a family s experience with harm in the social media age
play

A Familys Experience with Harm in the Social Media Age Emily - PowerPoint PPT Presentation

A Familys Experience with Harm in the Social Media Age Emily Paterson A Patient Advocates Perspective epaterson001@gmail.com Nov 3, 2017 1 Change Agents Nov 3, 2017 2 May 24, 2014 Nov 3, 2017 3 Radioulnar synostosis 1st arm


  1. A Family’s Experience with Harm in the Social Media Age Emily Paterson A Patient Advocate’s Perspective epaterson001@gmail.com Nov 3, 2017 1

  2. Change Agents Nov 3, 2017 2

  3. May 24, 2014 Nov 3, 2017 3

  4. Radioulnar synostosis 1st arm x-ray on 2/20/15 10 months after injury - 3rd medical facility Nov 3, 2017 4

  5. Post traumatic radioulnar synostosis • Symptoms- loss of arm rotation • Rare fusion of radius and ulna in forearm -5° pronation Keyboarding 5 Nov 3, 2017

  6. Day 1- Evaluation & Diagnosis May 24 2014 Day 3 Surgical Planning May 27-28 Day 4 Emergency Re-splinting Potential Problems in 1 st Facility June 2 Day 8 Surgery & Problems Cast Removed (24 days) & June-October Physical Therapy (4 months) October 2014 & February 2015 Specialist Consultations Nov 3, 2017 6

  7. The impact on family • Everyone lost trust in big medicine • Peter (physical, emotional, adjustments, future) • Dave (sleep, sadness, adjustments) • Emily (physical, emotional, patient advocacy) Nov 3, 2017 7

  8. What helped most? What helped most? Honesty reduces doubts, guilt and improves physical & emotional states. Everyone needs this ! Nov 3, 2017 8

  9. What do we do for Peter and others? • Patient reported questionnaires? • School 504 physical disability plan & then what? • State Medical Board? • Medical Facility Patient Advocate? • Court? • Something else? Nov 3, 2017 9

  10. Social media patient advocacy Transparency, root cause analyses & help others! Nov 3, 2017 10

  11. Pressure to change! . May each of us work to make the 21 st century better ! epaterson001@gmail.com Nov 3, 2017 12

Download Presentation
Download Policy: The content available on the website is offered to you 'AS IS' for your personal information and use only. It cannot be commercialized, licensed, or distributed on other websites without prior consent from the author. To download a presentation, simply click this link. If you encounter any difficulties during the download process, it's possible that the publisher has removed the file from their server.

Recommend


More recommend