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Why Is This So Complicated? Understanding Ryan White and Managing Your Awards Carol M Smith, MA Fiscal and Administrative Director, Southeast AIDS Education and Training Center Sr. Program Manager, Vanderbilt Comprehensive Care Clinic


  1. Why Is This So Complicated? Understanding Ryan White and Managing Your Awards Carol M Smith, MA Fiscal and Administrative Director, Southeast AIDS Education and Training Center Sr. Program Manager, Vanderbilt Comprehensive Care Clinic

  2. Objectives At the end of this webcast, attendees will be able to  Define the difference between Prevalence- and Diagnosis- based care continuums  Compare viral suppression rates between Ryan White and non-Ryan White clients  Recognize and explain the various Ryan White Parts  Describe NOFOs, NoAs, and PCNs  Identify key online resources to help manage grants, budgets, and reporting 2

  3. Question 1  When was the Ryan White HIV/AIDS legislation first enacted?  1987  1990  1991  1994 3

  4. Question 1 – Answer  When was the Ryan White HIV/AIDS legislation first enacted?  1987  1990  1991  1994 4

  5. HIV Disease in the US  First cases of HIV/AIDS reported in US in 1981.  More than 700,000 people with HIV Disease have died since the beginning of the epidemic.  Antiretroviral therapy (ART) has substantially reduced AIDS- related mortality  Research has shown that those on ART with undetectable viral loads have effectively no risk of sexually transmitting HIV. Source: Kaiser Family Foundation, The HIV/ADIS Epidemic in the United States: The Basics, December 2017. 5

  6. HIV Disease in the US  Estimated number of new infections annually – 37,600  New infections have decreased 17.7% since 2008  Approximately 1.1 million people living with HIV  Percent of people who are virally suppressed – 49% (per prevalence-based HIV care continuum) Source: Kaiser Family Foundation, The HIV/ADIS Epidemic in the United States: The Basics, December 2017. 6

  7. HIV Care Continuums Prevalence-Based (%) Diagnosis-Based (%) 100 100 85.0 80 80 72.5 62.0 57.9 60 56.9 49.0 60 48.0 40 40 20 20 0 0 Diagnosed Receipt of Retained in Viral Care Care Suppression Receipt of Care Retained in Care Viral Suppression Source: Centers for Disease Control and Prevention, Understanding the HIV Care Continuum, July 2017. 7

  8. Viral Suppression Ryan White Clients 2010 & 2016 Source: Office of Disease Prevention and Health Promotion, HP2020 Progress Report Webinar on STDs and HIV, August 2017. 8

  9. The Ryan White Program makes a big difference in the lives of PLWH and reduces community viral load. 9

  10. Who Was Ryan White Ryan White was 13 years old when he was diagnosed with AIDS following a blood transfusion in December 1984. At the time he was given six months to live. When he tried to return to school, he fought AIDS- related discrimination in his Indiana community. Along with his mother Jeanne White Ginder, Ryan White rallied for his right to attend school - gaining national attention - and became the face of public education about his disease. Surprising his doctors, Ryan White lived five years longer than predicted. He died in April 1990, one month before his high school graduation and only months before Congress passed the legislation bearing his name in August 1990. 10

  11. Overview of the Ryan White Program  Largest federal program designed specifically for PLWH  Serves over half of all those diagnosed  Safety net for PLWH who are uninsured, underinsured  Is 3 rd largest source of federal funding for HIV care in the US, following Medicare and Medicaid. 11

  12. Overview of Ryan White Clients  550,462 clients served by RW program in 2016  63% of clients had incomes at or below the federal poverty level ($11,880 for a single person in 2017) and an additional 28% had incomes between 101% and 250%.  71.4% male, 27.3% female, 1.3% transgender  47% Black/African American, 27% white, 23% Hispanic  14% of clients were in either temporary or unstable housing Source: Ryan White Annual Client Level Data Report, 2016. 12

  13. Ryan White Legislation  First enacted in 1990  Reauthorized by Congress in 1996, 2000, 2006, and 2009 – revised somewhat each time  Current authorization lapsed in 2013 but program has continued to be funded through annual appropriations process  No “sunset” provision or end date attached to legislation 13

  14. The Ryan White Parts  There are 5 Ryan White Parts labeled  Part A  Part B  Part C  Part D  Part F  There is no Part E 14

  15. Ryan White Part A  Part A – Metropolitan areas  Eligible Metropolitan Areas (EMAs)  Transitional Grant Areas (TGAs) 15

  16. Ryan White Part B  Part B – States, Washington, DC, and territories  Part B AIDS Drug Assistance Program (ADAP) and ADAP Supplemental 16

  17. Ryan White Part C  Part C – Early Intervention Services, Capacity Development, and Planning Grants 17

  18. Ryan White Part D  Part D – Women, Infants, Children, and Youth 18

  19. Ryan White Part F  Part F  AIDS Education and Training Centers (AETCs)  Dental Reimbursement and Community-based Dental Partnership Program  Minority AIDS Initiative (MAI)  Special Projects of National Significance (SPNS) 19

  20. Question 2  Funding for the Ryan White program between 2013 and 2017 has  Increased by 10%  Decreased by 10%  Stayed pretty much the same 20

  21. Question 2 – Answer  Funding for the Ryan White program between 2013 and 2017 has  Increased by 10%  Decreased by 10%  Stayed pretty much the same 21

  22. Overview of Ryan White Funding  Funding in FY 2016 was approximately $2.3 billion  Part B – 57% of funds in FY 2015 - provided to states and territories  Part A – 29% in FY 2015 - cities/metropolitan areas  Parts C, D, and F – 14% in FY 2015 – awarded to providers, community-based and other organizations Source: Kaiser Family Foundation, Ryan White HIV/AIDS Program: The Basics, February 2017. 22

  23. Notice of Funding Opportunity  Funding opportunities are listed on grants.gov and on HRSA’s website – hab.hrsa.gov  NOFOs provide detail on how to complete a competitive grant application but also provide important information about the program, the RW legislation, and the Uniform Guidance  NOFOs also tell you how competitive applications will be scored. 23

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  26. Notice of Award  Provided by HRSA when you have received award  Includes awarded budget  Grant specific and program specific terms and requirements; reporting requirements  Contact information for program and grants management queries  Think of this as your contract with HRSA/HAB 26

  27. 27

  28. hab.hrsa.gov 28

  29. To learn about:  Who Ryan White was  The RW program and its component parts  The legislation  Funding  The HIV/AIDS Bureau  Fact Sheets 29

  30. To learn about:  Policy Notices and Program Letters  Recipient Resources  Data Reporting & TA  CAREWare  Bureau contacts and funding by Ryan White Part 30

  31. Policy Clarification Notices  https://hab.hrsa.gov/program-grants-management/policy- notices-and-program-letters  Provide additional information to award recipients to help them understand legislative requirements  This is also the site for program letters, typically formal communication from Laura Cheever, Associate Administrator, HIV/AIDS Bureau (HAB) 31

  32. Policy Clarification Notices Policy Notices Implemented in 2016  16-02 Ryan White HIV/AIDS Program Services: Eligible Individuals and Allowable Uses of Funds (Effective for awards made on or after 10/1/16)  Housing Services Frequently Asked Questions for Policy Clarification Notice 16-02  Standalone Dental Insurance Frequently Asked Questions for Policy Clarification Notice 16-02  Frequently Asked Questions for Policy Clarification Notice 16-02  16-01 Clarification of the Ryan White HIV/AIDS Program (RWHAP) Policy on Services Provided to Veterans (PDF - 44 KB) 32

  33. Policy Clarification Notices Policy Notices Implemented in 2015  15-04 Utilization and Reporting of Pharmaceutical Rebates  FAQs for PCNs 15-03 and 15-04  15-03 Clarifications Regarding the Ryan White HIV/AIDS Program and Program Income  15-02 Clinical Quality Management Policy Clarification Notice  FAQs for PCN 15-02  15-01 Treatment of Costs under the 10% Administrative Cap for Ryan White HIV/AIDS Program Part A, B, C, and D  FAQs for PCN 15-01 33

  34. hrsa.gov/grants/ 34

  35. In addition to TA calls and webinars, find  Policies  Financial Management  Uniform Guidance  Progress Reports  Property  Award Management Tutorial 35

  36. Grant FAQs and Tip Sheet FAQs regarding Tip Sheet  Guide for Effective Financial  NOA, Performance and Management Practices Progress Reports  Specific tips to ensure  Prior Approval Request recipients spend federal  FFRs submitted, funds appropriately and do revisions not have unallowable costs.  Scoring applications 36

  37. HRSA Top 5 Audit Findings (2016) # 1 – Reporting # 2 – Program income # 3 – Cash management # 4 – Allowable costs / cost principles # 5 – Special tests and provisions 37

  38. Electronic Handbook (EHB)  All reports such as RSR, Allocation, Expenditure, FFR  Non-competing Continuations and Progress Reports  Prior Approval and Other Requests  https://help.hrsa.gov/display/public/EHBSKBFG/Index - link to the EHB Knowledge Base – contains information, FAQs, and interactive videos 38

  39. Target Center careacttarget.org 39

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