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DIGITAL HEALTH > PUT TO A CITIZENS JURY PANEL
HIC 2018 SYDNEY @HISA_HIC #HIC18
31st JULY 2018 - 2PM
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and personal data? Introduction Our Theme: Assoc Prof Terry Hannan - - PowerPoint PPT Presentation
and personal data? Introduction Our Theme: Assoc Prof Terry Hannan - - PowerPoint PPT Presentation
DIGITAL HEALTH > PUT TO A CITIZENS JURY PANEL HIC 2018 SYDNEY @HISA_HIC #HIC18 31 st JULY 2018 - 2PM Who owns, or who do you want to own your health and personal data? Introduction Our Theme: Assoc Prof Terry Hannan Who owns, and who
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A Citizens Jury
- Representative forum of citizens
- Exploring a key priority topic
- Which has meaning and context
- By a facilitated discussion
- Provides an opportunity for us to listen
and contribute
- Has been used in policy making
- Also Participatory Action Research (PAR)
- Today – forms the basis of our discussion
and outcomes paper
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Why a Citizens Jury?
‘…despite the promised improvements with advances in technology, health care remains wasteful, inconsistent and opaque to those citizens that use and ultimately pay for it.’
- Australians receiving “appropriate” care- 57%
- Care delivered with NO benefits - 20-30%
- Annual wastage in annual health care
spending $45AUD billion
Professor Johanna Westbrook AIHI
https://www.mja.com.au/system/files/issues/197_02_160712/run10510_fm.pdf
Australia’s Health 2016-20: AIHW
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Why a Citizens Jury?
- It is about the patients who have been described as
“the most neglected part of the health care delivery system…” [Warner Slack, CCC Harvard, Cybermedicine]
- “Will be so seduced by the emerging technologies
that will forget about the patient(s).”
Francois Gremy 1989 UVIC, Canada
- “The patient may not seem well educated or very
bright to you, but what could be more unintelligent than what we are doing?”
Prof Lawrence Weed, 1989 UVIC, Canada
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Why a Citizens Jury?
After all:
- They are highly motivated, and if they are not,
nothing works in the long run anyway.
- They do not charge. They even pay to help.
- There is one for every member of the population.
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Our Discussion Today
- We are putting more and more
systems in place to assist the health system to connect and work better. Known these days as digital health.
- We can agree that enabling the
patient to manage their health and care is beneficial for all involved.
- Have we asked our citizens more broadly:
- Who owns, and who has the rights to use your patient data?
- And in what circumstance?
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Examples of Good Use of Data
- Protect and enhance public health
- Develop security and confidentiality algorithms
- Conduct research
- Create and maintain terminology and representation
formalisms
- Develop and apply decision support for health care
providers
- Support quality of patient care
- Improve patient safety
- Manage personal health
- Educate and credential healthcare providers
- Analyse and Manage Finances
- Detect fraud and illicit activity
- Identify markets and promote sales
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Our Prime Minister
My Health terms and conditions for insurance companies to request My Health Records for claimants, Turnbull said people had an obligation to make “full disclosure” when applying for insurance. “When you take out insurance you’ve got an obligation to deal in absolute good faith, and you have an obligation now under insurance law as it’s stood for centuries to make full disclosure. If you’re seeking life insurance, for example, you’ve got to answer questions honestly that they ask you about your health, and that’s why very often life insurance companies will have one of their own doctors give you a medical check-up.” Malcom Turnbull PM. 23 July 2018
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Welcome to Our Citizens Jury Panel
Dr Louise Schaper Facilitator @louise_schaper
- Arjan Kumar
- Sudershan Dhawan
- Nicci Passmores
- Alana Henderson
- Nikhil (Nik) Nimmagadda
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Discussion
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Questions and Answers
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Conclusions
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Thank you and Acknowledgements
Dr Robin Mann HIC 2018 Chair Prof Enrico Coiera Australian Institute for Health Innovation Kathleen Yin Australian Institute for Health Innovation The HISA Team
- Our Citizen Jury Panellists
- Contributors