Making Employment a Reality: Were All Responsible Derek Nord, PhD, - PowerPoint PPT Presentation

Making Employment a Reality: We’re All Responsible Derek Nord, PhD, FAAIDD Director and Associate Professor Indiana Institute on Disability and Community Indiana University, Bloomington, IN May 1, 2020 http://rwjms.rutgers.edu/boggscenter

Colleen McLaughlin, MEd Associate Director The Boggs Center on Developmental Disabilities

COVID-19 Resources on The Boggs Center Website http://rwjms.rutgers.edu/boggscenter/links/COVID-19Resources.html • COVID-19 National & State Resources • Plain Language and Accessible Information • Healthcare & Communication Resources • Resources in Support of Physical & Emotional Well-Being and Mental Health • Employment & Financial Related Resources

GoToWebinar Control Panel Handouts • Handouts may be downloaded from the Control Pane l. • The webinar recording and handouts will also be posted on The Boggs Center web site next week: http://rwjms.rutgers.edu/boggscenter/dd_lecture/audio.html Questions • We are planning to have a brief Question and Answer session at the end of the lecture. • In order to ask a question, you have to type it in the Questions section of the Control Panel .

Certificates of Attendance for Continuing Education Recognition To receive a Certificate of Attendance, you must: Be logged onto the webinar from start to finish and Complete the evaluation at the end of the webinar Certificates will be emailed to attendees who meet these requirements next week

Making Employment a Reality: We’re All Responsible Derek Nord, PhD, FAAIDD Director and Associate Professor Indiana Institute on Disability and Community Indiana University, Bloomington, IN May 1, 2020 http://rwjms.rutgers.edu/boggscenter

Derek Nord, PhD, FAAIDD Director and Associate Professor Indiana Institute on Disability and Community Indiana University, Bloomington, IN

Making Employment a Reality WE’RE ALL RESPONSIBLE Derek Nord, Ph.D. Director & Associate Professor Indiana Institute on Disability and Community May 1, 2020 Developmental Disabilities Lecture Series

About me INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

My goals for today INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

• Foundations of systems thinking and functioning • Historical context • Systems of support Plan for Today • Focus on individuals and families • Policy • Wrap and Q/A

Poll #1 Who are you representing today (choose one)? INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

International Classification of Functioning INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

International Classification of Functioning Down Syndrome Difficulty learning Cognitive Unable to get & & remembering impairment keep a job Limited supports, 35 yrs, F, HS, guardian African American INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

A Movement Grounded in History

A MOVEMENT GROUNDED IN HISTORY From Nothing to Something: Facility Work INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Laying the Foundation for Individual Employment • Shifts in training & perceptions of people with IDD • Supported employment first defined in law: DD Act 1984 • Subsequent laws strengthen INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

A MOVEMENT GROUNDED IN HISTORY Americans with Disabilities (ADA) Act - 1990 INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

*Language INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

YOUNG ADULTS & FAMILIES MATTER Disability Rights • “Many might think it is a tragedy to acquire or be diagnosed with a disability; it isn’t. The tragedy is when we are denied our civil rights, our dignity and our right to choice. This is what fuels our righteous efforts.” - ADAPT INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

A MOVEMENT GROUNDED IN HISTORY A Movement Moves – Core Values are Constant 1. Innate strengths and capacity. 2. Disability does not need fixing. 3. Separate is never equal. 4. Life in the community is paramount. INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Employment Remains Elusive INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Poverty 18-34 yrs 35-64 yrs Disability 19.9% 22.5% No disability 9.9% 5.9% Unemployment Disability 12.5% No disability 4.5% Not in Labor Force Disability 57.2% No disability 17.0% INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Systems of support

SYSTEMS OF SUPPORT Thought Exercise #1 1. Take a moment to imagine a person you know with a significant disability. 2. Get specific in your mind. 3. Can he/she complete complex tasks? 4. Can he/she work in an individual job in the community? INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

SYSTEMS OF SUPPORT POLL #2 Can the person you imagined work an individual Job in the community? INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Movie time! Thanks to Marc Gold and Associates for access to the video • Terminology from the 1970s INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

SYSTEMS OF SUPPORT Reactions? How does this challenge how you think and work? INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Employment Planning • No plan – no service. 1.20 Odds of Employment Goal 1.00 1.00 • Major disparities. 0.80 • IDD Odds • Communication 0.60 0.59 0.40 0.35 • Systems are deciding 0.21 0.20 who deserves. 0.12 0.00 None Mild Moderate Severe Profound Nord, et al, 2018 INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

SYSTEMS OF SUPPORT Employment Planning 11X Individual Employment More Job in Goal Community Likely* Nord, et al, 2018 INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Broadening Access to High Impact Practices Job Search, Job Search Job Search Placement, & & Placement OJS 1.4X 4.0X 16X Nord & Hepperlan, 2016 All significant at p < .001 INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Inequities across the lifespan 0.14 Odds of individual job in community 0.13 0.12 0.11 0.1 0.09 0.08 Odds = 1 in 17 Odds = 1 in 7 0.07 0.06 18 20 22 24 26 28 30 32 34 36 38 40 42 44 46 48 50 52 54 56 58 60 62 64 Age Nord, et al, in-press INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

State Investments Matter Odds = 1/6 0.16 Odds of individual job in community 0.14 0.12 0.1 0.08 Low Mean High 0.06 0.04 18 20 22 24 26 28 30 32 34 36 38 40 42 44 46 48 50 52 54 56 58 60 62 64 Age Nord, et al, in-press INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

SYSTEMS OF SUPPORT Thought Exercise #2 Take a moment to answer a question: Can everyone work? Why or why not? INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

POLL #3 + chat Can everyone work? Use the Question box to briefly clarify your perspective. INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

SYSTEMS OF SUPPORT All Means ALL! If you don’t believe all people can work then: • You’re part of a systemic problem; and, • You might be in the wrong field. INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Expecting More and Doing Better Individuals & families matter

Side Note and Apology: The System • Occupational therapists • MDs • Nutritionists • Social workers • Paraprofessionals • Psychiatrists • Researchers • Speech therapists • Residential supports • Job developers • Vocational rehab. counselors • Teachers • Nurse practitioner • Personal Care • In-home support Assistants professionals • Financial managers • Habilitation specialists • Job coaches • Certified nursing assistants INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

Bombarded with Decisions INDIANA INSTITUTE ON DISABILITY AND COMMUNITY

YOUNG ADULTS & FAMILIES MATTER Recall this result 11X Individual Employment More Job in Goal Community Likely* Nord, et al, 2018 INDIANA INSTITUTE ON DISABILITY AND COMMUNITY INDIANA INSTITUTE ON DISABILITY AND COMMUNITY