C RPSFAC EBOOK LIVE In May 2009 I developed the symptoms of C - PowerPoint PPT Presentation

C RPSFAC EBOOK LIVE

In May 2009 I developed the symptoms of C RPS It took many doctors to make the diagnosis MY BRIEF STORY We experimented with several medications before finding the right ones that began to bring a bit of relief Physical therapy with the RIGHT therapist was my turning point

MY TREATMENT AND RECOVERY WHAT WAS MOST EFFECTIVE? Not reading Goal directed C ymbalta and Moving! about worst physical therapy T opamax case scenarios Believing I Finding doctors Maintaining Not making would get who cared and activities that C RPS my whole better suited me were possible life

CHRONIC PAIN STRATEGIES – BEHAVIORAL QUESTION: HOW TO USE COPING STRATEGIES FASTER WHEN FACED WITH NEW SYMPTOMS? Find a knowledgeable Experiment with Use it or lose it – break Practice PT exercises at physical therapist, medications, give them Activity scheduling the brain pain cycle home, consistently! must be goal directed time (side effects) Vitamins (Vitamin B12, S ocial support* Relaxation S trategies* Vitamin D, Vitamin C , S leep* Diet* Vitamin B3, Vitamin E)

Family, Friends, C oworkers, C lassmates Online support – with caution SOCIAL SUPPORT 1. How can we stay connected to loved ones during times of quarantine? 2. How do we cope with the loss of friends/family due to C RPS ?

RELAXATION STRATEGIES DEEP BREA THING GUIDED IMAGERY MEDIT A TION (MY FAVORITE: THE BODY S C AN) QUESTION: I WOULD LIKE TO SEE GUIDED IMAGERY IN DEPTH WARM BA TH LIS TEN TO APPS : C ALM, S OO THING MUS IC HEADS PAC E

SLEEP (SLEEP HYGIENE FOR IMPROVED SLEEP) S hut all electronics an hour before bed ¡ Dim the lights an hour before bed ¡ S top caffeine after 12pm (those with C RPS should limit caffeine in general) ¡ Limit alcohol ¡ T ake a warm bath or shower ¡ Keep room cool (68 degrees) ¡ Keep room dark ¡ Only use bed for sleep/sex ¡ Do deep breathing or meditation or imagery as falling asleep ¡ If you cannot fall asleep in 20 minutes, get up, go to another room, do something soothing for 30 minutes, try again ¡

DIET GOOD FOOD GOOD F OODS: S: fish S: fried (w/Omega-3s, berries, NO NOT-SO SO-GOOD F GOOD FOOD OODS: broccoli, kale, spinach, foods, junk food, refined avocados, decaf green tea, carbs, sugary beverages, processed meats, trans fats, peppers, mushrooms, grapes, turmeric, EVOO, cherries, caffeine grass-fed organic meat, water

MORE AUDIENCE QUESTIONS How do you get an 18-year old who has had CRPS for 6 years and has been through multiple therapies, multiple medications, 6 weeks in Boston How not to fear that it will come back if Guilt because don't know how or why children’s hospital, multiple psychologists you're in remission? got remission? and psychiatrists, to re-gain hope? To speak to a psychologist again? He’s depressed, angry and has given up all hope that something will work.

COGNITIVE STRATEGIES

ANY O THER QUES TIONS ?