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Finding my own voice Families' Voices... Sent to 500 family members - - PowerPoint PPT Presentation
Finding my own voice Families' Voices... Sent to 500 family members - - PowerPoint PPT Presentation
Finding my own voice Families' Voices... Sent to 500 family members Personal Info Helpfulness of the Professionals Support role of the SCDT Difficult and distressing to participate >20% response rate General Findings
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Families' Voices...
- Sent to 500 family members
- Personal Info
- Helpfulness of the Professionals
- Support role of the SCDT
- Difficult and distressing to
participate
- >20% response rate
SLIDE 4
General Findings
- Inconsistency of Care
- Style of Communication
- Feelings of Abandonment
- Lack of listening to Families
- Value to Families of Honesty,
Empathy and Openness
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Specific Findings
- Funeral Directors – 'most helpful'
- Police – Families respected their
difficult role
- Health Professionals - Did not
always listen / follow up Families felt abandoned
- Hospital Paediatrician – Role
unclear to many families, more clarity required in future
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‘Listening’ to families
Professionals who were deemed most helpful were:
- Honest and open
- Clear with information
- Not in a hurry
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‘Listening’ to families
Professionals who were least helpful were:
- Unable to deal with the
situation (Inexperience, Ill equipped)
- Didn’t follow up in a timely
manner
- Lacked Empathy
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Collective voices
Scottish Cot Death Trust
- Speak at national conferences
- f professional groups
- Strengthen support services
to families
- Produce sibling resource
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Collective voices
SCDT Families
Professionals
Policies
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Collective voices
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