Florida NCI Consumer Survey Results – Recent Outcomes 2013-14 Performance Measurement for All Stakeholders Florida Statewide Quality Council Meeting June 4, 2015 Stephanie Giordano Human Services Research Institute www.hsri.org www.nationalcoreindicators.org
State Participation 2014-15
What are the Core Indicators? Outcomes for Individuals : Outcomes for Families and Guardians : Choice & Control, including Self Direction Information and Community Integration Planning Choice & Control Health & Welfare Access & Support Work Delivery Rights Community Connections Relationships Family Involvement Access & Satisfaction Satisfaction Impact of Services
Selected FL Adult Consumer Survey Findings Demographics 2013-14
Average Age and Gender Average Age Gender • FL (N= 1,495): 100 59% Male 80 41% Female • NCI Average (N= 15,211): 60 58% Male 43 42% Female 39 40 20 0 FL (N=1,499) NCI Average (N= 15,268)
Race and Ethnicity • 68% FL White • 71% NCI • 26% FL Black • 21% NCI • 15% FL Hispanic • 4% NCI
Where People Live 100% 80% 60% 53% 40% 35% 21% 18% 17% 20% 15% 13% 8% 5% 4% 3% 2% 2% 1% 0% Group Home Group Home Group Home Own Parent or Foster Other 1-3 4-6 7-15 Home Relative Home Care FL= 1,482 NCI= 14,881
Mood, Anxiety, Behavior, Psychotic Disorder, and Other Mental Illness 100% 43% 80% in FL have a co-occurring mood, anxiety, psychotic disorder and/or other mental 60% 40% 33% 31% 29% 25% 25% 25% 20% 14% 14% 12% 5% 0% Mood Disorder Anxiety Disorder Behavior Challenges Psychotic Disorder Other Mental Illness or Psychiatric Disorder NCI 2012-13 Data
Intellectual Disability No ID Diagnosis Florida 10% NCI 5% Level of ID Florida NCI Mild 23% 34% Moderate 34% 29% Severe 14% 13% Profound 7% 11% Unknown 11% 8% N 1,466 15,044
Other Disabilities 16% Autism Spectrum Disorder 17% 22% Cerebral Palsy 17% 3% Brain Injury 5% 29% Seizure or Neurological Disorder 31% 1% Chemical Dependency 1% 13% Vision or Hearing Impairment 17% 3% Alzheimer's or Dementia 4% 9% Down's Syndrome 11% 1% Prader-Willi 1% 11% Other 23% 14% No Other 13% 0% 20% 40% 60% 80% 100% Florida NCI Average
Behavior Challenges Self-Injurious Disruptive Destructive FL NCI FL NCI FL NCI None 81% 73% 69% 57% 76% 71% Some 13% 19% 22% 31% 17% 21% Extensive 6% 6% 8% 10% 6% 7% Don’t Know 0% 2% 0% 1% 0% 2% N 1,478 15,066 1,464 15,036 1,473 15,043 36% in FL need at least some support for one or more behavioral challenges 83% in FL who need some behavioral support take medication
Selected FL Adult Consumer Survey Findings 2013-14 Employment
Community Employment Has a Job by Residence Has a Job *FL Significantly below NCI Average (FL Only) 100% 3% 80% Community-Based 60% 10% Parent’s Home 40% 21% 20% 16% Own Home 10% 0% FL (N=1,485) NCI (N=14,479)
Community-based Work Has Work as a Goal in Wants a Job Service Plan 38% who wanted a job had work as a goal in their service plan
Selected FL Adult Consumer Survey Findings 2013-14 Choice and Decision- Making
Choice and Decision-Making Choices Choice and Guardianship 100% 70% Chose Home 46% 81% 80% 62% Chose 64% 64% Roommates 43% 57% 60% 51% 94% Chooses Daily 44% Schedule 83% 40% 97% C hooses How to Sp end Free Time 88% 20% 91% C hooses What to Buy 74% 0% Chose Home Chose Chose Staff 0% 20% 40% 60% 80% 100% Roommates FL NCI No Guardian Some or Limited Guardianship
Selected FL Adult Consumer Survey Findings 2013-14 Community Inclusion
Community Inclusion Went in the Community For.. 87% Shopping 89% 84% Errands 83% 73% Entertainment 71% 82% Restaurant or Diner 83% 43% Religious or Spiritual Practice 48% 52% Exercise 59% 47% Vacation 45% 0% 20% 40% 60% 80% 100% FL NCI
Community Participation and Mobility Diner or Shopping Errands Entertainment Restaurant 93% 86% 75% 87% Moves Without Aids 80% 78% 68% 68% Moves With Aids
Selected FL Adult Consumer Survey Findings 2013-14 Relationships
Social Connections 77% Has Friends 76% 79% Best Friend 79% Has Support to See 77% Friends 78% Has Support to See 71% Family** 80% Dates Without 86% Restriction 83% 36% Feels Lonely 40% 86% Can Help Others 86% 0% 20% 40% 60% 80% 100% FL NCI **FL significantly below NCI
Social Connection Social Connection by Residence 100% 94% 90% 88% 86% 85% 82% 80% 60% 41% 37% 40% 30% 20% 0% Can Go On a Date Feels Lonely Can Help Others Community-Based Own Home Parent or Relative
Selected FL Adult Consumer Survey Findings 2013-14 Service Coordination
Service Coordination 100% 94% 94% 94% 93% 92% 92% 89% 88% 88% 87% 80% 60% 40% 20% 0% Person helped SC asks what SC helps get Staff come when Gets help to make service person wants* person what they're supposed work out plan need* to problems with staff FL NCI *FL Significantly Above Average
Selected FL Adult Consumer Survey Findings 2013-14 Rights and Respect
Rights and Privacy FL NCI Reads own email/mail or 94% 86% gives permission* 94% 91% Has Enough Privacy* Use phone or internet 94% 89% without restriction* Opportunity to participate 24% 33%% in self advocacy mtg.** *FL significantly above average **FL significantly below average
Selected FL Adult Consumer Survey Findings 2013-14 Safety
Safety FL NCI Feels safe at home* 89% 82% Feels safe in 88% 83% neighborhood* Feels safe at work or 91% 86% day activity* Has someone to go to if 91% 93% feeling scared or afraid *FL significantly above NCI Average
Selected FL Adult Consumer Survey Findings 2013-14 Access
Access 100% 94% 93% 84% 82% 81% 80% 66% 60% 40% 20% 0% Gets Needed Services** Always Has Transportation Staff Have Right Training FL NCI **FL significantly below NCI Average
Additional Services Needed • 30% Need Other 32% Dental Care Services Not Listed: Physical Therapy 25% Social Behavioral Therapy Speech Therapy 21% Respite 18% Transportation 15% Help Finding, Changing, Maintaining Job
Selected FL Adult Consumer Survey Findings 2013-14 Health, Medication, and Wellness
Preventive Health Care: All Adults FL NCI Physical exam in past year* 93% 88% Routine dental exam in past 71% 79% year** Vision screening past year 55% 59% Hearing screening in past 5 41% 65% years** *FL significantly above NCI Average **FL significantly below NCI Average
Preventive Health Care Preventive Screening by Residence 97% 100% 92% 91% 85% 80% 73% 67% 65% 61% 60% 48% 45% 40% 36% 40% 20% 0% Physical exam Routine dental exam Vision screening Hearing screening past year past year past year past 5 years Group Home Own Home Parent or Relative’s Home
Vaccinations • Had Flu Vaccine in the Vaccination by Age 100% past year** 51% FL 80% 78% NCI 64% 60% 56% • Ever Had Pneumonia 42% Vaccine** 37% 40% 20% FL 20% 20% 43% NCI 14% 0% Flu Vaccine Pneumonia Vaccine **FL significantly below NCI Average 18-35 36-55 56+
Preventive Health Care: Age Specific Age-specific Preventive FL NCI Health Care Women over 18 had Pap screening 58% 67% in past 3 years** Women over 40 had mammogram 73% 75% screening in past 2 years Colorectal screening women & men 50 years and above in past 18% 19% year **FL significantly below NCI Average
Preventive Health Care Preventive Screening by Residence 100% 78% 76% 80% 72% 72% 69% 60% 47% 40% 21% 17% 17% 20% 0% Pap Test Mammogram Colorectal Cancer Screening (Women) (Women, 40+) (People 50+) Group Home Own Home Parent or Relative’s Home
Medications for Mood, Anxiety, Behavior, or Psychosis 100% 80% 60% 55% 54% 53% 53% 53% Florida 48% 46% 44% NCI Average 40% 20% 0% 2013-14** 2012-13 2011-12 2010 **FL significantly lower than NCI Average – meaning fewer people are being medicated
Medications for Mood, Anxiety, Behavior, or Psychosis by Residence 100% 80% 73% 60% 49% 40% 35% 20% 0% Community-Based Own Home Parent or Relative's Home NCI 2012-13 Data
88% with a t le ast o ne 14% dia gn o s is no d ia g n osis ta k e ta k e medication medication 42% have a co-occurring psychiatric diagnosis 52% of all respondents take at least one med (not including behave meds)
Wellness • Use Tobacco Product Engages in Regular Exercise 100% 5% FL* 7% NCI 80% • BMI 60% 8% Underweight 40% 31% 37% Normal Weight 22% 22% 20% 29% Overweight 27% Obese 0% 0% 2013-14* 2012-13** FL NCI *FL significantly above NCI Average **In 2012-13 FL was significantly below NCI
NCI Comparable & Solid Performance • People are involved in making everyday and life choices and are going out in the community • People tend to have social connections • Service coordination -- WSC’s are responsive and engage individual in service planning • Rights are being respected • People feel safe! In their home, neighborhood, and work and day setting
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