Florida NCI Consumer Survey Results Recent Outcomes 2013-14 - - PowerPoint PPT Presentation

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Florida NCI Consumer Survey Results Recent Outcomes 2013-14 - - PowerPoint PPT Presentation

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Florida NCI Consumer Survey Results Recent Outcomes 2013-14 Performance Measurement for All Stakeholders Florida Statewide Quality Council Meeting June 4, 2015 Stephanie Giordano Human Services Research Institute www.hsri.org

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Florida NCI Consumer Survey Results –

Recent Outcomes 2013-14 Performance Measurement for All Stakeholders Florida Statewide Quality Council Meeting June 4, 2015

Stephanie Giordano Human Services Research Institute www.hsri.org www.nationalcoreindicators.org

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State Participation 2014-15

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What are the Core Indicators?

Outcomes for Families and Guardians:

  • Information and

Planning

  • Choice & Control
  • Access & Support

Delivery

  • Community Connections
  • Family Involvement
  • Satisfaction
  • Impact of Services

Outcomes for Individuals:

  • Choice & Control,

including Self Direction

  • Community Integration
  • Health & Welfare
  • Work
  • Rights
  • Relationships
  • Access & Satisfaction
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SLIDE 4

Demographics 2013-14

Selected FL Adult Consumer Survey Findings

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SLIDE 5

Average Age and Gender

Average Age Gender

  • FL (N= 1,495):
  • 59% Male
  • 41% Female
  • NCI Average (N= 15,211):
  • 58% Male
  • 42% Female

39 43 20 40 60 80 100 FL (N=1,499) NCI Average (N= 15,268)

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SLIDE 6

Race and Ethnicity

  • 68% FL
  • 71% NCI

White

  • 26% FL
  • 21% NCI

Black

  • 15% FL
  • 4% NCI

Hispanic

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SLIDE 7

Where People Live

2% 21% 4% 18% 53% 1% 2% 13% 15% 5% 17% 35% 8% 3% 0% 20% 40% 60% 80% 100% Group Home 1-3 Group Home 4-6 Group Home 7-15 Own Home Parent or Relative Home Foster Care Other FL= 1,482 NCI= 14,881

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SLIDE 8

Mood, Anxiety, Behavior, Psychotic Disorder, and Other Mental Illness

25% 25% 29% 14% 5% 33% 25% 31% 14% 12% 0% 20% 40% 60% 80% 100% Mood Disorder Anxiety Disorder Behavior Challenges Psychotic Disorder Other Mental Illness

  • r Psychiatric

Disorder

43%

in FL have a co-occurring mood, anxiety, psychotic disorder and/or other mental NCI 2012-13 Data

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SLIDE 9

Intellectual Disability

Level of ID Florida NCI Mild 23% 34% Moderate 34% 29% Severe 14% 13% Profound 7% 11% Unknown 11% 8% N 1,466 15,044 No ID Diagnosis Florida 10% NCI 5%

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Other Disabilities

13% 23% 1% 11% 4% 17% 1% 31% 5% 17% 17% 14% 11% 1% 9% 3% 13% 1% 29% 3% 22% 16% 0% 20% 40% 60% 80% 100%

No Other Other Prader-Willi Down's Syndrome Alzheimer's or Dementia Vision or Hearing Impairment Chemical Dependency Seizure or Neurological Disorder Brain Injury Cerebral Palsy Autism Spectrum Disorder

Florida NCI Average

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SLIDE 11

Behavior Challenges

Self-Injurious Disruptive Destructive FL NCI FL NCI FL NCI None 81% 73% 69% 57% 76% 71% Some 13% 19% 22% 31% 17% 21% Extensive 6% 6% 8% 10% 6% 7% Don’t Know 0% 2% 0% 1% 0% 2% N 1,478 15,066 1,464 15,036 1,473 15,043

36% in FL need at least some support for one or more behavioral challenges 83% in FL who need some behavioral support take medication

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SLIDE 12

Employment

Selected FL Adult Consumer Survey Findings 2013-14

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SLIDE 13

Community Employment

Has a Job

*FL Significantly below NCI Average

10% 16% 0% 20% 40% 60% 80% 100% FL (N=1,485) NCI (N=14,479)

Has a Job by Residence

(FL Only)

3% Community-Based 10% Parent’s Home 21% Own Home

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SLIDE 14

Community-based Work

Wants a Job Goal in Has Work as a Service Plan

38% who wanted a job had work as a goal in their service plan

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SLIDE 15

Choice and Decision- Making

Selected FL Adult Consumer Survey Findings 2013-14

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SLIDE 16

Choice and Decision-Making

Choices

64% 57% 81% 51% 44% 64% 0% 20% 40% 60% 80% 100% Chose Home Chose Roommates Chose Staff FL NCI C C Sp

74% 88% 83% 43% 46% 91% 97% 94% 62% 70% 0% 20% 40% 60% 80% 100%

hooses What to Buy hooses How to end Free Time Chooses Daily Schedule Chose Roommates Chose Home

No Guardian Some or Limited Guardianship

Choice and Guardianship

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SLIDE 17

Community Inclusion

Selected FL Adult Consumer Survey Findings 2013-14

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SLIDE 18

Community Inclusion

45% 59% 48% 83% 71% 83% 89% 47% 52% 43% 82% 73% 84% 87% 0% 20% 40% 60% 80% 100% Vacation Exercise Religious or Spiritual Practice Restaurant or Diner Entertainment Errands Shopping

Went in the Community For..

FL NCI

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SLIDE 19

Community Participation and Mobility

Shopping

93% 80%

Errands

86% 78%

Entertainment

75% 68%

Diner or Restaurant

87% 68%

Moves Without Aids Moves With Aids

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SLIDE 20

Relationships

Selected FL Adult Consumer Survey Findings 2013-14

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SLIDE 21

Social Connections

86% 40% 83% 80% 78% 79% 76% 86% 36% 86% 71% 77% 79% 77%

0% 20% 40% 60% 80% 100% Can Help Others Feels Lonely Dates Without Restriction Has Support to See Family** Has Support to See Friends Best Friend Has Friends

FL NCI **FL significantly below NCI

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SLIDE 22

Social Connection

85% 41% 88% 94% 37% 90% 82% 30% 86% 0% 20% 40% 60% 80% 100% Can Go On a Date Feels Lonely Can Help Others

Social Connection by Residence

Community-Based Own Home Parent or Relative

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SLIDE 23

Service Coordination

Selected FL Adult Consumer Survey Findings 2013-14

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SLIDE 24

Service Coordination

89% 93% 92% 94% 94% 87% 88% 88% 94% 92% 0% 20% 40% 60% 80% 100% Person helped make service plan SC asks what person wants* SC helps get person what need* Staff come when they're supposed to Gets help to work out problems with staff FL NCI *FL Significantly Above Average

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Rights and Respect

Selected FL Adult Consumer Survey Findings 2013-14

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Rights and Privacy

FL NCI

Reads own email/mail or gives permission*

94% 86%

Has Enough Privacy*

94% 91%

Use phone or internet without restriction*

94% 89%

Opportunity to participate in self advocacy mtg.**

24% 33%%

*FL significantly above average **FL significantly below average

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SLIDE 27

Safety

Selected FL Adult Consumer Survey Findings 2013-14

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SLIDE 28

Safety

FL NCI

Feels safe at home* 89% 82% Feels safe in neighborhood* 88% 83% Feels safe at work or day activity* 91% 86% Has someone to go to if feeling scared or afraid 91% 93%

*FL significantly above NCI Average

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Access

Selected FL Adult Consumer Survey Findings 2013-14

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SLIDE 30

Access

66% 81% 94% 82% 84% 93%

0% 20% 40% 60% 80% 100%

Gets Needed Services** Always Has Transportation Staff Have Right Training

FL NCI

**FL significantly below NCI Average

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SLIDE 31

Additional Services Needed

32% Dental Care 25% Social 21% Respite 18% Transportation 15% Help Finding, Changing, Maintaining Job

  • 30% Need Other

Services Not Listed:

  • Physical Therapy
  • Behavioral Therapy
  • Speech Therapy
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SLIDE 32

Health, Medication, and Wellness

Selected FL Adult Consumer Survey Findings 2013-14

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Preventive Health Care: All Adults

FL NCI Physical exam in past year* 93% 88% Routine dental exam in past year** 71% 79% Vision screening past year 55% 59% Hearing screening in past 5 years** 41% 65%

*FL significantly above NCI Average **FL significantly below NCI Average

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SLIDE 34

Preventive Health Care

97% 85% 73% 48%

92% 67% 61% 36% 91% 65% 45% 40%

0% 20% 40% 60% 80% 100%

Physical exam past year Routine dental exam past year Vision screening past year Hearing screening past 5 years

Preventive Screening by Residence

Group Home Own Home Parent or Relative’s Home

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SLIDE 35

Vaccinations

  • Had Flu Vaccine in the

past year**

  • 51% FL
  • 78% NCI
  • Ever Had Pneumonia

Vaccine**

  • 20% FL
  • 43% NCI

42% 14% 56% 20% 64% 37% 0% 20% 40% 60% 80% 100% Flu Vaccine Pneumonia Vaccine

Vaccination by Age

18-35 36-55 56+

**FL significantly below NCI Average

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SLIDE 36

Preventive Health Care: Age Specific

Age-specific Preventive Health Care FL NCI

Women over 18 had Pap screening in past 3 years**

58% 67%

Women over 40 had mammogram screening in past 2 years

73% 75%

Colorectal screening women & men 50 years and above in past year

18% 19%

**FL significantly below NCI Average

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SLIDE 37

Preventive Health Care

72% 78% 17%

72% 76% 21% 47% 69% 17%

0% 20% 40% 60% 80% 100%

Pap Test (Women) Mammogram (Women, 40+) Colorectal Cancer Screening (People 50+)

Preventive Screening by Residence

Group Home Own Home Parent or Relative’s Home

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SLIDE 38

Medications for Mood, Anxiety, Behavior, or Psychosis

48% 46% 53% 44% 55% 53% 54% 53% 0% 20% 40% 60% 80% 100% 2013-14** 2012-13 2011-12 2010 Florida NCI Average

**FL significantly lower than NCI Average – meaning fewer people are being medicated

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SLIDE 39

Medications for Mood, Anxiety, Behavior, or Psychosis by Residence

73% 49% 35% 0% 20% 40% 60% 80% 100% Community-Based Own Home Parent or Relative's Home NCI 2012-13 Data

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SLIDE 40

42% have a co-occurring psychiatric diagnosis 52% of all respondents take at least one med (not including behave meds) 14% no d ta ia k g e n

  • sis

medication 88% with

  • a

ne t le ast dia ta gn k

  • e

s is medication

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SLIDE 41

Wellness

  • Use Tobacco Product
  • 5% FL*
  • 7% NCI
  • BMI
  • 8% Underweight
  • 37% Normal Weight
  • 29% Overweight
  • 27% Obese

31% 0% 22% 22% 0% 20% 40% 60% 80% 100% 2013-14* 2012-13**

Engages in Regular Exercise

FL NCI

*FL significantly above NCI Average **In 2012-13 FL was significantly below NCI

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SLIDE 42

NCI Comparable & Solid Performance

  • People are involved in making everyday and

life choices and are going out in the community

  • People tend to have social connections
  • Service coordination -- WSC’s are responsive

and engage individual in service planning

  • Rights are being respected
  • People feel safe! In their home, neighborhood,

and work and day setting

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What NCI Data Conveys for QI

  • Community Inclusion
  • Overall high rates of participation, could look at increasing participation rates for people who

are not independently mobile

  • Employment
  • Fewer people in integrated employment
  • Gap between those who want a job and who have employment as a goal in their service plan
  • Self advocacy
  • Most people without opportunity
  • Health
  • Regular Exams and preventive screenings are still low
  • Medication
  • Lower than NCI average, still about 50% and 14% with no psychiatric diagnosis taking

medication

  • Access to services
  • Higher percent of people report not getting services they need
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Survey Changes 2015-16

  • Residence
  • More clearly defined residence types
  • Expanded ICF/ID bed numbers
  • Employment
  • Separated individual job and small-group to capture if people work in both settings
  • Begin Section I with ‘Home’ questions then move to ‘Employment’
  • Home questions tend to be easier to answer and applicable to more people (starts
  • n a more positive note)
  • Self-direction
  • Expanded to include people in “self-directed” or “participant-directed” services

(not just those on self-direction waiver)

  • Moved to Section II
  • Expanded Community Participation
  • Get at whether people do what they want they want when they want
  • Rights
  • Moved to Section I
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SLIDE 45

Thoughts? Questions?

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More NCI Information

National Core Indicators website: www.nationalcoreindicators.org Stephanie Giordano, HSRI NCI Project Coordinator sgiordano@hsri.org Florida’s NCI Contact: Edwin DeBardeleben Chief, Quality Assurance & Clinical Supports Agency for Persons with Disabilities Edwin.DeBardeleben@apdcares.org