SLIDE 5 Quick Survey of DBPs
Dept‐ wide Leader Grant Adol transition In‐patient Complex Special Clinics Education
1‐NE Tr plan Med‐P yes 2‐MW Med‐P X X X ASD,CF, SCD, heart 3‐NE yes SCD 4‐SW yes X ASD,CF,SCD 5‐S Tr plan X 6‐MW Tr plan X 7‐MW Med‐P COR, CF, SB 8‐W 9‐S X DS 10‐MW Med‐P yes X X ASD, CF, SCD 11‐W X 12‐MW Med‐P yes X
CF Doing this for 20 years
“There are always hiccups, but overall things go pretty well in transitioning CF patients to adult
- providers. Basically, the transition process begins at
diagnosis when we teach the family about
- CF. Towards the end of our education sessions we go
- ver how our team is constructed in both the adult
and pediatric areas. We then explain to the families that we usually transition patients to adult providers between their 18th‐23rd birthdays. Starting at about age 13 we discuss transition again once a year at the big visit where they get all of their annual labs and assessments.”
You are an Adult
“Once they turn 18, we go to an adult type
- appointment. The parents wait in the waiting room if
they come to a visit, and I see the patient alone in the exam room. Once we are done, I tell the patient we will bring his/her parents into the room, and I will only divulge the information that the patient wants me to
- divulge. To be honest, most don’t really care what I tell
their parents, but some do. During the last year before transition, the patient will be seen by both my adult colleague and me for a couple of visits to get the patient acclimated.”
