BLADDER CANCER 101: BCAN RESOURCES TO REACH & TEACH ABOUT - - PowerPoint PPT Presentation

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BLADDER CANCER 101: BCAN RESOURCES TO REACH & TEACH ABOUT - - PowerPoint PPT Presentation

Jan 01, 2024 42 likes •362 views

BLADDER CANCER 101: BCAN RESOURCES TO REACH & TEACH ABOUT BLADDER CANCER #BCANSummit18 1 BLADDER CANCER in 2018 6 th most 600K + living 81,190 with bladder diagnosed common cancer in 2018 cancer Bladder cancer affects approximately

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BLADDER CANCER 101:

BCAN RESOURCES TO REACH & TEACH ABOUT BLADDER CANCER

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Bladder cancer affects approximately 2.7 million people globally

Developed Developing Developed Developing Incidence* 16.9 5.3 3.7 1.5 Mortality* 4.5 2.6 1.1 0.7

*Per 100,000, American Cancer Society, Surveillance Research, 2015

81,190 diagnosed in 2018 600K + living with bladder cancer

6th most common cancer

About 59% of bladder cancer cases occur in developed countries

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BLADDER CANCER in 2018

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BCAN BEGINNINGS – DIANE & JOHN QUALE

Established BCAN in 2005

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MISSION

Advance Research Raise Awareness Provide Education and Support

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AWARENESS AND ADVOCACY

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Bladder Cancer Advocacy Network

Outreach to Medical Practices Medical Conference Participation

Social Media Outreach BCAN Chapter Activities

Collaboration with Industry Partners & International Counterparts

2018 BCAN AWARENESS ACTIVITIES

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Bladder Cancer Advocacy Network

Walks to End Bladder Cancer

Media Campaign (Press Releases, PSAs and ads) “Shine a Light” Campaign (building/ structure illuminations)

Outreach to Medical Practices Medical Conference Participation

Social Media Outreach BCAN Chapter Activities

Collaboration with Industry Partners & International Counterparts

Rollout of Smoking & Bladder Cancer Fact Sheets, Webinars & Awareness Quiz

2018 BCAN AWARENESS ACTIVITIES

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May is Bladder Cancer Awareness Month!

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THIS FALL, LEARN ABOUT THE SIGNS AND RISK FACTORS FOR BLADDER CANCER.

Share where you live, work, play and pray so others don’t learn about bladder cancer when they are diagnosed.

https://www.bcan.org /signs-risk-factors/

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2018 PUBLIC SERVICE ANNOUNCEMENT

For the 2018 Bladder Cancer Awareness Month PSA for distribution to media

  • utlets as well as

doctors offices nationwide. Watch the PSA on https://www.bcan.or g/press-media/

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BCAN WALK TO END BLADDER CANCER

2018 Washington DC

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▪ 306 Teams ▪ Over 3,000 participants ▪ Raised $743,000 to support BCAN’s mission BCAN Walk to End Bladder Cancer events took place in 27 locations in 19 states in 2018.

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WALK TO END BLADDER CANCER RECAP VIDEO WATCH NOW AT HTTPS://WWW.BCAN.ORG/PRESS- MEDIA/

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Raising Awareness with International Counterparts

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BCAN also partners with Bladder Cancer Canada and organizations in the UK (Fight Bladder Cancer) to recognize May as Bladder Cancer Awareness

  • Month. Together, we sounded the

global alarm about bladder cancer risks, signs and symptoms. Now BCAN is working with international groups to start the World Bladder Cancer Patient Coalition

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ADVOCACY

BCAN brings advocates to Capitol Hill in Washington DC and works with patient advocates to support Federal legislation.

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Rally for Medical Research, September 2018

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RESEARCH*

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*Named one of America's 10 Best Medical Research

Organizations by Charity Navigator!

*BCAN was recognized for our commitment to funding cutting-edge research and finding breakthroughs for bladder cancer and we are dedicated to using donors funds wisely in our journey to find a cure. For more details visit https://www.bcan.org/bcan-named-one-of-charitynavigators- americas-10-best-medical-research-organizations/

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2018 Bladder Cancer Research Innovation Award and BCAN Young Investigator Awards

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Michael M. Shen, PhD Columbia University Philip Abbosh, MD, PhD Fox Chase Cancer Center

David Oh, MD, PhD

  • Univ. California, SF

Eugene Lee, MD University of Kansas

https://www.bcan.org/research-grants/

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SCIENTIFIC ADVISORY BOARD

Nationally Recognized Multidisciplinary Experts

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BCAN has built a culture of collaboration and excitement around bladder cancer- a disease that was all too often ignored before BCAN came along. Thank you for all that you- and the amazing folks on your team- have done over the years and continue to do every day. I am so proud to be a part of this amazing organization.

  • Elizabeth R. Plimack, MD, MS

Chief, Division of Genitourinary Medical Oncology Fox Chase Cancer Center

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Collaborating to move research forward.

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BLADDER CANCER THINK TANK – Scientific Meeting

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https://www.bcan.org/bladder-cancer-think-tank/

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CLINICAL TRIALS DASHBOARD - HTTP://CLINICALTRIALS.BCAN.ORG/

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EDUCATION

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EDUCATION

www.BCAN.org

Patient Handbook

“From the beginning, BCAN has always been focused on all of the survivors, not just the patient survivor, but also the caregivers, the partners, the family, and the friends.” – Rick Bangs, Patient Advocate

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EDUCATION - ONLINE

  • Website
  • Fact Sheets
  • Expert Explanations
  • Patient Insight Webinars
  • Conversations

What you need, when you need it. 24/7 Multi-faceted resources

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EDUCATION

“Bladder Cancer: Get the Facts” Tip Sheets

  • Cystoscopy
  • Transurethral Resection of Bladder Tumor (TURBT)
  • Bacille Calmette-Guerin (BCG)
  • Radical Cystectomy
  • Ileal Conduit
  • Indiana Pouch
  • Neobladder
  • Immunotherapy
  • Palliative Care

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 Expert Explanations

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EDUCATION

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EDUCATION

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Patient Insight Webinars

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  • Sexuality after Bladder Cancer
  • Biomarkers
  • Personalized Medicine and

Immunotherapy

  • The Multidisciplinary Approach
  • Spotlight on Recurrence
  • Spotlight on BCG

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EDUCATION

Conversations | Let’s Talk about Bladder Cancer with Diane Zipursky Quale

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PATIENT SUPPORT

Online Support Community BCAN Chapters Survivor 2 Survivor BCAN Connections

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▪ Albany, NY ▪ Corpus Christi, TX ▪ Chattanooga, TN ▪ Las Vegas, NV ▪ New Jersey ▪ NC Coastal Chapter ▪ North Carolina Triangle ▪ Richmond, VA ▪ Pennsylvania ▪ San Diego, CA

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BCAN CHAPTERS

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SUPPORT

▪ Survivor 2 Survivor ▪ BCAN Connections ▪ BCAN Online Support Community

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QUESTIONS?

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ANSWERS! Visit WWW.BCAN.ORG

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Important feedback – evaluation form Strengthen the community – get to know each other in person. What’s your “Inspire” handle? Forms in your packets – turn them in at the end of the Summit and pick your swag!

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GET FREE BCAN SWAG! #BCANorange! ONE MORE THING. Your thoughts and opinions matter!

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Your Support is Critical to Our Success

Thank you for helping us in our mission to increase public awareness, advance bladder cancer research, and provide education and support services for the bladder cancer community.

#BCANSummit18