Presented By Karen McNee BACKGROUND TO SCHEME We have over the - PowerPoint PPT Presentation

Buddy Scheme Oct 15 Presented By Karen McNee

BACKGROUND TO SCHEME • We have over the years tried to start up patient groups • We offer help to start up patient groups in a variety of ways • This help has not had the uptake we would have hoped • One of the main areas of success at the patient days we run, is the opportunity for patients to chat with each other • Many people have fed back that once diagnosed they would value someone to speak with

FEEDBACK FROM PATIENTS Newly Diagnosed Patients • Shocked when diagnosed • Unable to take in the information • Great support from family but often felt alone • Unsure what the future holds Patients Living with kidney cancer • The ability to share and empathise with new diagnosed patients • Patients who have survived would like to help others • They feel that they would have benefitted from this service

GETTING STARTED • One of the challenges faced was reaching kidney cancer patients due to data protection • Emailed all patients in Scotland that we have contact information for on our data base • The feedback was overwhelming that this is a service that would be beneficial • A significant number responded to say that they would like to be buddy’s • Spoke with Clinicians and CNS Nurses to get their buy in • I was trained by Maggie’s • Set up email address and Freephone telephone number • Trained Buddy’s

HOW SCHEME WILL WORK • CNS Nurses will hand out literature to patients and make them aware of the service • CNS will then contact me with patient info, I will then wait for patient to get in touch • I will then put patient in touch with relevant buddy/buddies

PROTECTION • For newly diagnosed patient • For buddy • For Charity

Social Media Information • Scottish Kidney Cancer Support Group ( Facebook) • Kidney Cancer Network (Facebook) • www.jameswhalefund.org twitter.com/JWFKidneyCancer www.facebook.com/jameswhalefundforkidneycancer

Thank you for listening, any questions ? Contact Information: Karen McNee Mobile: 0800 130 30 88 Email: buddy@kidneycancerscot.org