THANKS Greg Liz Pam Policy Geeks IAF Non-profit Charitable - - PowerPoint PPT Presentation

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Jan 10, 2024 284 likes •472 views

DATA, ETHICS, AND SUCCESS BY DESIGN THANKS Greg Liz Pam Policy Geeks IAF Non-profit Charitable purpose is research and education Global in scope 60 years experience in information policy BIG BANG Acceleration

SLIDE 1

DATA, ETHICS, AND SUCCESS BY DESIGN

SLIDE 2

THANKS

Greg
Liz
Pam
Policy Geeks

SLIDE 3

IAF

Non-profit
Charitable purpose is research and education
Global in scope
60 years experience in information policy

SLIDE 4

BIG BANG

Acceleration in observation

SLIDE 5

DEFINING TERMS

Privacy
Autonomy
Data Protection
Full range of fundamental rights

SLIDE 6

OUR SMART BED

And who has rights to observe

SLIDE 7

SO WHAT ARE KEYSTONES OF WHAT IS PERMISSIBLE?

Individual health
Research
More dynamic market

SLIDE 8

OBSERVATIONAL WORLD FEEDS ANALYTICS

Are 1970’s legal concepts the best guidance for 2020?

SLIDE 9

SEEING VERSUS OBSERVATION

Maybe stone age people had it right

SLIDE 10

DATA PROTECTION IS ABOUT FAIRNESS

But what is fairness?

SLIDE 11

ETHICS HAS A PLACE IN INFORMATION POLICY

It is about setting the norms for defining what is right and wrong

SLIDE 12

FUNDAMENTAL RIGHTS ARE ABOUT HUMAN WELFARE

Acceptable big data is about creating value for people

SLIDE 13

THE IAF AND BIG DATA

A European Regulator: “I am not sure that big data can ever be legal”

SLIDE 14

GETTING TO LEGAL AND ETHICAL BIG DATA

Two phase approach
Discovery – heavy data use but not impactful
Application – traditional governance works

SLIDE 15

DETERMINING PERMISSIBILITY

Legal, Fair and Just
Fair and Just often determines what is legal

SLIDE 16

KEY CHALLENGES

Scalability
Individual participation

SLIDE 17

PARTING THOUGHTS

We live in an observational age
Ethics matters
Integrate privacy, data protection and security into holistic information policy
Embrace the coolest job in the organization