Autism Partnership Board Thursday 10 October 2013 Welcome from the - - PowerPoint PPT Presentation

Welcome to the Autism Partnership Board Thursday 10 October 2013

Welcome from the Chair Janet Johnson Apologies from:

Tiffany Williams, Lucy Butler, Valerie Murphy, Kathy Erangey, Andrew Bates, John Walton, Sarah Hewitt

• Fire – no fire alarm test is expected so if the alarm goes it is for real
• You MUST evacuate the building. The Fire Assembly Point is on the

pedestrian area to the front of the building.

• First Aid can be found at the Front Reception Desk.
• No Smoking anywhere in the building. If you wish to smoke,

please use the area underneath the amphitheatre in the central courtyard, and please use the ashtrays provided.

• Toilets are at the end of the Clubroom and to the right of this room

near the lift

• Eating is not permitted in this room

Housekeeping

Meeting rules…..

• Please turn off your mobile phones. Or put them on silent if

someone needs to call you during the meeting

• One person to speak at a time
• Be clear and concise
• Please give time for other people to speak - they might take longer

than you to have their say

• Please listen to everyone. You may not agree with them, but please

respect what they say

• Please keep to the point, the Chair will help you to do this
• It’s fine to walk off if you need a break
• There will be breaks in the agenda to give everyone a rest

Have your say in the meeting…

• Put your hand up when you want to speak and if

it’s a question say “I have a question”

• The Chair will come to you as soon as they can
• The Chair will check for:
• Complicated language
• Ask people to speak slowly and concisely
• Put in pause points after information has been given

and before questions

Corrections to October meeting notes Chair

• Sarah Hewitt is listed as a Provider when she

should be listed under Parents and People with Autism

• Kathy Erangey should be listed under Parents and

People with Autism and as a Provider

• Change the paper on how the Autism Partnership Board

works to include what people have said above and send out to members - done

• Send round to Board members a list of who is on which

working group and ask for new members for other groups - done

• The Board agreed that it wanted to ask for an autism target to

be included in the Joint Health and Wellbeing Strategy priorities for 2013/14.

• Target agreed as: provide autism awareness training for an

additional 500 front line health and social care workers in Oxfordshire

Actions from the October meeting

Chair

Today’s meeting is about Children and Young People…… Chair

• Hearing about what services there are for children

and young people

• Talking about and agreeing what we need to do to

make the actions for children and young people in the Big Plan for Autism happen

Big Plan for Autism

Support for children and families We want to…

• Make sure all children and young people with autism, and those who help and

support them, can get expert advice and support

In 2013-2014 we will…

• set up more support for pre-school children and their parents after checking the

Early Years Autism Project is working well

• give more children support that meets their individual needs
• support young people as they become adults
• improve choices in college and work
• provide services in Oxfordshire for children and young people with autism to stop

them having to live out of the area

Action Plan - 2 - Support for children and families

Aim Action Benefit/Success Measure Timescale Better support for Children and Young People and families, including parents with autism Check the Early Years Autism Project is working well Parents feel supported Staff providing support to Children and Young People feel more confident Children achieve goals and have the same opportunities as everyone else Parents’ feedback Staff feedback How Children and Young People in the project are doing? Report on the Early Years Autism Project finished by March 2014 Children and Young People with autism are included in the County Council’s ‘SEND’ programme (big changes from the government to make things better) Parents and Children say their lives have improved and they have a better experience of the change and support available for when they become an adult Parents’ feedback Check the plans for Children and Young People are being met Agree an action plan by? Improve choices in college and work Make this happen through the autism employment support project More Young People in work, completing education and training and supported to live independently Numbers of Young People in work Numbers of Young People staying in work, education and /or training Numbers of Young People in education and training Agree actions to be achieved by March 2014

Oxford University Hospital NHS Foundation Trust – Clare Robertson (Consultant Community Paediatrician) Child and Adolescent Mental Health Services (CAMHS) – Kiri Summers – (Clinical Team Manager)

Child and Adolescent Mental Health Services (CAMHS) – Kiri Summers – (Clinical Team Manager) How we could make a difference….

• Having a commissioned service for assessment and

diagnosis of autistic spectrum disorder of children and adolescents that easily moves into the adult diagnostic pathway

• Have appropriate capacity in Oxfordshire for post diagnosis

support, education and skills training for parents and young people, in venues accessible for young people and acceptable to them

Early Years Autism Support

October 2013 Ryan Bradley and Sue Edwards

Early Years Autism Support: EYAS

• The Big Idea?
• Why is it a good idea?
• Who is involved?
• How will we do it?
• When will we do it?
• Which children will we work with?
• Who will pay for this?
• How will we know it’s worth doing?

The Big Idea

EYAS will provide the right support at the right time to children with autism and their families.

Why is it a Good Idea?

Who is involved?

Communication and Interaction Service Early Years SEN Team Speech and Language Therapy Occupational Therapy Educational Psychology Early Years Settings Children and families

How will we do it?

Identify child’s abilities Meet the family and child Assessment Work with child, family and Early Years Settings Review the child’s progress

Child diagnosed with autism aged 4 years

• r under

When will we do it?

March 2014 – October 2015

Which children will we work with?

We will work with 9 children and families selected by random.

Who will pay for this?

How will we know it is worth doing?

We will measure the impact of EYAS on Children Families Early Years Settings EYAS staff and how much it costs.

Progress on the Big Plan for Autism for Children and Young People – Sarah Ainsworth

Progress

629 Autistic Spectrum Condition children supported by Oxfordshire County Council commissioned short breaks services in 2012/13( 354 in 2011/12). Children from special schools, autism bases and mainstream schools are all accessing short breaks. Impact of short breaks: making new friends, growing independence, engaging in more positive behaviours, learning new skills, improving self-esteem and confidence

Progress

• Care pathway for Autistic Spectrum Condition young people in transition

to Adult Services waiting sign off by Director of Adult Social Care

• Mencap Traineeship programme available for young people from 16 to

support into employment

• Mencap Employ Me service available for young people from 16 –

funding from Personal Budgets/direct payments/Disabled Living Allowance/Personal Independence Payments

• Autism Residential School (Learning Disability Autistic Spectrum

Condition young people from 10 – 19 year) on course to open in September 2014

• Winterbourne View action plan – children and adults

Gaps/Where We Are Stuck

• 70% of Autistic Spectrum Condition children will have mental health
• problems. We need more preventative mental health services to keep ASC

children and young people from becoming ill and treat mental health difficulties in the community.

• 1 in 3 ASC people have experienced severe mental health difficulties

because of a lack of support. We need step down services for children and young people who have needed Child and Adolescent Mental Health Service inpatient services so they can be cared for safely locally – with their families wherever possible.

www.childrenintouch.org.uk

Children in Touch – registered charity

• 2002: Autism Family Support
• Over 1250 families
• Oxfordshire
• 18 new referrals per month
• 3 fulltime posts

(Project Manager, Family Support Worker & Community Outreach Worker)

plus sessional youth group, and holiday scheme staff

Parent/carers

0 - 13 year olds: Becky Loveless, Family Support Worker 14-25 year olds: Sam Burkin, Community Outreach Worker

• Provide advice, practical information, strategies and resources,

a listening ear.

• Family Information Pack & Mailing list
• Home visits, and support by telephone and email
• Parent support groups and surgeries
• Sign post, and refer families to other services
• Link local parents / children
• NEW : Parent support group for parents with ASC

Referrals – A Referral Form must be completed by parent/carer or

• professional. Available on our website OR contact us

Usually 5-6 week waiting period for first home visit

This service is a lifeline to families - Parent

Training for Parents

 Challenging Behaviour – 5 week course in partnership with OCC SENSS

(Communication & Interaction team). Twice a year

 Sensory Processing – 4 week course  Sexuality Awareness  Bespoke  TBC: Workshop for Fathers  Mindfulness

Bookings: Booking forms are emailed to parents and professionals

CAMHS: 6 week Post diagnostic course for parents

I loved this course - it has changed my life, my son's life and my whole family. Thank you from the bottom of my heart.

Parent attended

Sensory Processing course

Children & Young People

Youth Groups

For young people with Asperger Syndrome / HFA 4 Groups:

• 8 -12 year olds (Saturday mornings, Oxford)
• 13-16 year olds (Friday evenings, Oxford)
• 16-21 year olds (Wednesday evenings, Oxford)

Available to young people from across Oxfordshire

• 13-18 year olds (Thursdays, Abingdon Hub partnership)

Available to young people living in the Abingdon / Didcot Hub area only

Referral process & priority criteria All groups have a waiting list

It has helped to build confidence to go out more because I’m able to mix with people at Youth Club who are like me and my age. It has helped me to talk to people more and I’m making more friends. The staff and the volunteers understand me. Matty, aged 13

Summer & Easter Activities

• 8 – 18 yrs with AS /HFA
• Approx 3 activities per week
• Community based activities (e,g. mechanics,

laser gaming, horse riding, film making, rock climbing, subway!)

• 1:4 staff ratio (approx)
• Focus on friendships

Referral: Parent Booking Form

Befriending Scheme

• Volunteers befriend an individual on the autism

spectrum.

• Befriendees - all ages / spectrum.
• Visit on average one hour per week
• Play and leisure activities in the home and offsite

activities

• High demand and waiting List

Training for young people

• Social Skills
• Sex and Relationships

TBC:

• Digital Media workshops
• Siblings workshop

‘Oxford Aspies’

Adult Social Group

• Run by Aspies for Aspies
• Adults with Aspergers Syndrome
• Fortnightly social group meets in a pub in Oxford
• Informal social group (not staffed)
• Additional outings organised by members

Professionals

• Training
• Autism Awareness
• Sensory Processing
• Play
• Sexuality
• Bespoke training for range of organisations.
• TBC: challenging behaviour

– Joint training with Autism Oxford

• Family support: Joint visits, sign posting, consultancy and

strategies, information sharing.

• Consultancy: case work, starting-up services
• NEW PILOT: Surgeries for professionals

Frequent concerns from parents and young people

Parents

Their child’s:

• Challenging behaviour
• Social isolation – lack of friendships
• Childs low self esteem, poor self image
• Education
• Sensory processing – tactile, clothing, food,

socialising Older young people

• Accepting diagnosis
• Transition between school and college/college into

employment.

• Lack of engagement with services or support

Their own:

• Understanding the diagnosis
• Capacity and needs (e.g. Requirement to ‘be a case

manager’, mental and emotional health, ASC, strain and conflict between parents, complex family issues).

• Lack of supportive network

Young People

• Their diagnosis- What it means

to me, other people on the spectrum (‘freaks’)

• Managing emotions
• Getting a girlfriend / boyfriend
• Making and keeping friends
• Doing ‘stuff’

Unmet Needs

• Referral rate – limited capacity to deliver proactive Family Support

Work

• Intensive 1:1 with children, young people and adults – capacity,

remit, and skills

• Adapted support/therapy for children, young people and adults

(mental health and therapy, sexualised behaviour, criminal justice system).

• Parents with additional needs (e.g. mental health, Autistic

Spectrum Condition, pregnancy)

• Youth groups across the county and large age range (Hubs ?)
• Youth Groups for young people with challenging behaviour
• Social Skills training.

“This is a really good model; it just needs more activities and more efficiency to meet demand” – parent

Tea and Coffee Break

Work in groups

• What are the challenges ahead?
• How can we work better together to meet the

challenges?

Feedback from groups and

Personalisation and travelling around

• Choice and control
• Having your say
• Learning to become more independent – an

inspirational example

Choice and control

Think about somewhere you have to get to , e.g. school, college, work

How can you get there ?

Choices

How could you become more independent ?

Control

Think about somewhere you want to get to , e.g. a social event

How can you get there ? Choices How could you become more independent ? Control

Feedback from groups

Autism Self Evaluation Improving Health and Lives National Survey – Lynda Chalcraft

• How well are we doing to improve the lives of

people with autism in Oxfordshire?

• 37 questions on planning, training, diagnosis, care

and support, housing and accommodation, employment and the criminal justice system

• Thanks to everyone who has helped put the

survey together

We are doing well on…..

• Training
• The Autism Alert Card
• The Big Plan for Autism
• Working together
• Talking to people with autism and their families

and carers

We are improving on….

• Diagnosis and the diagnostic pathway
• Working with the Criminal Justice System
• Housing
• Employment

We need to do better on…..

• Collecting information about people with autism

to help plan services

• Supporting young people with autism to move

from children’s services to adult services

• Providing information and support

What next?

• We ask the Autism Partnership Board and people

with autism to agree the survey

• We write a report on what we need to do better

and how we are going to do it for the next Autism Partnership Board and Adult Health and Social Care Partnership Board

Anything else to say?

Evaluation

Zoe Elford

End  Have a safe journey

Next Partnership Board

Topic:

• January 2014 – Criminal Justice System and

Action Plan for 2014/15