrals are accepted from: • Healthcare professionals (GP, Hospital Doctor, District Nurse) • Other providers of support such as social workers* • Self referrals from patients and those close to them* Please call 020 7787 1065 to speak to our Referral and Admission Nurse.
TRUE OR FALSE
“IF I GO TO THE HOSPICE, I WON’T COME BACK HOME”
FALSE: 40% of patients return home from a stay in the hospice.
“HOSPICES ARE FOR PEOPLE WITHOUT FAMILIES TO SUPPORT THEM”
FALSE: Trinity works closely with families and friends to support patients.
“HOSPICES ARE FOR PEOPLE WHO HAVE YEARS LEFT TO LIVE”
TRUE: Trinity accepts anyone with a progressive, life-limiting illness whenever they need us.
“HOSPICES ARE FOR OLD PEOPLE”
FALSE: We care for anyone 18 or over. A third of the people we care for are under 65.
ANY QUESTIONS?
THANK YOU FOR YOUR TIME For more information please contact: Megan Cambridge mcambridge@trinityhospice.org.uk
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