My daily job Slvia Rodrguez Torres CF-reference nurse June 2017 - - PowerPoint PPT Presentation

my daily job
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My daily job Slvia Rodrguez Torres CF-reference nurse June 2017 - - PowerPoint PPT Presentation

The CF-specialist nurse My daily job Slvia Rodrguez Torres CF-reference nurse June 2017 The CF-nurse at Sant Joan de Dus hospital CF-Diagnosis Successive visits IV home treatment Others Sputum control Sweat test: - Vital signs


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The CF-specialist nurse My daily job

Sílvia Rodríguez Torres CF-reference nurse

June 2017

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The CF-nurse at Sant Joan de Déu´s hospital

Sweat test:

  • Negative: discharge
  • Positive: blood test +

ANF

  • Coordination with CF-

Team visits

  • CF-nurse contact
  • New ST
  • Vital signs monitoring

(heart rate, breath rate, pulse oximetry-SpO2,…), weight, height.

  • Anamnesis
  • Treatment control
  • Education
  • Sputum
  • Annual blood test except

OGTT (lab) First time:

  • Hospitalisation 24h-48h x

PICC and education Successive IV treatments:

  • Short stay unit admission:

PICC, educaction and discharge (at home). Visits weekly with the CF- team PAC Sputum control Newborn screening program database control Telematical assistance E-Health portal Research Continous learning

Successive visits IV home treatment Others CF-Diagnosis

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My warriors

Carla 7 years old F508del homocygosis Pancreatic insufficiency Neonatal screeening diagnosis PS.A since 05/16

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Lucia 10 years old 1811+1 1,6kbAG / 3272-26>G Pancreatic insufficiency Neonatal screeening diagnosis PS.A since 2007 ABPA since 2015

  • M. Avium

Pancreatitis + Hepatitis

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Xavi 19 years old F508del / Q890X Pancreatic insufficiency Neonatal screening diagnosis SA + PS.A + ABPA + Mycobacterium abcessus Gluten intolerant PAC

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Thank you!