WEBINAR-FEBRUARY 23, 2016 https://www.navigatelifetexas.org A - - PowerPoint PPT Presentation

▶
webinar february 23 2016
SMART_READER_LITE
LIVE PREVIEW

WEBINAR-FEBRUARY 23, 2016 https://www.navigatelifetexas.org A - - PowerPoint PPT Presentation

Dec 22, 2023 269 likes •664 views

WEBINAR-FEBRUARY 23, 2016 https://www.navigatelifetexas.org A Website to Inform and Empower Families of Children with Disabilities and Special Health Care Needs Today s Presentation 1 Website History/ Research 2 Content and Features

slide-1
SLIDE 1

WEBINAR-FEBRUARY 23, 2016

https://www.navigatelifetexas.org

slide-2
SLIDE 2

A Website to Inform and Empower Families

  • f Children with

Disabilities and Special Health Care Needs

slide-3
SLIDE 3

Today’s Presentation

Website History/ Research

1

Brainstorming How to Use

3

Content and Features

2

slide-4
SLIDE 4

History and Research

  • The Interagency Task Force for Children with Special

Needs

  • Supported by Texas Health and Human Services Commission
  • 5 Year Strategic Plan
  • Formative Research:
  • 131 parent focus groups & interview participants
  • 9 focus groups with professionals
  • Validated Need for Website
slide-5
SLIDE 5

What Social Workers and Case Managers Felt

slide-6
SLIDE 6

What Social Workers and Case Managers Heard

Recurrent Questions from Parents They don’t know where to go, and they just have a lot of unanswered questions, like, “Where do I go? What do I do? What did I do wrong?” I think that some people either don’t know what to ask for, or they just legitimately are so

  • verwhelmed they don’t know what they

need.

slide-7
SLIDE 7

Needs Discovered

Needed Website Content Child Care Resources Recreation Dental Care Respite Durable Medical Equipment Sexuality/Adolescents Guardianship Self- Care Health Care Resources Transition to Adulthood Home Modifications Transportation Medicaid Services, Waivers, and Eligibility Talking to Doctor
slide-8
SLIDE 8

Key Findings from Parents

  • Do not know where to

turn

  • Isolated
  • Want local resources
  • Don’t know which

questions to ask

slide-9
SLIDE 9

Goal:

Create website offering simple, easy-to-understand, friendly but realistic way to help parents navigate the world of disability and special health-care needs information

slide-10
SLIDE 10

Delivered

slide-11
SLIDE 11

Parent Field Test

I wish I had this 5 years ago when we were starting out

“ “

slide-12
SLIDE 12

Top Features

  • Research-based, original content
  • Resources: Local, Regional & Statewide, Online
  • Written and reviewed by Texas parents of kids with

disabilities

  • Organized Sections
  • Landing Pages
  • FAQs
slide-13
SLIDE 13

Top Features

  • Easy navigation
  • Responsive web design – desktop, mobile, and

tablet accessible

  • Original photography of Texas children and families
slide-14
SLIDE 14

Accessible on Mobile and Tablet

slide-15
SLIDE 15

What to do if you Suspect Video

  • What did you think of the video?
  • How do you see yourself using the video in your work

with families?

  • How do you think families will react to this video?
slide-16
SLIDE 16

Navigation & A Look at Some Content

slide-17
SLIDE 17

Diagnosis Section

  • Diagnosis & Healthcare FAQ
  • Diagnosis A-Z List
  • Children with Multiple Disabilities, Rare Conditions or are Undiagnosed
  • What to Do If You Suspect Something Is Different
  • My Child Has a Diagnosis. Where Do I Start?
  • What is the Early Childhood Intervention (ECI) Program?
  • Mental and Behavioral Health
  • Brain Injury
  • How To Talk To Your Doctor
  • Medical Home
  • Health-Care Specialty and Therapy Options
  • Medical Equipment and Supplies
  • Dental Care
  • Organizing Medical Records
  • Electronic Health Record
slide-18
SLIDE 18

Insurance and Financial Help

  • Insurance & Financial Help FAQ
  • Insurance and Health-Care Benefits
  • Medicaid
  • Health Insurance Premium Payment (HIPP)
  • Medicare
  • Supplemental Security Income (SSI)
  • Social Security Disability Insurance (SSDI)
  • Appealing a Health Insurance Decision
  • Waivers
  • Funding and Grants
  • Financial Help
slide-19
SLIDE 19

Family Support

  • Family Support FAQ
  • Connecting With Other Parents
  • Navigating Daily Life
  • Teenagers
  • Siblings
  • Modifying Your Home
  • Assistive Devices and Adaptive Equipment
  • Legal Tools
  • Emergency Preparedness
  • Military Families
  • Juvenile Justice System
  • Risky Behavior
slide-20
SLIDE 20

Education and Schools

 Education & Schools FAQ  Special Education 101  Kinds of Educational Placements  Admission, Review, and Dismissal (ARD) Process  Your Child’s Individualized Education Program (IEP)  Section 504  Learning Disabilities  School Choices for Children with Disabilities  Bullying  Transitioning Between Schools  After School Activities  Transitioning Out of Public Education  Preschool Program for Children with Disabilities (PPCD)  Your Child’s Right to a Public Education  Organizing School Records
slide-21
SLIDE 21

Transition to Adulthood

Transition to Adulthood FAQ

Planning for Transition

Funding and Services

Medical Transition

Education After High School

Careers

Housing

Legal Options for Age 18 and Beyond

Personal Stories

slide-22
SLIDE 22

LET’S LOOK AROUND A LITTLE MORE

https://www.navigatelifetexas.org

slide-23
SLIDE 23

Spanish

slide-24
SLIDE 24

Videos

slide-25
SLIDE 25

Personal Articles

slide-26
SLIDE 26

Search Function

slide-27
SLIDE 27

County/Zip Look Up

slide-28
SLIDE 28

County/Zip Look Up

slide-29
SLIDE 29

Regional Look Up

slide-30
SLIDE 30

Suggesting a Resource

  • The link to suggest a resource is found on a search

results page.

  • For example, If you want to see if a support group

you host is listed for the Dallas area. Search for “support” in a “Find Parent Groups” search.

  • If you don’t find your group click on the “Suggest a

Parent Group” link at the bottom of the search results page and fill out the form

slide-31
SLIDE 31

Dads Video

  • What did you learn from hearing the 3 Dads talk

about their experiences and advice to other Dads?

  • Do you think you will use this video in your work?
slide-32
SLIDE 32

Ideas : How to use the website with families

  • Show families the videos – good to see other families

expressing themselves about their journey

  • Review pages with families: ECI, Family Support,

FAQ & Connecting with other parents

  • Learn about topics yourself
  • Look for resources for a family – parent groups
slide-33
SLIDE 33

You can Order Wallet Cards

slide-34
SLIDE 34

Use the Contact Link to Order

slide-35
SLIDE 35

Fill Out the Contact Form

slide-36
SLIDE 36

Coming Soon-Forums

slide-37
SLIDE 37

Questions?

slide-38
SLIDE 38

Comments from Participants

  • Presenters Contact Information:
  • Laura Warren

laura@txp2p.org

  • Mary Jo Miller

maryjo.miller@txp2p.org