State Coalition Project Update Main Functions: Disease Awareness - - PowerPoint PPT Presentation

State Coalition Project Update

• Main Functions:
• Disease Awareness
• Information and Resource Sharing
• Advocacy and Community Change
• Activities:
• Support Group
• Website
• Education Day
• Significant Challenges:
• Cash and Resources
• Time
• Commitment by Staff
• Hot Topics:
• Readmissions
• FDA and Tobacco Control
• Disease Awareness
• Patient Access to Affordable and Quality Care

State Coalition Project Update

• Past Involvement and Collaboration:
• Attended a Business Meeting
• Attended a Past Conference
• Information Sharing
• Caucus Recruitment
• Membership Benefits:
• Increase in Profile of Organization
• Educational Materials *
• Information on Policy Information
• Most Helpful USCC Resource:
• Materials from the USCC Membership (pocket consultant guides,

etc.)

• Never Used Resources
• Unaware of Resources

State Coalition Project Update

• Barriers to Participation:
• Finances
• Meeting Schedule at Busy Conference Times
• Limited Staff and Staff Resources
• Early Notification of Meetings and Events
• Time/ Time Zone
• Distance
• Bad Meeting Technology
• Has Being a Member Been Beneficial:
• 28% Said Yes

State Coalition Project Update

• Improvement Suggestions from the Membership:
• Greater relationship with the Membership
• Greater relationships with our liaison partners
• Development and assistance of state and regional coalitions
• National media campaign
• Presence at national, regional and state events
• Support for our Membership:
• Collaboration
• Financial assistance to attend meetings
• Financial assistance for website development
• Health with outreach to patients and providers
• Potential Collaboration:
• Work more locally and regionally
• More participation in member events
• Promotion of the USCC

State Coalition Project Update

• How Our Members Envision Our Future:
• Development: expanding our membership to be more inclusive;

local, state and regional presence

• Policy: recruit and sustain COPD Caucus members
• Coordination: key player in the coordination of events between

members

• MORE Involvement with the activities of our member organizations

State Coalition Project Update

• What the Needs Assessment Has Shown Us:
• Misunderstanding: our Membership does not understand what the

U.S. COPD Coalition is and/or what it offers

• MORE Involvement: our members want us there- they are actually

excited about our involvement; increase in presence

• Policy: more updates and better government relations
• Needs of our Members:
• No. #1 Barrier: Financial
• Top Resource Asks:
• Support for website building
• Support to attend meetings
• Ability of the USCC to attend and support more events

Next Steps

• Creation of a State Coalition Project Taskforce
• Community Event Calendar

New Business and Closing