Dysphagia: decisions, decisions, decisions Sean White Home Enteral - - PowerPoint PPT Presentation

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Dysphagia: decisions, decisions, decisions Sean White Home Enteral - - PowerPoint PPT Presentation

Jan 24, 2023 369 likes •705 views

Dysphagia: decisions, decisions, decisions Sean White Home Enteral Feed Dietitian Sheffield Teaching Hospitals NHS Foundation Trust Alali et al 2018 Lets get inside the mind of a person with dysphagia: Consider the impact of having

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Dysphagia: decisions, decisions, decisions

Sean White Home Enteral Feed Dietitian Sheffield Teaching Hospitals NHS Foundation Trust

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Alali et al 2018

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Lets get inside the mind of a person with dysphagia: Consider the impact of having significant dysphagia on your life…

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Of those reporting dysphagia:

  • 60% reported swallowing is a major distraction in their lives and a

difficult problem to deal with

  • 50% frustrated, depressed, discouraged, annoyed by swallowing

problems

  • 50% afraid of choking or aspirating
  • 45% have reduced enjoyment of food and difficulty choosing foods
  • 33% take longer to finish meals
  • 25% concerns about socialising and going out for food
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Ask the experts

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300 calories 600 calories

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Optimising intake…

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Always potentially at a cliff edge

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Mean: 18.4 years Range 1-51 years (SD 9.3)

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54% (N=28) 46% (N=25)

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When is the best time?

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Plan ahead…

IT IS ALSO FOR NEUROLOGY TEAMS AND PATIENTS WITH LONG TERM NEUROLOGICAL CONDITIONS

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Expanded disability Status Scale (EDSS scale)

‘Essentially restricted to bed much of day. Has some effective use of arms retains some self-care functions’ Median = 8.5

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Shared decision making in action

Make it clear patient has a choice Holistic assessment Clarify values Weigh up risks and benefits Decision time….

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Survival

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Plan ahead…

IT IS ALSO FOR NEUROLOGY TEAMS AND PATIENTS WITH LONG TERM NEUROLOGICAL CONDITIONS …AND HEF TEAMS…

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