University of Hawaii Center on Aging The series is supported in part - - PowerPoint PPT Presentation

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University of Hawaii Center on Aging The series is supported in part by a cooperative agreement No. 90AL0011-01-00 from the Administration on Aging, Administration for Community Living, U.S. Department of Health and Human Services. Grantees carrying out projects under government sponsorship are encouraged to express freely their findings and conclusions. Therefore, points of view or opinions do not necessarily represent official AoA, ACL, or DHHS policy. The grant was awarded to University of Hawaii Center on Aging for the Alzheimer’s Disease Initiative: Specialized Supportive Services Program

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Creating Dementia- Friendly Communities

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Presented by Terry Barclay, Phd, LP and Michelle Barclay, MA

ACT on Alzheimer’s & The Barclay Group, LLC

What is dementia?

A brain disorder that causes a decline in memory and intellectual functioning from some previously higher level of functioning severe enough to interfere with everyday life

Dementia is NOT normal aging!

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Dementia Causes

Alzheimer’s disease: 60-80%

• Includes mixed AD + VD

Lewy Body Dementia: 10-25%



Parkinson spectrum

Vascular Dementia: 6-10%



Stroke related

Frontotemporal Dementia: 2-5%



Personality or language disturbance

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Alzheimer’ s Disease Vascular Dementia Lewy Body Dementia FTD

Alzheimer’s Disease (AD)

 Scope of the problem

 5.3M Americans with AD in 2015  Growing epidemic expected to impact 13.8M

Americans by 2050 and consume 1.1 trillion in healthcare spending

 Almost 2/3 are women (longer life expectancy)

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Dementia Facts

Of those with Alzheimer’s disease:

higher risk: Older African Americans (2x as whites) Older Hispanics and Latinos (1.5x as whites)

Impact on Families

Impact on Community



“Having dementia is very tough, but having a city who excludes dementia – that is really tough.

• Bart Deltour

Foton Dementia Charity Bruges, Belgium

Alzheimer’s Disease International: Dementia-Friendly Communities: A Global Overview

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WHO: Age-Friendly Communities

 An age-friendly city

• ptimizes opportunities for

health, participation and security by adapting it’s structures and services to be accessible and inclusive of

• lder people with varying

needs and capacities.

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http://apps.who.int/iris/bitstream/10665/43755/1/9789241547307_eng.pdf

Age-Friendly Communities

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What is a Dementia Friendly Community?

All sectors are informed, safe and respectful and foster quality

• f life

(age vs. dementia friendly)

Dementia is a global issue.

Dementia-Friendly Communities:

• UK
• Scotland – Dementia Friends
• Australia
• France
• Belgium
• Italy
• Austria
• Germany
• The Netherlands
• Japan
• India
• UNITED STATES

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Minnesota: ACT on Alzheimer’s

statewide collaborative volunteer driven

60+

O R G A N I Z AT I O N S

500+

I N D I V I D UA L S

I M P A C T S O F A L Z H E I M E R ’ S

BUDGETARY

SOCIAL PERSONAL

What is ACT on Alzheimer’s?

5 shared goals with a health equity perspective

ACT Common Agenda

Sector-Specific Dementia-Friendly Practices

• Businesses
• Community-based

supports

• Faith communities
• Health care community
• Legal and financial

services

• Local government
• Residential settings

 Timely identification and diagnosis

• f dementia, educate patients and

caregivers and refer to community resources

 Actions:

 Training on dementia  Administer objective assessments  Use ACT on Alzheimer’s clinical

practice tools

 Offer disease specific information

and information on community services and supports

DF Health Care

 Supports that help people maintain

independence and quality of life

 Actions:

 Service providers use best practices

in serving people with dementia

 Dementia specific education,

counseling and support

 Meaningful engagement activities:

memory café, art, music, dance

DF Community-Based Supports

 Legal and financial advisors may be

the first to identify cognitive decline

 Actions:

 Education on recognizing dementia  Webinars on assessing client

capacity, elder abuse, neglect and exploitation

 Know the local services to help

people with dementia and their caregivers

DF Financial/Legal Services

 Safe, supportive and welcoming

environment for people with dementia

 Actions:



Offer dementia training to clergy or staff



Support the person with dementia:

• ffer short devotions, encourage people

to talk openly about dementia and participate in services as appropriate



Support the caregiver: recognize signs

• f caregiver stress and refer to

appropriate resources



Create a dementia friendly environment

DF Faith Community

 Residential settings that serve and

support people with dementia

 Actions:

 Identify champions for

maintaining dementia readiness across the organization

 Educate and train all staff about

dementia

 Manage dementia across the

continuum using best care practices

DF Residential/Memory Loss Services

 Businesses that are meeting the

needs of customers and employees

 Actions:

 Educate staff on dementia and

effective communication skills

 Become aware of local services to

help people with dementia

 Ensure the environment is dementia

friendly

 Offer support to employees who are

caregivers

DF Businesses

 Dementia awareness in

community planning and emergency response

 Actions:

 Provide dementia training to

city/county staff who work with the public, emergency responders, and law enforcement

DF Local Government

 Develop a Community

Toolkit to foster dementia-friendly communities

 Support community

implementation of the toolkit

www.actonalz.org/toolkit

Funders: Blue Plus (HMO affiliate of Blue Cross Blue Shield of Minnesota); Medica Foundation; Greater Twin Cities United Way

Equip Communities & Raise Awareness

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Convene key community leaders and members to understand dementia and its implications for your community. Then, form an Action Team.

2.

Engage key leaders to assess current strengths and gaps in your community using a comprehensive engagement tool.

3.

Analyze your community needs and determine the issues stakeholders are motivated to act on; then set community goals.

4.

ACT together to establish implementation plans for your goals and identify ways to measure progress.

Community Toolkit Phases

Convene Phase: The Action Team

 Define your community  Determine who to survey

and who will survey

 Target sectors  Include diverse

populations

Sectors:



Adult day



Caregiver support providers



Employers/businesses



Health providers



Legal and financial planners



Local government



Residential settings



Social service agencies



Transportation



Faith communities

Engage Phase: Actions Needed

Analyze Phase: Planning for Action

Look for: High Priority, Low Activity areas of need

ACT Together

 Dementia Friends awareness and education program  Business, healthcare, government, law enforcement,

youth, first responder and faith trainings

 New caregiver supports, respite and trainings  New meaningful engagement opportunities for

persons living with dementia (e.g. arts)

Spotlight Program: Dementia Friends

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https://vimeo.com/109053654

Dementia Friends UK:

www.dementiafriends.org.uk

Dementia Friends Scotland:

www.dementiafriendsscotland.org

Dementia Friends: MN Pilot

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www.actonalz.org/ dementia-friends COMING SOON: Dementia Friends USA www.dfamerica.org



34 Action Communities



Awareness and education: Dementia Friends

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Caregiver supports



New, meaningful community engagement opportunities (arts, music)



Cross-Sector Engagement and Training: business, government, law enforcement, youth, first responder and faith



Health system adoption of optimal dementia care practices

MN Communities in Action

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Clergy training

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Caregiver panel

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Presentation on dementia-related behaviors

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Communication tips

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Keeping the Spirit Alive community gathering

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Film series: Love, Loss, Dementia and Family Relationships

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Teen training



Dementia Friends

Community: Twin Cities Jewish

 Private screening of “l’ll be

Me”

 Dementia education for

physicians

 Guest editorials in local

paper

 Project lifesaver in

partnership with Isanti County Sheriff department

Community: Cambridge

Dementia-friendly businesses:

 Education on

AD

 Communication

techniques

 Community

resources

Community: Walker



DF DFA C Communities

Santa Clara County, CA Prince Georges County, MD Denver, CO Tempe, AZ West Virginia Montgomery County Boston Minnesota

Early Adopters Committing/Preparing Inquiring

Community Capability:

Adoption of dementia friendly practices within and across all community sectors (e.g., faith, business, government, health care)

System Capability:

Adoption of optimal dementia care and supports in health, long term care and community services Person with Dementia Well-Being Care Partner Efficacy Care Partner Support and Family Health

Desired Impact: Is There a Finish Line?

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Getting Started: Moving Toward a Dementia- Friendly Hawaii

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Kottler’s 8-Step Change Model

1.

Create a sense of urgency

2.

Form a powerful coalition

3.

Create a vision for change

4.

Communicate the vision

5.

Remove obstacles & empower action

6.

Create short-term wins

7.

Build on the change

8.

Anchor changes in the community culture

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“One of the biggest challenges in creating dementia-friendly communities is getting the public talking about dementia.”

Alzheimer’s Disease International: Dementia-Friendly Communities: A Global Overview

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Next Steps: Assessing Readiness

 Does your community have an influencer/champion who is willing to

endorse and kick off an action team?

 Has your community shown an interest in dementia or other community

health initiatives in the past?

 Does your community have an existing coalition or an organization that

might serve as a sponsor or convener for building an action team?

 Do you anticipate that your team would be willing to commit to a 18 - 24

month community effort?

 Would your action team be prepared to collect information regarding

progress on established goals?

Community Commitment

Secure Champion Organization and Coordination Assure Connections b/n Health System, Community, and Public Sector Partners Foster Adoption of Dementia Friendly Practices and Change Goals Track Progress Implement Community Tool Kit Process if Appropriate

Call to Action: Establishing Communities

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Embed Health Care Tools

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“It’s a matter of the whole community coming together around a unified idea of what Alzheimer’s is and how it impacts individuals, families and the entire community. This is where we make a difference. Once you understand, great things can happen.”

• ACT Cambridge Leader

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Are you ready, Hawaii?

Let’s do this!!

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Learn more at www.ACTonALZ.org Sign up for the ACT e-news at: info@ACTonALZ.org View latest happenings by visiting the ACT website, including In the News, our Facebook page and Twitter.

Contact for Questions

Contact for Questions

Contacts: Olivia Mastry, olivia@collectiveactionlab.com @dfamerica_

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University of Hawaii Center on Aging The series is supported in part by a cooperative agreement No. 90AL0011-01-00 from the Administration on Aging, Administration for Community Living, U.S. Department of Health and Human Services. Grantees carrying out projects under government sponsorship are encouraged to express freely their findings and conclusions. Therefore, points of view or opinions do not necessarily represent official AoA, ACL, or DHHS policy. The grant was awarded to University of Hawaii Center on Aging for the Alzheimer’s Disease Initiative: Specialized Supportive Services Program