What Happened to me Neuromyelitis Optica happened to me that's - - PowerPoint PPT Presentation

what happened to me neuromyelitis optica happened to me
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What Happened to me Neuromyelitis Optica happened to me that's - - PowerPoint PPT Presentation

Irene Wilson - Group Leader UK Mastocytosis Charity What Happened to me Neuromyelitis Optica happened to me that's what! Diagnosed Edinburgh January 2013 Aguaporin 4 antibody positive 6 lots of Plasma Exchange now on Azathioprine


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Irene Wilson - Group Leader

UK Mastocytosis Charity

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What Happened to me

Neuromyelitis Optica happened to me – that's what! Diagnosed Edinburgh January 2013 Aguaporin 4 antibody positive 6 lots of Plasma Exchange now on Azathioprine Complications of Neuromyelitis Optica Complete collapse of T4 and severe anterior subluxation (grade 111/1V) of T3 on T5 with severe stenosis cord compression and myelopathy

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January 2013 Paralysed from chest down legs and feet double in size and covered in lesions

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6 lots of Plasma Exchange

Four Months in Hospital

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Eighteen months on Still undergoing intense physiotherapy Still motor problems Bladder and bowel remain paralysed No relapse Still on Azathioprine