Clinical Research | Clinical Care Investigator Driven Industry - - PowerPoint PPT Presentation

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Clinical Research | Clinical Care Investigator Driven Industry - - PowerPoint PPT Presentation

Oct 02, 2022 271 likes •435 views

Clinical Research | Clinical Care Investigator Driven Industry Sponsored Breakfast-Wednesday April 06, 2016 Technology and Innovation Registries Colleen OConnell, MD FRCPC Research Chief Stan Cassidy Discoveries

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Breakfast-Wednesday April 06, 2016

Clinical Research | Clinical Care

Colleen O’Connell, MD FRCPC

Research Chief – Stan Cassidy Centre for Rehabilitation Assistant Professor – Dalhousie Faculty of Medicine/Memorial University

  • Investigator Driven
  • Industry Sponsored
  • Technology and

Innovation

  • Registries
  • Discoveries
  • Best Practice

Development

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Breakfast-Wednesday April 06, 2016

Symbiotic Mutualism

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Breakfast-Wednesday April 06, 2016

Clinical Research

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Breakfast-Wednesday April 06, 2016

Practice-based Research

  • Research conducted by

providers in clinical practice

  • Final step in

translational research continuum

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Breakfast-Wednesday April 06, 2016

Patient-oriented

  • 17 pharmacologic trials

– 3 investigator driven – >1M – Current 11 staff PT funding (4 trials)

  • 9 technology trials

– 100K CFI eksoskeleton – Biotone – 2.4M – Industry (Myndmove, Sensimat, B-Temia)

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Breakfast-Wednesday April 06, 2016

Recent Grants - 2016

  • ALS Discovery Grant – SCCR/Vitalite – 100K
  • ALS Clinical Management – SCCR/McGill –

200K + matching industry

  • RHSCIR - $40K
  • CFI – 100K
  • CNDR - $16K
  • Myndmove - $200K (4 sites)
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Breakfast-Wednesday April 06, 2016

Outcomes and health services

  • > 250K to date
  • 3 PT staff positions
  • ~ 55K annually
  • Canadian ALS Registry
  • Canadian NMD Registry
  • RHISCIR
  • Knowledge Mobilization

Network

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Breakfast-Wednesday April 06, 2016

Evidence Based Practice

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Breakfast-Wednesday April 06, 2016

Epidemiological and behavioural

  • Summer research students
  • National

presentations/publications

  • ALS-NB Cluster Study
  • ALS Quality of Life

Validation

  • ALS Research Readiness
  • Canadian ALS Registry
  • Canadian NMD Registry
  • RHISCIR
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Breakfast-Wednesday April 06, 2016

Benefits to Patients and Systems

  • Improvements in Infrastructure:

– Access to new equipment and technology – Access to novel therapies – Acquisition of new skills

  • Improvement in Outcomes:

– Greater adherence to treatment guidelines – More use of evidence-based practice

  • Staff attraction/retention
  • Improved research literacy
  • Culture of enquiry and critical appraisal of practice
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Breakfast-Wednesday April 06, 2016

Canadian MS Survey

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Breakfast-Wednesday April 06, 2016

New Brunswick Prevalence

Multiple Sclerosis: 1300-1800 Amyotrophic Lateral Sclerosis: 60 patients SCI – 30 new annually Muscular Dystrophy and related: 250 Parkinsons Disease, Huntingtons, Spinocerebellar Ataxias….

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Breakfast-Wednesday April 06, 2016

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Breakfast-Wednesday April 06, 2016

Research Networks

  • Canadian ALS Clinical Trials and Research

Network

  • Rick Hansen Institute Spinal Cord Injury Research

Leadership Team

  • SCI – Knowledge Mobilization Network
  • CCIC
  • Atlantic Mobility Action Project
  • End-MS Research Network
  • Canadian Neuromuscular Disease Research

Network

  • Canadian Neuropulmonary Research Network
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Breakfast-Wednesday April 06, 2016

Conclusion

  • Clinical research

compliments clinical practice

  • Creates jobs, brings in

equipment, expertise and positive outcomes

  • Participation in

national/international research networks and registries can facilitate participation and improve efficiencies