State Coalition Project Update • Main Functions: Disease Awareness • Information and Resource Sharing • Advocacy and Community Change • Activities: • • Support Group Website • Education Day • Significant Challenges: • Cash and Resources • • Time Commitment by Staff • Hot Topics: • Readmissions • FDA and Tobacco Control • • Disease Awareness Patient Access to Affordable and Quality Care •
State Coalition Project Update • Past Involvement and Collaboration: Attended a Business Meeting • Attended a Past Conference • Information Sharing • Caucus Recruitment • • Membership Benefits: Increase in Profile of Organization • Educational Materials * • Information on Policy Information • Most Helpful USCC Resource: • • Materials from the USCC Membership (pocket consultant guides, etc.) Never Used Resources • Unaware of Resources •
State Coalition Project Update • Barriers to Participation: Finances • Meeting Schedule at Busy Conference Times • Limited Staff and Staff Resources • Early Notification of Meetings and Events • • Time/ Time Zone Distance • Bad Meeting Technology • Has Being a Member Been Beneficial: • 28% Said Yes •
State Coalition Project Update • Improvement Suggestions from the Membership: Greater relationship with the Membership • Greater relationships with our liaison partners • Development and assistance of state and regional coalitions • National media campaign • • Presence at national, regional and state events Support for our Membership: • Collaboration • Financial assistance to attend meetings • Financial assistance for website development • • Health with outreach to patients and providers Potential Collaboration: • Work more locally and regionally • More participation in member events • Promotion of the USCC •
State Coalition Project Update • How Our Members Envision Our Future: Development: expanding our membership to be more inclusive; • local, state and regional presence Policy: recruit and sustain COPD Caucus members • Coordination: key player in the coordination of events between • members MORE Involvement with the activities of our member organizations •
State Coalition Project Update • What the Needs Assessment Has Shown Us: Misunderstanding: our Membership does not understand what the • U.S. COPD Coalition is and/or what it offers MORE Involvement: our members want us there- they are actually • excited about our involvement; increase in presence • Policy: more updates and better government relations Needs of our Members: • No. #1 Barrier: Financial • Top Resource Asks: • Support for website building • • Support to attend meetings Ability of the USCC to attend and support more events •
Next Steps • Creation of a State Coalition Project Taskforce Community Event Calendar •
New Business and Closing
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