SLIDE 1 Making Measurements Meaningful
Brian J. Zikmund-Fisher, PhD
University of Michigan
Department of Health Behavior & Health Education Department of Internal Medicine Center for Bioethics & Social Sciences in Medicine Health Informatics Program @bzikmundfisher
SLIDE 2 Assumptions In Science Communication
Assumption: People Lack Information
(The Deficit Model)
Assumed Solution: Give them more!
SLIDE 3 Barriers
Language Literacy Numeracy Emotionality of Health Situations Volume of Relevant Information
SLIDE 4
More ≠ Better!
SLIDE 5
Evaluability
SLIDE 6 Good or Bad?
Amend B. Welcome to Jasorassic Park, 1998, p.36.
SLIDE 7 Good or Bad?
Amend B. Welcome to Jasorassic Park, 1998, p.36.
SLIDE 9
Imagine Robert
SLIDE 10 Imagine Robert
Your 10-year risk of cardiovascular disease is:
11.22%
SLIDE 11 “Am I at high risk,
SLIDE 12 Evaluability
Test Results
SLIDE 13
Can Patients Use This?
SLIDE 14
What Is Out of Range?
SLIDE 15
What Is Out of Range?
SLIDE 16 “Am I at high risk,
SLIDE 17 Evaluability
Information
SLIDE 18
Buying a Home…
Radon: 6 pCi/L
SLIDE 19
Drinking Water…
Lead: 7 ppb
SLIDE 20 “Am I at high risk,
SLIDE 21
Problem #1: Numbers
SLIDE 22
Problem #2: Lack of Meaning
SLIDE 23
So now what?
What can we do to help?
SLIDE 24
Step 1: Visual information
SLIDE 25 Robert’s Risk
Created at iconarray.com
SLIDE 26
SLIDE 27 Tables
Zikmund-Fisher BJ, et al. Graphics help patients distinguish between urgent and non-urgent deviations in laboratory test results. Journal of the American Medical Informatics Association 2017;24(3):520-528.
SLIDE 28 Table vs. Number Line
Zikmund-Fisher BJ, et al. Graphics help patients distinguish between urgent and non-urgent deviations in laboratory test results. Journal of the American Medical Informatics Association 2017;24(3):520-528.
SLIDE 29 Lines with More Meaning
Zikmund-Fisher BJ, et al. Graphics help patients distinguish between urgent and non-urgent deviations in laboratory test results. Journal of the American Medical Informatics Association 2017;24(3):520-528.
SLIDE 30 Near-Normal Results vs. Extreme Results
Near-Normal Extreme
Zikmund-Fisher BJ, et al. Graphics help patients distinguish between urgent and non-urgent deviations in laboratory test results. Journal of the American Medical Informatics Association 2017;24(3):520-528.
SLIDE 31 % with No Difference in Perceived Urgency
Platelets
(135 vs 25 x109/L)
ALT
(80 vs 360 U/L)
Creatinine
(2.2 vs 3.4 mg/dl)
Table 26.5 56.3 43.7 Simple Line 17.5 21.3 27.7 Block Line 19.0 20.2 28.7 Gradient Line 15.8 14.8 24.0
Zikmund-Fisher BJ, et al. Graphics help patients distinguish between urgent and non-urgent deviations in laboratory test results. Journal of the American Medical Informatics Association 2017;24(3):520-528.
SLIDE 32
Step 2: Gist-full information
SLIDE 33 Fuzzy Trace Theory
(Brainerd and Reyna, 1995)
Verbatim memory Gist
vs
SLIDE 34 Fuzzy Trace Theory
(Brainerd and Reyna, 1995)
Verbatim memory Gist
What the heck is “gist”?
vs
SLIDE 35
SLIDE 36 Know Your “Commander’s Intent”
Heath & Heath, Made to Stick, 2007
SLIDE 37
Cancer Screening Test Decisions
SLIDE 38
Colorectal Cancer Screening
SLIDE 39
Colorectal Cancer Screening
… at age 50
SLIDE 40 Colorectal Cancer Screening
… at age 50 … vs. at age 75
(with multiple comorbidities)
SLIDE 41 Benefits vs. Harms
Image from study materials for “Promoting Veteran-Centered Colorectal Cancer Screening” (I01 HX001278-01); SD Saini, PI.
SLIDE 42 Gist Processing
Image from study materials for “Promoting Veteran-Centered Colorectal Cancer Screening” (I01 HX001278-01); SD Saini, PI.
SLIDE 43
Setting the Context in Visual Displays
SLIDE 44 Hemoglobin A1c
Unpublished graphic from 1 R01 HS021681, BJ Zikmund-Fisher, Principal Investigator.
SLIDE 45 Same (?!?) Result
Unpublished graphic from 1 R01 HS021681, BJ Zikmund-Fisher, Principal Investigator.
SLIDE 46 Scale Matters
Unpublished graphics from 1 R01 HS021681, BJ Zikmund-Fisher, Principal Investigator.
SLIDE 47
Test Results for Diagnosed Patients
SLIDE 48 Goals for Test Results
Scherer AM, Witteman HO, Solomon J, Fagerlin A, Exe NL, Zikmund-Fisher BJ. Improving understanding of test results by substituting (not adding) goal ranges. Poster presentation to the Society for Medical Decision Making, Vancouver, BC, Canada, October 23, 2016.
SLIDE 49 Goals for Test Results
Scherer AM, Witteman HO, Solomon J, Fagerlin A, Exe NL, Zikmund-Fisher BJ. Improving understanding of test results by substituting (not adding) goal ranges. Poster presentation to the Society for Medical Decision Making, Vancouver, BC, Canada, October 23, 2016.
SLIDE 50 Goals for Test Results
Scherer AM, Witteman HO, Solomon J, Fagerlin A, Exe NL, Zikmund-Fisher BJ. Improving understanding of test results by substituting (not adding) goal ranges. Poster presentation to the Society for Medical Decision Making, Vancouver, BC, Canada, October 23, 2016.
SLIDE 51 Goals for Test Results
Scherer AM, Witteman HO, Solomon J, Fagerlin A, Exe NL, Zikmund-Fisher BJ. Improving understanding of test results by substituting (not adding) goal ranges. Poster presentation to the Society for Medical Decision Making, Vancouver, BC, Canada, October 23, 2016.
SLIDE 52
Test Results for Monitoring
SLIDE 53 Harms
Alanine Aminotransferase (ALT):
80 IU/L
Standard Range: 10-40
SLIDE 54 Showing the Possible Range
Zikmund-Fisher BJ, Scherer AM, Witteman HO, Solomon J, Exe NL, Fagerlin A. Providing harm anchors in visual displays of test results can mitigate patient perceptions of urgency about near-normal values. Journal of Medical Internet Research, 2018.
SLIDE 55 Harm Anchors
Zikmund-Fisher BJ, Scherer AM, Witteman HO, Solomon J, Exe NL, Fagerlin A. Providing harm anchors in visual displays of test results can mitigate patient perceptions of urgency about near-normal values. Journal of Medical Internet Research, 2018.
SLIDE 56 Harm Anchors
“Many doctors are not concerned until here”
Zikmund-Fisher BJ, Scherer AM, Witteman HO, Solomon J, Exe NL, Fagerlin A. Providing harm anchors in visual displays of test results can mitigate patient perceptions of urgency about near-normal values. Journal of Medical Internet Research, 2018.
SLIDE 57 Increased Sensitivity with Harm Anchors
1 2 3 4 5 6
Near Value Extreme Value
Perceived Alarm Simple Harm Anchor
Zikmund-Fisher BJ, Scherer AM, Witteman HO, Solomon J, Exe NL, Fagerlin A. Providing harm anchors in visual displays of test results can mitigate patient perceptions of urgency about near-normal values. Journal of Medical Internet Research, 2018.
SLIDE 58
One Last Example
SLIDE 59 7 7.1 7.2 7.3 7.4 7.5 7.6 7.7 5 10 15 20
Hemoglobin A1c
Percent Months
SLIDE 60 7 7.1 7.2 7.3 7.4 7.5 7.6 7.7 5 10 15 20
Hemoglobin A1c
Percent Months
Central Message: Varies
SLIDE 61 7 7.1 7.2 7.3 7.4 7.5 7.6 7.7 10 20
Months Percent
SLIDE 62 7 7.1 7.2 7.3 7.4 7.5 7.6 7.7 10 20 4 6 8 10 12 10 20
=
?
Months Months Percent Percent
SLIDE 63 7 7.1 7.2 7.3 7.4 7.5 7.6 7.7 10 20 4 6 8 10 12 10 20 2 4 6 8 10 20
=
?
Months Months Months Percent Percent Percent
SLIDE 64 7 7.1 7.2 7.3 7.4 7.5 7.6 7.7 10 20 4 6 8 10 12 10 20 2 4 6 8 10 20
=
?
Months Months Months Percent Percent Percent
Varies!
SLIDE 65 7 7.1 7.2 7.3 7.4 7.5 7.6 7.7 10 20 4 6 8 10 12 10 20 2 4 6 8 10 20
=
?
Months Months Months Percent Percent Percent
Varies! Stable!
SLIDE 66 7 7.1 7.2 7.3 7.4 7.5 7.6 7.7 10 20 4 6 8 10 12 10 20 2 4 6 8 10 20
=
?
Months Months Months Percent Percent Percent
Varies! Stable! High!
SLIDE 67 7 7.1 7.2 7.3 7.4 7.5 7.6 7.7 10 20 4 6 8 10 12 10 20 2 4 6 8 10 20
=
? Scaled to data variations
Months Months Months Percent Percent Percent
Varies! Stable! High!
SLIDE 68 7 7.1 7.2 7.3 7.4 7.5 7.6 7.7 10 20 4 6 8 10 12 10 20 2 4 6 8 10 20
=
? Scaled to data variations Scaled to population variations
Months Months Months Percent Percent Percent
Varies! Stable! High!
SLIDE 69 7 7.1 7.2 7.3 7.4 7.5 7.6 7.7 10 20 4 6 8 10 12 10 20 2 4 6 8 10 20
=
? Scaled to data variations Scaled to population variations Scaled to zero
Months Months Months Percent Percent Percent
Varies! Stable! High!
SLIDE 70 4 5 6 7 8 9 10 11 12 5 10 15 20
Good
Bad?
SLIDE 71 4 5 6 7 8 9 10 11 12 5 10 15 20
Standard Range
Good
Bad?
SLIDE 72 4 5 6 7 8 9 10 11 12 5 10 15 20
Good
Bad?
Target Range for Patients with Type 2 Diabetes
SLIDE 73
My Commander’s Intent
SLIDE 74 “We need to design for the way people ARE, not the way we wish they were”
SLIDE 75 People only process or remember
SLIDE 76
You can’t change this fact!
SLIDE 77
BUT…
SLIDE 78
BUT… You get to choose!
SLIDE 79
Use context to create ONE message based on THEIR needs
SLIDE 80 Thank You!
bzikmund@umich.edu @bzikmundfisher