Enduring Disabilities and/or Disadvantages (EDD) Theme Theme Lead: - - PowerPoint PPT Presentation

Collaboration for Leadership in Applied Health Research and Care East of England

Enduring Disabilities and/or Disadvantages (EDD) Theme

Theme Lead: Emeritus Professor Tony Holland

Our Aims

❑ To carry out inter-disciplinary research that benefits (i) children, young people, and adults with enduring cognitive, social and/or functional al difficulties and/or social disadvantages that may compromise their mental and/or physical well-being, (ii) their families, and (iii) the health and/or social services that support them; ❑ To carry out research in ways that are innovative through, for example, the use of novel approaches to PPI, the involvement of practitioner researchers and CLAHRC Fellows, charitable and other third sector

• rganisations, and new technologies.

Enduring Disabilities and/or Disadvantages (EDD) Theme

LD Young people Autism Trans- diagnostic

Collaborations with service users and families ❑ Service user advisory group of people with learning disabilities and additional mental health and/or behavioural needs ❑ Co-producing information for families of children with ‘global developmental delay’ Diagnosis and assessment ❑ Red Flags: improving the diagnosis of autism spectrum conditions ❑ ‘Vulnerability’ in autistic people Interventions for specific groups ❑ Inter-Personal Counselling for YP with symptoms of depressions ❑ Supporting young people with LD and/or autism to remain ‘close to home’ Informing and/or evaluating service provision ❑ The purpose, structure and functioning

• f CTs

❑ Physical, social and psychological needs of C&YP with acquired brain injuries

Enduring Disabilities and/or Disadvantages (EDD) Theme

‘we developed a plan of what we wanted to achieve together and what we thought good would look like … nothing seems too much trouble … exactly the kind of support that is needed’ Kyle’s parents

Kyle’s Story

Enduring Disabilities and/or Disadvantages (EDD) Theme

2011

Making a local impact

Cambridgeshire County Council funding (CLAHRC EoE support) to PBS team

• maintain and develop service
• extend to another part of county

Start of Government’s ‘Transforming Care’ programme Positive Behaviour Support (PBS) in NICE Guideline NG11 CLAHRC Fellowship award to Roland Casson. (RC) RC seconded from CPFT to Cambridgeshire Social Care Pilot PBS team established locally.

2015 2015-2016 2016-2018 2019-2021

Promoting successful impacts

❑ Explicit support from service users and/or their families ❑ Fit with local priorities ❑ Sustained support from local champion/s ❑ Supported by NICE guidelines, national policy, ‘good practice’ guidance ❑ Service change is at least part- funded by others ❑ Clear economic benefits to statutory services

Enduring Disabilities and/or Disadvantages (EDD) Theme

For further information, please contact Isabel Clare: ichc2@medschl.cam.ac.uk

Enduring Disabilities and/or Disadvantages (EDD) Theme