ANNUAL MEETING 2018 Our mission To provide meaningful activity and - - PowerPoint PPT Presentation

ANNUAL MEETING 2018

To provide meaningful activity and respite for younger people living with dementia working alongside other statutory provision, across the working week, within Berkshire.

Our mission

Partners

Clinical Commissioning Groups Berkshire Healthcare Foundation Trust Banyan Home Care Services Young Dementia Network Sweettree Dementia UK

Our service

• Berkshire west – 289 workshops in the period
• East Berkshire – 149 workshops in the period

Workshops:

• Berkshire west - 65
• East Berkshire - 16

1:1 support:

We have successfully run 5 day provision across Berkshire through the year, with continuing referrals coming through.

Workshop Themes

EAST

• Multi-sports
• Golf, Brunch and Snooker
• Music and Dance
• Walking with a twist
• Gardening and Craft
• Outdoor games
• Katakanuing
• Reminiscence
• Tennis
• Ten Pin Bowling
• Jealotts Hill
• Turtle Song

WEST

• Horse riding
• Outdoor games
• Walking
• Art
• Reader group
• Green gym
• Cooking & theatre
• Skittles
• Snooker
• Badminton
• Furniture recycling
• Boccia
• Reminiscence
• Tennis
• Turtle song

Our service

“ The psychosocial interventions,” he said, “are really doing a lot better than drug taking for people with the behavioural and psychological symptoms of dementia, which people sometimes call BPSD.”

Brodaty, Scientia Professor of Ageing and Mental Health and Director of the Dementia Collaborative Research Centre and Co-Director of the Centre for Healthy Brain Ageing

Age and cognition scores of attendees

(n=30)

Outcome Measures

Diagnosis Current Age* Age at

• nset of

dementia sMMSE In October 2017 sMMSE In March 2018

Range 49-69 48 - 65 7 - 27 7 - 29 Average 63 60.0 20.6 21.1

Neuro Psychiatric Inventory (NPI) scores of attendees

Outcome Measures

NPI-Q March 2017 NPI-Q October 2017 NPI-Q March 2018 Caregiver Distress March 2017 Caregiver Distress October 2017 Caregiver Distress March 2018

Range 12 - 0 18 -0 25 - 1 20-0 21 -0 29 - 1 Average 5.6 4.8 5.6 8.3 7 6.5

Key Highlights

Moved offices! We introduced a compliance procedure for our policies and procedures to ensure these were appropriate, monitored and kept up to date. Article about the choir published in Journal of Dementia Care November/December 2017 An article on our sustainable model was included

• n the NHS England website.

Key Highlights

Funding from The Big Lottery for two years CCG funding for full-time model in east of Berkshire from April 2017 Carer Support Group goes from strength to strength Continue to be supported by poweredbypie as charity of choice Articles have appeared in Newbury Weekly News about Sainsbury’s adopting us as their charity of the year and about charity challenges for 2018.

Key Highlights

Admiral Nurse for the east for one year, working one day a week, then got funds for an Admiral Nurse 3 days/week (hosted by Berkshire Healthcare Foundation Trust). Appeared on Radio Berkshire and South Today to promote the role of the Admiral Nurse

Key Highlights

Children’s book and education toolkit (play in May 2017)

Key Highlights

An Art Therapy Project was held with children of those with young onset dementia to assist them in coping with this diagnosis in a parent.

Key Highlights

A Marketing Consultant was retained to assist us in building a sustainable model for the future. Presented at conferences Participated in the BBC Holding Back the Years programme

Behind the scenes

Our Volunteers

We currently have 17 volunteers (including our Trustees) What do they do? They assist on our workshops, undertake administrative support within the office, run fundraising stalls and events. They do amazing things: help with workshops, fundraise, give their time!

Our staff

Board of Trustees Charlie Draper Operations Manager Karen Ive Project Respite Worker (East Berkshire) Erin Locke Asst Project Respite Worker Debbie Lomas Asst Project Respite Worker Claire Watts Project Respite Worker (Berkshire West) Paula O'Connor Asst Project Respite Worker Sally Loseby Asst Project Respite Worker James Frecker Asst Project Respite Worker Jenny Vertigan Asst Project Respite Worker Phil Redrup Asst Project Respite Worker Caroline Blanchette Business Support Manager Julie Vernon Office Administrator

Our Trustees

Dr Jacqueline Hussey (Chair of Trustees) David Fisher Trustee Frances Stradling Trustee Kathy Taylor Trustee Peter Watson Trustee Alain Wilkes Trustee Nicholas Woodthorpe Trustee

50 100 150 200 250 300 350 2016 2017 2018 132 160 225 64 83 89

Analysis of Income 2016 To 2018 £000's

Grants Donations Other

50 100 150 200 250 300 350 2016 2017 2018 156 192 237 34 62 98

Analysis of Expenditure 2016 To 2018 £000's

Staff Costs Other Costs

50 100 150 200 250 300 350 2016 2017 2018 156 192 237 34 62 98

Analysis of Expenditure 2016 To 2018 £000's

Staff Costs Other Costs

10 20 30 40 50 60 70 80 90 100 2016 2017 2018 19 26 45 4 13 21 9 13 11 14 19

Analysis of Other Expenditure 2016 To 2018 £000's

Other Computer Costs Premises Charitable Activities

The future: Our thoughts!

5 year strategy Tailored Pathway Awareness, education and training Meeting changing needs: BAME communities, rarer dementia support groups Research Increased diagnosis and therefore referral rates Income generation

Our Trustees

Caroline Blanchette (Chair of Trustees) David Fisher Trustee Frances Stradling Trustee Kathy Taylor Deputy Chair Peter Watson Trustee Alain Wilkes Trustee Nicholas Woodthorpe Trustee Alison Richardson Treasurer Dr Buchi Reddy Trustee

New Structure

Board of Trustees Director Charlie Draper Project Lead (30 hours a month) Julie Vernon Office Manager Dr Jacqui Hussey Medical Director (30 hours a month) Karen Ive Service Delivery Manager Claire Watts Project Respite Manager Erin Locke Asst Project Respite Worker Debbie Lomas Asst Project Respite Worker Hayley Noades Asst Project Respite Worker Jenny Vertigan Asst Project Respite Worker Phil Redrup Asst Project Respite Worker Vacancy (full-time)

The future: Your thoughts!