8/19/2018 1 8/19/2018 Agenda 8:30 AM - 9:30 AM Registration / - - PDF document

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8/19/2018 1 8/19/2018 Agenda 8:30 AM - 9:30 AM Registration / - - PDF document

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8/19/2018 1 8/19/2018 Agenda 8:30 AM - 9:30 AM Registration / Breakfast / Exhibits 9:00 AM Welcome & Introductions Paige Humble, MBA Executive Director Lung Cancer Initiative of NC 9:30 AM Lung Cancer Treatment Updates Edward S.

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8/19/2018 2 8:30 AM - 9:30 AM Registration / Breakfast / Exhibits 9:00 AM Welcome & Introductions Paige Humble, MBA Executive Director Lung Cancer Initiative of NC 9:30 AM Lung Cancer Treatment Updates Edward S. Kim, MD, FACP Levine Cancer Institute 10:15 AM Break / Exhibits 10:30 AM Lung Cancer Screening

  • Overview - Scott Skibo, MD Haywood Regional Medical Center
  • Access Grant Update - Maria K. Long, MS, RD, LDN, Prevention and Early

Detection, Manger Novant Health Cancer Care, Presbyterian Medial Center

  • Atrium Health Lung Cancer Mobile Screening - Darcy Doege, RN, Program

Coordinator of the Lung B.A.S.E.S. 4 Life Program, Levine Cancer Institute 11:45 AM Lunch / Exhibits / Tour Mobile Screening Unit

Agenda

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8/19/2018 3 12:45 PM Breakout Sessions

  • Survivor Breakout - Cheryl Lecroy, Wind River Cancer Wellness Retreats &

Programs

  • The Unsung Hero: The Oncology Caregiver -
  • Tomma Hargraves, Patient Lay Navigator, UNC Cancer Hospital
  • Graham Self, Caregiver
  • Elatt Spiller, Reimbursement Specialist, McKesson

1:30 PM Break / Exhibits 1:45 PM Mind, Body & Spirit Refresh Cheryl Lecroy Wind River Cancer Wellness Retreats & Programs 2:00 PM Translating Your Experience into Action Adam Taliaferro, Esq. State Advocacy & Alliance Development, Bristol-Myers Squibb 2:30 PM How You Can Make a Difference: Ways to Get Involved Jenni Danai, MPH, Director of Programs, Lung Cancer Initiative

Agenda

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Thank you to our sponsors!

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Lung Cancer Initiative Update

Build Hope. Take Action. End Lung Cancer.

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Mission

Save lives and provide support to those affected by lung cancer through research, awareness, education and access programs across North Carolina

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Organizational Vision Our vision is to improve life for those affected by lung cancer Three-Year Strategic Vision To reach and impact every county in the state of NC by 2019

Vision

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Who We Are

  • 501(c)(3)
  • State’s leading non-profit organization supporting

lung cancer research and education

  • Specializing in connecting patients, survivors and

loved ones with the medical and research community

  • Dedicated to increasing lung cancer awareness and

research funding

  • Responsible stewards: In 2017, 78% spent on

research, education, awareness and access

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Paige Humble Executive Director

Our Staff

Lynne Hicks Director of Finance Sandy Oehler Manager of Development & Special Events Jenni Danai Director of Programs Courtney Freeman Programs Coordinator Megan Snowdowne Manager of Marketing Michelle McLean Operations Administrator

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Our Board of Directors

Amy Cipau, MBA, President Advocate Jennifer Garst, MD, Board Chairman Duke Cancer Institute at Duke Raleigh Cancer Center Jeremy Holden, Advocate Chief Strategy Officer, Clean Design Liz Hynson, Advocate Edward S. Kim, MD Levine Cancer Institute Carolinas Healthcare System Hiren Mehta, MD UNC REX Pulmonary Specialists Justin Brian Nicholson, Survivor Sterling Capital Emily Parks, Advocate Organize for Success, LLC Jared Weiss, MD UNC Lineberger Comprehensive Cancer Center Shirley Sulick, Survivor Jim Sheegog, Advocate Rowhill Consulting Group Chris Rallis, JD Pappas Ventures Chad Pecot, MD UNC Lineberger Comprehensive Cancer Center

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Jeff Petty, MD, Committee Chair

Wake Forest Baptist Comprehensive Cancer Center

Jennifer Garst, MD

Duke Cancer Institute at Duke Raleigh Cancer Center

Jared Weiss, MD

UNC Lineberger Comprehensive Cancer Center

Ed Kim, MD

Levine Cancer Institute

Paul Walker, MD

Brody School of Medicine at East Carolina University

Amy Cipau, MBA

Founder and President, LCI

Patti Pozella, PhD

Pursuit-Solutions

Liling Warren, PhD

OmicSoft Corporation and Acclarogen

Chad Pecot, MD

UNC Lineberger Comprehensive Cancer Center

Kathryn Mileham, MD

Levine Cancer Institute

Jimmy Ruiz, MD

Wake Forest Baptist Comprehensive Cancer Center

Neal Ready, MD

Duke Cancer Institute

Mark Bowling, MD

Brody School of Medicine at East Carolina University

Scientific Advisory Committee

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2009

  • Hired first employee and opened office.

2010

  • Hired second employee.

2012

  • Held first Charlotte 5K.
  • Held first NC Lung Cancer Advocacy Summit.

2013 Lung Cancer Initiative

  • Disaffiliated from Free to Breathe and gained independent 501(c)(3)

status, rebranding as Lung Cancer Initiative

  • Funded $500,000 toward lung cancer research cumulatively.
  • Launched the Access to Care gas card program.

Our History

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Our History

2014

  • Held first Expert Speakers Series.

2015

  • Established Research Fellows Program for funding fellows at teaching

hospitals throughout the state. 2016

  • Funded more than $1 million in lung cancer research in NC,

cumulatively.

  • Began research partnership with The V Foundation for Cancer Research.
  • Began to fund local access grants at community hospitals to improve

patient access to care. 2017

  • Employing 5 full-time employees
  • Launched Development and Marketing Committees.
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Celebrating

10 Years

as a 501c3

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Lung Cancer: A Snapshot

American Cancer Society. Cancer Facts and Figures 2017. Atlanta: American Cancer Society; 2017.

99% 90% 18%

0% 20% 40% 60% 80% 100%

Prostate Cancer Breast Cancer Lung Cancer

Five-Year Survival Rates

Prostate Cancer Breast Cancer Lung Cancer

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US Cancer Deaths vs. Federal Funding

Source: https://report.nih.gov/categorical_spending.aspx

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Not Just For Smokers!

20-25,000 people in the U.S. get lung cancer each year, despite never smoking. Those who have quit smoking remain at risk.

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Faces of Lung Cancer

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  • Research
  • Awareness
  • Education
  • Access

What We Do

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Research: Fueling Medical Discovery

Our support has jump-started the careers of researchers who have gone on to receive further funding from the National Institute of Health, Department of Defense and the American Cancer Society

The amount secured in lung cancer research for North Carolina in 2018. The number of researchers being funded at five leading cancer centers across the state. The total amount we have raised in lung cancer research since 2008.

$275,000

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$1.6 Million

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2018-19 Research Fellows

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V Foundation, Co-Funded Research

Qingyi Wei, MD, PhD Duke Cancer Institute Edward Kim, MD Levine Cancer Institute

Co-funded $400,000 with The V Foundation for Cancer Research

  • Projects that recognize and address the disparities in

cancer incidence and death rates in African-Americans, as compared to all other ethnic groups

  • Research presentation in November
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We are committed to increasing public awareness about lung cancer, through:

  • Events
  • Education & Outreach Initiatives
  • And other grassroots opportunities

Education & Awareness

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Education: Changing the Conversation

The number of providers and

  • ncologists educated

around the state The number of free patient education materials given out around the state in 2016. The number of people educated at

  • ur 2016 Expert

Speaker Series with six cancer centers.

3,000+ 1,600 + 200+

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Access: Easing the Burden

Number of $50 gas cards given in 2017 to patients in 78 counties. Amount funded in Access Grants in 2017.

356 $25,000

“Thank you for the gas card. I appreciate it more than words can say. I will be traveling 60 miles one way for at least six weeks, five days a week and this will help tremendously.” --2017 gas card recipient

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Access Grants

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Education: Changing the Conversation

The number of providers and

  • ncologists educated

through ASCO Update dinners. The number of online pledges to date for Screen Together. The number of people educated at

  • ur 2017 Expert

Speaker Series with six cancer centers.

60 243 183

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  • Expert Speaker Series

– Allows for patients and their families to come together to hear from experts on topics related to lung cancer and research

  • HCP Education

– Provides educational opportunities for health care providers throughout North Carolina in order to improve diagnosis, referral and treatment

  • Materials Distribution

– Distributes free print and online materials to patients and physician offices

  • Advocate Speakers Program

– Free lung cancer educational sessions to businesses and civic groups to increase wellness

  • Health Fairs/ Community Tables

– Builds lung cancer awareness within local communities and businesses

Education

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Our Goal: More Survivors!

Survivors in 2017 & 2018!

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Lung Cancer Hope

There is hope!

Research has brought about improvements in screening and treatments for other cancers that have led to longer and better lives for patients. We need to do the same for lung cancer!

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We have opportunities that allow you to bring your strengths to benefit our organization and those we serve…

We Need You!

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How You Can Help

  • Become a sponsor
  • Create a Corporate Team
  • Participate in an event
  • Make an in-kind tax deductible contribution
  • Matching Gift Program
  • Distribute educational materials
  • Host a fundraiser
  • Volunteer at an event
  • Join a planning team
  • Publicity/Media Assistance
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Greensboro LUNGe Forward 5K, Run, Walk & Rally Saturday, November 10, 2018

Center City Park, Greensboro, NC Triad.LUNGeForward.org

Raleigh LUNGe Forward 5K, Run, Walk & Rally Sunday, September 23, 2018

Midtown at North Hills, Raleigh Raleigh.LUNGeForward.org

Charlotte LUNGe Forward 5K, Run, Walk & Rally Saturday, March 30, 2019

McAlpine Park, Charlotte, NC Charlotte.LUNGeForward.org

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Together, there is always something we can do.

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Who is here?

12

Survivors

15

Cities

4

States

61

Participants

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Build a Movement!

Why?

  • Too many affected cannot speak for themselves
  • We cannot make progress without research,

education and awareness about this disease We need EVERYONE advocating for more research dollars and researchers in the field

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  • We cannot do it without you!
  • There is strength in numbers!
  • This has worked for other diseases!
  • This is the first step…

Why are we here?

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If you’re waiting for someone else to do something about lung cancer ... don’t hold your breath!

Why are we here?

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If not us, WHO? If not now, WHEN?

Why are we here?

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Lung Cancer Initiative Summit:

  • Attend all sessions
  • Listen effectively
  • Contribute – your questions, ideas,

perspective

  • Respect others who may have different

viewpoints from your own

What we expect of you

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