The Nordic Alliance for Clinical Genomics NACG introduction slides - - PowerPoint PPT Presentation

the nordic alliance for clinical genomics
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The Nordic Alliance for Clinical Genomics NACG introduction slides - - PowerPoint PPT Presentation

The Nordic Alliance for Clinical Genomics NACG introduction slides Updated 26. April 2019 The Nordic Alliance for Clinical Genomics NACG introduction slides Updated 26. April 2019 26/04/2019 NACG is an independent, non-governmental,


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SLIDE 1

The Nordic Alliance for Clinical Genomics

NACG introduction slides Updated 26. April 2019

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SLIDE 2

The Nordic Alliance for Clinical Genomics

NACG introduction slides Updated 26. April 2019

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NACG is an independent, non-governmental, not-for-profit Nordic association

26/04/2019

We work together and learn from each other to lift our performance standards. We aim at responsible sharing of trustworthy data for improved diagnosis and treatment, and as a resource for research. Sharing of data, tools and methods Vehicles for sharing Benchmarking, standardization, harmonization Research

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NACG goals

Facilitate the responsible sharing of genomic data, bioinformatics tools, sequencing methods and best practices for interpretation of genomic data. Enhance quality of genomic data and processes, and explore methodologies to provide assurance. Understand legal barriers to the implementation of personalized medicine and to engage with key stakeholders that influence these barriers Develop demonstration projects that challenge perceived legal barriers that limit responsible and ethical sharing of genomic and health data. Build bridges between research and clinical communities, technologies and practices to foster innovation

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NACG organisation

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Steering committee

WG Sharing of data, tools and methods WG Vehicles for sharing WG Benchmarking, standardization, harmonization WG Research Secretariat

Kjell Petersen, UiB & Tony Håndstad, OUS AMG Henrik Stranneheim SciLifeLab Sharmini Alagaratnam, DNV GL & Kaisa Kettunen, HUH / FIMM Dag E Undlien, OUS AMG Valtteri Wirta, Karolinska Institutet / SciLifeLab Morten Dunø / Karin Wadt, Rigshospitalet Dep Clin Gen Maria Rossing, Rigshospitalet Center for Genomic Med Jón Jóhannes Jónsson, Lanspitali Stephen McAdam, DNV GL Joakim Lundeberg, SciLifeLab Janna Saarela, FIMM Guro Meldre Pedersen, DNV GL

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SLIDE 6

NACG development

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2016

  • WS 1 Høvik
  • WS 2

Stockholm 2017

  • WS 3

Copenhagen

  • Inaugural

symposium & WS 4 Høvik 2018

  • WS 5

Stockholm

  • WS 6

Copenhagen 2019

  • WS 7 Helsinki
  • Symposium &

WS 8 Høvik

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SLIDE 7

NACG - modus operandi

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SLIDE 8

Connect w ith NACG

  • NACG website
  • https://nordicclinicalgenomics.org/
  • About
  • Events
  • Resources
  • NACG paper
  • NACG workshop reports
  • NACG governing documents
  • Contact us
  • post@nordicclinicalgenomics.org

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SLIDE 9

How to join

  • Open for organizational and individual

members that will adhere to the guiding principles of NACG.

  • Application forms available at

https://nordicclinicalgenomics.org/

  • ..or contact us at

post@nordicclinicalgenomics.org