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A Family’s Experience with Harm in the Social Media Age
Emily Paterson
Nov 3, 2017 1
A Patient Advocate’s Perspective
epaterson001@gmail.com
Change Agents
Nov 3, 2017 2
A Familys Experience with Harm in the Social Media Age Emily - - PowerPoint PPT Presentation
A Familys Experience with Harm in the Social Media Age Emily - - PowerPoint PPT Presentation
A Familys Experience with Harm in the Social Media Age Emily Paterson A Patient Advocates Perspective epaterson001@gmail.com Nov 3, 2017 1 Change Agents Nov 3, 2017 2 May 24, 2014 Nov 3, 2017 3 Radioulnar synostosis 1st arm
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May 24, 2014
Nov 3, 2017 3
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Radioulnar synostosis
1st arm x-ray on 2/20/15 10 months after injury - 3rd medical facility
Nov 3, 2017 4
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Post traumatic radioulnar synostosis
- Symptoms- loss of arm rotation
- Rare fusion of radius and ulna in forearm
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Keyboarding
- 5° pronation
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May 24 2014 May 27-28 June 2 June-October October 2014 & February 2015
Potential Problems in 1st Facility Day 1- Evaluation & Diagnosis Day 3 Surgical Planning Day 4 Emergency Re-splinting Day 8 Surgery & Problems Cast Removed (24 days) & Physical Therapy (4 months) Specialist Consultations
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- Everyone lost trust in big medicine
- Peter (physical, emotional, adjustments, future)
- Dave (sleep, sadness, adjustments)
- Emily (physical, emotional, patient advocacy)
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The impact on family
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What helped most?
Honesty reduces doubts, guilt and improves physical & emotional states.
Everyone needs this!
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What helped most?
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- Patient reported questionnaires?
- School 504 physical disability plan & then what?
- State Medical Board?
- Medical Facility Patient Advocate?
- Court?
- Something else?
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What do we do for Peter and others?
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Social media patient advocacy
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Transparency, root cause analyses & help others!
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Pressure to change!
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May each of us work to make the 21st century better!
epaterson001@gmail.com