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Alic lice Houk Senior Di Director of of Healt lth Professional - PowerPoint PPT Presentation

Alic lice Houk Senior Di Director of of Healt lth Professional l Programs an and Stephanie Hamm Boa oard of of Di Directors Apla lastic Anemia an and MDS In International Fou oundation www.aamds.org Mission Statement The Aplastic


  1. Alic lice Houk Senior Di Director of of Healt lth Professional l Programs an and Stephanie Hamm Boa oard of of Di Directors Apla lastic Anemia an and MDS In International Fou oundation www.aamds.org

  2. Mission Statement The Aplastic Anemia and MDS International Foundation is the world’s leading nonprofit health organization dedicated to supporting patient and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. The Foundation provides answers, support and hope to thousands of patients and their families around the world. We are a patient-focused, patient-centered organization, serving patients and families throughout the three phases of bone marrow failure diseases: • The life changing phase of diagnosis • The life threatening phase of treatment • The life long phase of living with a chronic disease

  3. Enunciazione della missione La Aplastic Anemia and MDS International Foundation è la più importante organizzazione modniale dedicata a sostenere I pazienti e le loro famiglie che vivono con anemia aplastica, sindromi mielodisplastiche, emoglobinuria parossistica notturna e altre malattaie simile con insufficineza midollare. La Foundazione fornisce risposte, sostegno e speranza a migliaia di di pazienti e alle loro famiglie nel mondo. Siamo un’organizzazione focalizzata e centrata sui pazienti che vuole essere di servizio ai pazienti e alle famiglie nelle tre fasi delle malattie da insufficienza midollare: : • La fase di diagnosi che ti cambia la vita • La pericolosa fase della terapia • La lunga fase di cronicizzazione della malattia

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