Regional Leadership Forums on Advanced Illness Care The Coalition - - PowerPoint PPT Presentation

Regional Leadership Forums

• n Advanced Illness Care

The Coalition To Transform Advanced Care Eugene Washington PCORI Engagement Award

• C-TAC’s Vision: all Americans with advanced illness will receive

comprehensive, high-quality, person- and family-centered care that is consistent with their goals and values and honors their dignity

• Approach: empower consumers, change the health delivery system,

improve public and private policies, and enhance provider capacity

• Partners: 140+ members, including foundations, health systems,

payers, etc.

Background

• C-TAC is widely recognized as a leading organization for empowering stakeholders

in the field of advanced illness care.

• PCORI’s Eugene Washington Engagement Award provides C-TAC the opportunity

to disseminate PCORI-funded research relevant to advanced illness to health system leaders, patient advocates, and other key stakeholders around the country.

Objectives & Format

Forums are intended to:

Highlight evidence-based, person-centered models of care for people with advanced illness to engage stakeholder leaders, healthcare practitioners, and patient advocates who can facilitate dissemination and implementation. Spark enduring partnerships between researchers and regional leaders. Deepen our ties with the communities we aim to empower through engagement. Support PCORI’s commitment to capacity building by developing awareness, infrastructure, and partnerships that lead to implementation of PCORI-funded research results.

Four presentations (one by each PCORI lead researcher), followed by a Q&A, then a networking reception.

Selection & Design Criteria

Only considered completed projects or projects with posted results that have entered peer review for inclusion in the forums Healthcare leaders, content experts, and patient representatives reviewed and approved research projects that would be highlighted in each forum All projects were screened for actionable and meaningful results Emphasis was placed on current research Preferences were given to those studies with potential for widespread applicability rather than disease-specific research

Review Process

C-TAC convened a committee of healthcare leaders to review and provide feedback on the scan and categorization of project-relevance:

• John Mulder, Medical Director, Trillium Institute
• John Richardson, Vice President of Payment and Policy, Healthsperien
• Maggie Rogers, Director of Research, CAPC
• Don Casey, President, American College of Medical Quality
• Suzanne Mintz, Independent Consultant
• Grace Whiting, CEO, National Alliance for Caregiving
• David Brown, CEO, Curadux
• Angela Overton, Senior Advisor to the Interfaith & Diversity Workgroup, C-TAC

Final Final Fo Forum To Topic Se Select ction

• ns
• Communication & Decision Making

Communication was chosen as the leading forum topic because it is an essential component of all advanced illness care.

• Supporting Caregivers

This forum will focus on developing a positive image of caregivers, providing resources in communities where they are needed most, and strengthening caregiver and patient voices in the treatment decision process.

• Quality / Models of Care

C-TAC is committed to disseminating effective care models and supporting their implementation wherever possible.

Final Selected Studies

Communication & Decision Making Seattle

• Preparing Spanish-speaking Older

Adults for Advance Care Planning and Medical Decision Making | Rebecca Sudore, UCSF

• Health System Intervention to

Improve Communication About End-

• f-Life Care for Vulnerable Patients |
• J. Randall Curtis, Cambia Palliative

Care Center of Excellence

• A Multicenter Trial of a Shared

Decision Support Intervention for Patients and Their Caregivers Offered Destination Therapy for End-Stage Heart Failure: The DECIDE-LVAD Trial | Larry A. Allen, MD, MHS, University of Colorado, Denver

• Pilot Project: Improving Patient Care

by Helping Patients and Doctors Communicate Better| Ming Tai- Seale, PhD, MPH, Palo Alto Medical Foundation Research Institute)

Supporting Caregivers Dallas

• Identifying Which Transitional Care

Services Matter Most to Patients and Caregivers – The ACHIEVE Study |Mark V. Williams, MD, University of KY

• Equipping You for Success: Training

for Family Caregivers in Team-Based Medical Decisions | John Schall, MPP, Caregiver Action Network

• Improving Communication for

Chemotherapy: Addressing Concerns of Older Cancer Patients and Caregivers | Supriya Mohile, MD, MS, University of Rochester

• Testing a Way to Help Patients

with Dementia and Their Caregivers Set Goals for Care | David B. Reuben, MD, UCLA

Quality / Models of Care Boston

• Do Palliative Care Teams in Nursing

Homes Improve the Quality of End-

• f-Life Care for Nursing Home

Residents? | Helena Temkin-Greener, University of Rochester

• Evaluating a New Patient-Centered

Approach for Cancer Care in Oncology Offices | Sarah Scholle, DrPH, MPH, National Committee for Quality Assurance

• The Role of Multidisciplinary Care

Planning on Survival, Care Quality, and Satisfaction for Patients with Lung Cancer | Raymond U. Osarogiagbon, MD, Baptist Memorial Hospital-Tipton

• Care Align Initiative: A Pilot Project
• n Coordination of Care for Frail

Elderly | Caroline Blaum, MD, MS, NYU Langone

Example of Impact ct:

Preparing Spanish-speaking Older Adults for Advance Care Planning and Medical Decision Making

• Dr. Rebecca Sudore’s project; an example of person-centered,

actionable research related to advanced illness care

• Compared the effectiveness of two approaches to advanced care

planning among Spanish-speaking older adults

• Findings: the addition of a culturally-tailored, Spanish version of a

website resulted in more Spanish-speaking patients to have their wishes documented in their health record and engage in advance care planning activities

Save Th The Date!

Supporting Caregivers Forum Dallas (American Heart Association Headquarters) Quality / Models of Care Boston (Petrie-Flom Center at Harvard Law School) Communications & Decision Making Seattle (Cambia Grove)

July 25, 2019 September 6, 2019 September 2019

(TBD)

Summary

C-TAC is partnering with PCORI for six regional forums in major cities around the

• country. (3 forums in 2019, 3 forums in

2020)

2019 Cities: Dallas, Seattle, and Boston 2020 Cities: Currently Under Development

This series of Regional Leadership Forums is designed to put evidence-based, person-centered models of care for people with advanced illness in the hands

• f stakeholder leaders, healthcare

practitioners, and patient advocates who can see them implemented. To ensure that impactful research was selected, a committee of healthcare leaders, experts, and patient representatives convened by C-TAC reviewed and approved the PCORI-funded research projects to be highlighted during each forum