Making Employment a Reality: Were All Responsible Derek Nord, PhD, - - PowerPoint PPT Presentation

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Making Employment a Reality: Were All Responsible Derek Nord, PhD, - - PowerPoint PPT Presentation

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Making Employment a Reality: Were All Responsible Derek Nord, PhD, FAAIDD Director and Associate Professor Indiana Institute on Disability and Community Indiana University, Bloomington, IN May 1, 2020 http://rwjms.rutgers.edu/boggscenter

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Making Employment a Reality: We’re All Responsible

Derek Nord, PhD, FAAIDD

Director and Associate Professor Indiana Institute on Disability and Community Indiana University, Bloomington, IN

May 1, 2020

http://rwjms.rutgers.edu/boggscenter

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Colleen McLaughlin, MEd

Associate Director The Boggs Center on Developmental Disabilities

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http://rwjms.rutgers.edu/boggscenter/links/COVID-19Resources.html

  • COVID-19 National & State Resources
  • Plain Language and Accessible Information
  • Healthcare & Communication Resources
  • Resources in Support of Physical & Emotional Well-Being and Mental Health
  • Employment & Financial Related Resources

COVID-19 Resources on The Boggs Center Website

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GoToWebinar Control Panel

Handouts

  • Handouts may be downloaded from the

Control Panel.

  • The webinar recording and handouts will also be

posted on The Boggs Center web site next week:

http://rwjms.rutgers.edu/boggscenter/dd_lecture/audio.html

Questions

  • We are planning to have a brief Question and

Answer session at the end of the lecture.

  • In order to ask a question, you have to type it in

the Questions section of the Control Panel.

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Certificates of Attendance for Continuing Education Recognition

To receive a Certificate of Attendance, you must:

Be logged onto the webinar from start to finish and Complete the evaluation at the end of the webinar Certificates will be emailed to attendees who meet these requirements next week

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Making Employment a Reality: We’re All Responsible

Derek Nord, PhD, FAAIDD

Director and Associate Professor Indiana Institute on Disability and Community Indiana University, Bloomington, IN

May 1, 2020

http://rwjms.rutgers.edu/boggscenter

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Derek Nord, PhD, FAAIDD

Director and Associate Professor Indiana Institute on Disability and Community Indiana University, Bloomington, IN

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Making Employment a Reality

WE’RE ALL RESPONSIBLE Derek Nord, Ph.D. Director & Associate Professor Indiana Institute on Disability and Community May 1, 2020 Developmental Disabilities Lecture Series

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

About me

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

My goals for today

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Plan for Today

  • Foundations of systems thinking

and functioning

  • Historical context
  • Systems of support
  • Focus on individuals and

families

  • Policy
  • Wrap and Q/A
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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Poll #1

Who are you representing today (choose one)?

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

International Classification of Functioning

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

International Classification of Functioning 35 yrs, F, HS, African American Down Syndrome Cognitive impairment Difficulty learning & remembering Unable to get & keep a job Limited supports, guardian

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A Movement Grounded in History

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

From Nothing to Something: Facility Work

A MOVEMENT GROUNDED IN HISTORY

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Laying the Foundation for Individual Employment

  • Shifts in training & perceptions of

people with IDD

  • Supported employment first defined in

law: DD Act 1984

  • Subsequent laws strengthen
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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Americans with Disabilities (ADA) Act - 1990

A MOVEMENT GROUNDED IN HISTORY

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

*Language

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Disability Rights

YOUNG ADULTS & FAMILIES MATTER

  • “Many might think it is a tragedy to acquire or be diagnosed with a

disability; it isn’t. The tragedy is when we are denied our civil rights, our dignity and our right to choice. This is what fuels our righteous efforts.” - ADAPT

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

A Movement Moves – Core Values are Constant

  • 1. Innate strengths and capacity.
  • 2. Disability does not need fixing.
  • 3. Separate is never equal.
  • 4. Life in the community is paramount.

A MOVEMENT GROUNDED IN HISTORY

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Employment Remains Elusive

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Poverty 18-34 yrs 35-64 yrs Disability 19.9% 22.5% No disability 9.9% 5.9% Unemployment Disability 12.5% No disability 4.5% Not in Labor Force Disability 57.2% No disability 17.0%

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Systems of support

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Thought Exercise #1

  • 1. Take a moment to imagine a person you know with a significant disability.
  • 2. Get specific in your mind.
  • 3. Can he/she complete complex tasks?
  • 4. Can he/she work in an individual job in the community?

SYSTEMS OF SUPPORT

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

POLL #2

Can the person you imagined work an individual Job in the community?

SYSTEMS OF SUPPORT

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Movie time!

Thanks to Marc Gold and Associates for access to the video

  • Terminology from the 1970s
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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Reactions?

How does this challenge how you think and work?

SYSTEMS OF SUPPORT

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Employment Planning

1.00 0.59 0.35 0.21 0.12 0.00 0.20 0.40 0.60 0.80 1.00 1.20 None Mild Moderate Severe Profound

Odds

Odds of Employment Goal

  • No plan – no service.
  • Major disparities.
  • IDD
  • Communication
  • Systems are deciding

who deserves.

Nord, et al, 2018

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Employment Planning

SYSTEMS OF SUPPORT

Individual Job in Community Employment Goal

11X More Likely*

Nord, et al, 2018

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Broadening Access to High Impact Practices

Job Search & Placement 4.0X Job Search, Placement, & OJS 16X Job Search 1.4X

Nord & Hepperlan, 2016

All significant at p < .001

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Inequities across the lifespan

0.06 0.07 0.08 0.09 0.1 0.11 0.12 0.13 0.14 18 20 22 24 26 28 30 32 34 36 38 40 42 44 46 48 50 52 54 56 58 60 62 64 Odds of individual job in community Age

Odds = 1 in 17 Odds = 1 in 7

Nord, et al, in-press

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

0.04 0.06 0.08 0.1 0.12 0.14 0.16 18 20 22 24 26 28 30 32 34 36 38 40 42 44 46 48 50 52 54 56 58 60 62 64 Odds of individual job in community Age Low Mean High

State Investments Matter

Odds = 1/6

Nord, et al, in-press

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Thought Exercise #2

Take a moment to answer a question:

Can everyone work? Why or why not?

SYSTEMS OF SUPPORT

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

POLL #3 + chat

Can everyone work? Use the Question box to briefly clarify your perspective.

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

All Means ALL!

If you don’t believe all people can work then:

  • You’re part of a systemic problem; and,
  • You might be in the wrong field.

SYSTEMS OF SUPPORT

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Individuals & families matter

Expecting More and Doing Better

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Side Note and Apology: The System

  • MDs
  • Social workers
  • Psychiatrists
  • Speech therapists
  • Job developers
  • Teachers
  • Personal Care

Assistants

  • Financial managers
  • Job coaches
  • Occupational therapists
  • Nutritionists
  • Paraprofessionals
  • Researchers
  • Residential supports
  • Vocational rehab.

counselors

  • Nurse practitioner
  • In-home support

professionals

  • Habilitation specialists
  • Certified nursing assistants
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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Bombarded with Decisions

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Recall this result

YOUNG ADULTS & FAMILIES MATTER

Individual Job in Community Employment Goal

11X More Likely*

Nord, et al, 2018

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Guardianship affects this pathway

YOUNG ADULTS & FAMILIES MATTER

Job in Community Employment Goal 11X More Likely*

Nord, et al, 2018 25% Less Likely*

Guardian

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Hamre & Nord, 2019

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

0.5 1 1.5 2 2.5 3 3.5 Odds

Odds of Employment

Education

  • Higher ed – higher
  • dds.
  • PSE is a reality
  • Expect more
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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Public Benefits

Don’t miss out!

Research has shown

  • Skill development
  • Relationships
  • Self-determination
  • Quality of life

$$

Choice- making Lonely Poverty Skills

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Don’t fear: It’s not rocket science

  • Don’t wait
  • Have a vision and a plan
  • Families can make it happen
  • Take the reigns!

Job search Customized employment Career planning Discovery Job placement Job tryouts Carving Self-employment

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Looking outside of formal systems

YOUNG ADULTS & FAMILIES MATTER

Esri, 2014

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Rounded Life vs. Service Life

YOUNG ADULTS & FAMILIES MATTER

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Risk and Human Development

YOUNG ADULTS & FAMILIES MATTER

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Remarkable times

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Poll #4

How would you rate your state in employment policy for people with disabilities?

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Employment First Across the Country

REMARKABLE TIMES

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Employer-Side Tax Incentives

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

The Enforcer

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Must not take progress for granted.

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Opportunities for the Taking

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

We all have responsibility in this!

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Presume Competence and Capacity & Demand Professionals to do the Same

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Have a Vision for Employment & Set High Expectations

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Advocate & Fight When You Face Resistance

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Don’t Hesitate to Get Help

  • 1. The Boggs Center
  • 2. New Jersey Assoc. of People Supporting Employment First (APSE)
  • 3. The Arc of NJ
  • 4. Many, many more allies locally and nationally

REMARKABLE TIMES

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

“Opportunity always comes accompanied by… three fundamental obligations. The first obligation implied in opportunity is that you must seize it. You reach out to that opportunity, take in your hands and mold it into a work that brings value to

  • thers. To do otherwise is a not just a waist, but a crime against the human spirit.

Squandering what the rest of the world covets is not only foolish. It is immoral. The second obligation with opportunity is that you must live the opportunity. You must carry it on your back all day long… Because even though opportunity, much like freedom itself is born only out of an ideal, it is nurtured only by action. Without action, opportunity and freedom shrivel and fade to a tragic and slow death. Finally the third obligation which inherently comes with opportunity is that you must defend it.“ Robert C. Goizueta

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INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

How will you seize this opportunity?

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THANK YOU! Derek Nord, Ph.D. Director & Associate Professor dnord@Indiana.edu 812-855-7102

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&

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Certificates of Attendance for Continuing Education Recognition

To receive a Certificate of Attendance, you must:

Be logged onto the webinar from start to finish and Complete the evaluation at the end of the webinar Certificates will be emailed to attendees who meet these requirements next week

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Stay on your screen, and if prompted, click CLOSE for the evaluation to pop up. Thank you for attending and completing the evaluation.

Evaluation