Vo lunte e r Na vig a to rs Co nne c ting , Ac c e ssing , Re so - PowerPoint PPT Presentation

Vo lunte e r Na vig a to rs Co nne c ting , Ac c e ssing , Re so urc ing a nd E ng a g ing (Na v-CARE ): Ma king a Diffe re nc e in the L ive s o f Olde r Pe rso ns with Chro nic I llne ss a nd T he ir Co mmunitie s We nd y Dug g le b y, PhD, RN Re se a rc h Cha ir in Ag ing a nd Qua lity o f L ife Unive rsity o f Alb e rta Se pte mb e r 26, T hursda y, 2019

T he g o a l o f Na v-CARE is to impro ve the q ua lity o f life o f o lde r pe rso ns living a t ho me with illne ss b y pro viding spe c ia lly tra ine d vo lunte e rs to c re a te c o nne c tio ns to c o mmunity a nd re so urc e s. 2

Ac kno wle dg me nts T hank yo u to o ur funde rs: 3

Ac kno wle dg me nts T hank yo u to o ur inve stig ative te am: Ba rb a ra Pe sut, UBC Oka na g a n Che ryl Ne ko la ic huk, Unive rsity o f Alb e rta We ndy Dug g le b y, Unive rsity o f Alb e rta Ca ro line Nic ho lso n, K ing ’ s Co lle g e L o ndo n Gra c e Wa rne r, Da lho usie Unive rsity Ro b in Urq uha rt, Da lho usie Unive rsity Ga il Wide ma n, Me mo ria l Unive rsity L a ura Co ttre ll, Unive rsity o f Alb e rta K o nra d F a ssb e nde r, Unive rsity o f Alb e rta K e lli Sulliva n, UBC Oka na g a n Ca ro le Ro b inso n, UBC Oka na g a n Ma de le ine Gre ig , UBC Oka na g a n Me g a n Sta g e r, UBC Oka na g a n Bria n O’ Co nno r, UBC Oka na g a n Sunita Gho sh, Unive rsity o f Alb e rta E mily K e rvin, Da lho usie Unive rsity Ja yna Ho lro yd-L e duc , Unive rsity o f Ca lg a ry Britta ny E llio tt, Unive rsity o f Alb e rta Mira nda F a lk, UBC Oka na g a n Pa xto n Bruc e , UBC Oka na g a n 4

Ac kno wle dg me nts T hank yo u to o ur kno wle dg e partne rs: Bre nda Ho o pe r, Nurse Na vig a to r Pa llium Ca na da I nte rio r He a lth, BC Gre a te r T ra il Ho spic e So c ie ty No rthe rn He a lth, BC Ca stle g a rHo spic e So c ie ty BC Ho spic e Pa llia tive Ca re Asso c ia tio n Ne lso n a nd Distric t Ho spic e So c ie ty Alb e rta Ho spic e Pa llia tive Ca re Asso c ia tio n No rth Oka na g a n Ho spic e So c ie ty BC Ca nc e r Ag e nc y Bulkle y Va lle y Ho spic e So c ie ty Cra nb ro o k K imb e rly Ho spic e So c ie ty Alb e rta He a lth Se rvic e s Co ve na nt He a lth De se rt Va lle y Ho spic e So c ie ty No va Sc o tia Ho spic e Pa llia tive Ca re Ce ntra l Oka na g a n Ho spic e So c ie ty Asso c ia tio n Old s a nd Distric t Ho spic e So c ie ty No va Sc o tia He a lth Re g io n Ca mro se a nd K illa m Ho spic e So c ie ty Ca na dia n Ho spic e Pa llia tive Ca re Asso c ia tio n 5

Ac kno wle dg me nts T hank yo u to o ur kno wle dg e partne rs: Co lc he ste r E a st Ha nts Ho spic e So c ie ty, Mc Na lly Ho use Ho spic e , Grimsb y ON T ruro NS Ho spic e Nia g a ra , St. Ca tha rine s ON Shuswa p Ho spic e So c ie ty, Sa lmo n Arm BC Ste dma n Ho spic e , Bra ntfo rd ON Ab b o tsfo rd Ho spic e So c ie ty Dr. Aa ro n Mc K im, Po rtug a l Co ve NF L Chilliwa c k Ho spic e So c ie ty K a le in Ce ntre , Ne lso n BC Missio n Ho spic e So c ie ty Co mo x Va lle y Ho spic e So c ie ty Vic to ria Ho spic e K e rb y Ce ntre , Ca lg a ry AB Vulc a n & Re g io n F CSS Dr. T o m Wa rd, Vic to ria BC Pra irie Ho spic e So c ie ty, Sa ska to o n SK 6

Se nio rs L iving a t Ho me with I llne ss  L a c k o f e a rly suppo rtive c a re . Did yo u kno w? One in five seniors report that they  L a c k o f kno wle dg e o f re so urc e s. experience emotional distress  L o ne line ss a nd iso la tio n. and have difficulty coping day-to-day.*  Multiple c o mple x de c isio ns.  He a vy sympto m b urde n. Loneliness and social isolation are significant predictors of healthcare utilization *Canadian Institute for Health analysis based on Commonwealth Fund 2016 survey of seniors in 11 countries. 7

The Nav-CARE Program Nav igation : C onnecting A ccessing R esourcing E ngaging

T he Sto ry o f Na v-CARE Dr . Bar bar a Pe sut Unive rsity o f British Co lumb ia , Oka na g a n c a mpus Dr . We ndy Duggle by Unive rsity o f Alb e rta www.na v-c a re .c a Na v-CARE is a re g iste re d inno va tio n a t T he Unive rsity o f British Co lumb ia a nd T he Unive rsity o f Alb e rta 9

Building the E vide nc e : T he T we lve Ye ar Jo urne y 2017- 2020: Sc a le o ut to b uild e vide nc e 2016- 2019: K no wle dg e T ra nsla tio n studie s 2015- 2016: Curric ulum De ve lo pme nt 2010- 2014 T ria l o f Nurse Na vig a to r Pilo ts o f nurse / Co mpe te nc y vo lunte e r na vig a tio n 2008- 2011: de ve lo pme nt pa rtne rships F o c us g ro ups E thno g ra phy o f rura l pa llia tive c a re 10

Nav- Car e Site

Be fo re he c ame into my life I was just sle e ping all the time and no t do ing anything . I wo uld c anc e l my do c to rs appo intme nts, just no t g o . And he made me se e that the do c to rs appo intme nts we re impo rtant. And to b e ho ne st with the do c to rs and no t to b e afraid to ask fo r he lp (Clie nt). E va lua tio n Nav-CARE is fo c use d o n living – living the b e st yo u c an with whate ve r yo u’ ve g o t e ac h day o f the ye ar. T hat has b e e n a re al b o nus fo r me fro m this re se arc h. I t has le d to o the r c o nne c tio ns. (Clie nt) 12

E sse ntia l Cha ra c te ristic s fo r Suc c e ss  T ra ining o f Vo lunte e rs a nd We ll- de ve lo pe d me c ha nisms to suppo rt vo lunte e rs.  E xpe rie nc e d vo lunte e rs willing to de dic a te 2-3 ho urs pe r we e k.  I nte g ra tio n with lo c a l he a lth a nd c o mmunity re so urc e s.  Stro ng c ha mpio ns who a re fa milia r with the g o a ls o f Na v-CARE .  Ada pta tio ns to Na v-CARE tha t suit the c o mmunity c o nte xt. 13

Nav-CARE Public atio ns  Dug g le b y, W., Ro b inso n, C., K a a sa la ine n, S., Pe sut, B., Ne ko la ic huk, C., Ma c L e o d, R., K e a ting , N., Sa nto s Sa la s, A., Ha llstro m, L ., F ra se r, K .D., Willia ms, A., Swindle , J. & Struthe rs-Mo ntfo rd, K . (Ma y 26, 2016). De ve lo ping Na vig a tio n Co mpe te nc ie s to Ca re fo r Olde r Rura l Adults with Adva nc e d I llne ss. Canadian Jo urnal o n Ag ing , 35 (2), 206-214. do i:10.1017/ S0714980816000131  Dug g le b y, W., Pe sut, B., Co ttre ll, L ., F rie se n, L ., Sulliva n, K ., & Wa rne r, G. (No v 14, 2017) De ve lo pme nt, imple me nta tio n, a nd e va lua tio n o f a c urric ulum to pre pa re vo lunte e r na vig a to rs to suppo rt o lde r pe rso ns living with se rio us illne ss. Ame ric an Jo urnal o f Ho spic e and Palliative Me dic ine . do i:10.1177/ 1049909117740122.  Pe sut, B., Dug g le b y, W., Wa rne r, G, Antife a u, E ., Ho o pe r, B., Ge rig , M., & Sulliva n, K . (July 3, 2017). Vo lunte e r na vig a tio n pa rtne rships: A c o mpa ssio na te c o mmunity a ppro a c h to e a rly pa llia tive c a re . BMC Palliative Care . do i:10.1186/ s12904-017-0210-3 14

“Never doubt that a small group of thoughtful committed citizens can change the world. Indeed, it is the only thing that ever has.” Margaret Mead