services in lothian for people with learning disabilities
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Services in Lothian for People with Learning Disabilities, Autism Spectrum Disorders and Aspergers Syndrome Improving Health 1. Everyone should be working together to make sure people with learning disabilities can use health services. 2.


  1. Services in Lothian for People with Learning Disabilities, Autism Spectrum Disorders and Aspergers Syndrome

  2. Improving Health 1. Everyone should be working together to make sure people with learning disabilities can use health services. 2. People with learning disabilities should be able to get the help they need to lose weight, get more exercise and stop smoking.

  3. Services for People 3. When we plan services we should start by looking at what people need. 4. We need a set of rules for doing Person Centred Plans and Personal Life Plans. 5. We should include people with learning disabilities and their families when we plan services. 6. We need more services for older people with learning disabilities.

  4. Leaving School 7. Young people who are moving from children’s to adult services should have a Key Worker, Social Worker or Local Area Coordinator. Young people should be able to get an advocate if they want one. 8. Young people and their families should be able to get clear, up to date, accurate information about what they can do when they leave school. 9. Children’s Services, Social Work and Health should work better together.

  5. Inclusion 12. All staff should get a copy of the Respect Test. This includes staff in transport, leisure and so on. 13. A Learning Disability Partnership Board should be set up to plan services. Half of the members should be people with learning disabilities, parents and family carers. The other half should be professionals. 14. We should find out if people from black and minority ethnic communities use services for people with learning disabilities.

  6. Communication 15. Everybody should use the People First guidelines on inclusion and accessibility. 16. People who have communication difficulties should be consulted in a way that is meaningful to them. 17. All information and reports should be jargon free, in large print and available on tape and CD/DVD. This should include letters and reports from schools and nurseries.

  7. Better Lives 18. People with learning disabilities should be included (with support) in meetings about community safety and domestic abuse. 19. We should check on whether services are helping people to achieve better lives.

  8. Improving Independence and Responsibility In Control is the name for a new way of people getting control over their support. In Control says people who need support should be citizens like other people. 20-22 and 43.Health and Social Work should find out more about In Control . We should test In Control to see if it works better.

  9. Homelessness, Alcohol and Drug Abuse 23a. People with learning disabilities who are homeless or who are involved in alcohol or drug abuse should be identified quickly. 23b and 50. People with learning disabilities who are homeless need somewhere safe to live until they get a home of their own.

  10. Advocacy 24. Young people who are moving from children’s to adult services should be able to get an advocate if they want one. 25. Parents with learning disabilities should be able to get an advocate if they want one.

  11. Planning Services 26. We need to count how many people there are with learning disabilities in Lothian. 27. We need a database of people with learning disabilities in Lothian. 28 and 29. Housing Departments need to get involved in planning services for people with learning disabilities.

  12. Paying for Services 30. The four Lothian councils and NHS Lothian should agree who pays for services. 31. The four Lothian councils and NHS Lothian should make sure that their staff know about this.

  13. Staff 32 and 33. We should make sure we have the staff we need to provide services. 34. We should make sure that staff have the training they need to work with people with learning disabilities.

  14. Staff 35. We should make sure that staff get training in Person Centred Planning. People with learning disabilities and carers should be part of the training team. 36. Staff should work together better. Staff should know more about the needs of people with learning disabilities who are homeless and those who are involved in alcohol or drug abuse.

  15. Staff 37. Health and social-care staff who work with people with complex needs should work together better and get more training. 38. People with Autism Spectrum Disorders or Aspergers Syndrome are entitled to Autism Spectrum Disorder services and resources but this does not always happen. Every organisation, including the police, will get more training about Autism and Aspergers Syndrome by 2010.

  16. Staff 39. Each organisation, including the police, should identify a member of staff who will get more training about Autism and Aspergers Syndrome. They will be a point of contact, supporter and advisor to other staff. 40. All staff working with parents with learning disabilities should get training on the needs of parents with learning disabilities. Part of this training should be run by parents with learning disabilities.

  17. Working Together to Provide Services 41. There should be more services in the community that will mean that people do not have to be treated in hospital. 42. The four Lothian councils and NHS Lothian should work together on services for people who have complex needs and whose behaviour challenges services.

  18. New Services 44. Hospital wards for people with learning disabilities should be smaller. 45a. There should be more community health services. 45b. There should be more day hospitals for people with learning disabilities. 46. People with learning disabilities and carers should be involved in planning new services.

  19. Specialist Services for People Who Need Them 47. There should be better services for older people with learning disabilities. This includes hospitals, nursing homes, day care and respite care. 48. Health services for older people with learning disabilities should be better co-ordinated. 49. There should be special services for women with learning disabilities who commit crimes. 51. There should be new services for people who are very disabled. This includes the chance to get breaks away from home.

  20. Specialist Services for People Who Need Them 52. There should be one person for Lothian to make sure that people who are very disabled get the services they need. 53. Number 6 is a special service for people with Autism Spectrum Disorders or Aspergers Syndrome. It has done a good job and it should get money to keep going. 54. Parents who have learning disabilities should be able to get the support they need. We should set up a project to test the best way to do this.

  21. A Lothian Learning Disability Manager 55. There should be a Manager whose job is to make sure these things happen.

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