The UPMC Adult Sickle Cell Program Enrico Novelli, MD, MS - - PowerPoint PPT Presentation

the upmc adult sickle cell program
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The UPMC Adult Sickle Cell Program Enrico Novelli, MD, MS - - PowerPoint PPT Presentation

Department of Medicine, Division of Heme/Onc The UPMC Adult Sickle Cell Program Enrico Novelli, MD, MS Associate Professor of Medicine Division of Hematology/Oncology Vascular Medicine Institute Department of Medicine, Division of Heme/Onc A


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Department of Medicine, Division of Heme/Onc

The UPMC Adult Sickle Cell Program

Enrico Novelli, MD, MS Associate Professor of Medicine

Division of Hematology/Oncology Vascular Medicine Institute

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Department of Medicine, Division of Heme/Onc

A Brief History

  • In 2007

– Dr. Carlos, director of the program, left UPMC – 60+ patients at the UPMC program

  • In 2008

– Dr. Gladwin joined UPMC – First physician assistant hired

  • In 2010

– The Pittsburgh Sickle Cell Society asked us to care for their patients

  • In 2012

– First adult patient with SCD cured by stem cell transplantation at Childrens Hospital (Dr. Krishnamurti’s team)

June 19, 2018

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Department of Medicine, Division of Heme/Onc

  • In 2013

– Dr. Kato, De Castro, Jonassaint and Ofori-Acquah (PhD) joined UPMC

  • In 2014

– Ms. Dominique Stevens-Young became program manager

  • In 2016

– Efforts to consolidate the UPMC program in a dedicated facility started

  • In 2017

– Dr. Soodalter joined to provide palliative care/pain medicine support – Sue Sylvester replaced Evie Wrzosek as clinic RN – Dr. Valpey joined to provide psychiatric support

June 19, 2018

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Department of Medicine, Division of Heme/Onc

Current snapshot

  • >250 adults living with SCD cared by the program
  • Outpatient clinics 4 days/week
  • Infusion area at the Hillman for pain and

transfusion treatment (Day Hospital Model)

  • Consultative service offered at PUH/MUH and

Magee (as of May 1, 2018)

  • Scheduled support groups with invited speakers
  • Educational activities and in-service training for

health care providers

June 19, 2018

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Department of Medicine, Division of Heme/Onc

A multidisciplinary clinical staff

Hematologists

Robin Valpey, MD

Psychiatrist

June 19, 2018

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Department of Medicine, Division of Heme/Onc

Advanced Practice Providers

A multidisciplinary clinical staff

Nurses

June 19, 2018

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Department of Medicine, Division of Heme/Onc

Research staff

Mikhil Bamne, PhD

Research Associate

Jordan Driscoll

Research Associate

June 19, 2018

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Department of Medicine, Division of Heme/Onc

Clinical research

1 9 Oct 2009

  • Several clinical trials of stem cell

transplantation opening soon

  • Clinical trials of new potential

treatments (e.g. riociguat, rivipansel)

  • Several observational studies on brain

function, mood, quality of life

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Department of Medicine, Division of Heme/Onc

Close partnership with pediatric program at UPMC

  • Transition clinics and transition

meetings

  • Joint participation in clinical trials and

research studies

  • Program building activities

June 19, 2018

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Department of Medicine, Division of Heme/Onc

Fundraising and advocacy

1 9 Oct 2009

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Department of Medicine, Division of Heme/Onc

June 19, 2018