Lililwan P Projec ject - FASD D Prev evalen ence e study i in - - PowerPoint PPT Presentation

▶
lililwan p projec
SMART_READER_LITE
LIVE PREVIEW

Lililwan P Projec ject - FASD D Prev evalen ence e study i in - - PowerPoint PPT Presentation

Apr 26, 2023 181 likes •384 views

Lililwan P Projec ject - FASD D Prev evalen ence e study i in the F Fitzroy V Valle lley Our J r Journ rney In 2007 l 7 leader ershi ship s shown by by local Aboriginal w women en in o our c communi unity l lobbi bied

slide-1
SLIDE 1

Lililwan P Projec ject - FASD D Prev evalen ence e study i in the F Fitzroy V Valle lley

slide-2
SLIDE 2

Our J r Journ rney

  • In 2007 l

7 leader ershi ship s shown by by local Aboriginal w women en in o

  • ur c

communi unity l lobbi bied d for r restrictions s on t the s he sale o e of ful ull s stren ength t take a e away alcoh

  • hol
  • l.
  • The a

he alcohol r restrictions w were e impl plem emented in 2 n 2007, 7, i it was then hen our c community bec ecame a e aware e of a a cond ndition t tha hat t thr hrea eaten ens t the q he qua uality of

  • f l

lif ife for

  • r p

peo eople i in ou

  • ur

community. y.

  • In 2008 T

8 The he Marulu S Strateg egy w was devel eloped ped to a

  • address Pr

Prevention

  • n, D

Diagnos

  • sis and

Support for tho hose a se affec ected ed by by FASD.

  • In O

October er 2009 9 The L he Lililwan P Projec ect FASD p D prevalen ence s stud udy was i ini nitiated in o n our commun unity, b being ng the f first t to have ve e ever b been c n conduc ducted d in A Australia and a a world first p popul ulation b n based d study dy.

slide-3
SLIDE 3

Marulu u Strategy P Partne ners

  • Nindilingarri Cultural Health Services
  • Telethon Institute for Kids
  • Patches Pediatric Child Health and

Education services

  • Department of Education
  • University of Sydney
  • George Institute for Global Health
slide-4
SLIDE 4

What is FA FASD?

slide-5
SLIDE 5

Fea eatures es of

  • f FASD

SD

slide-6
SLIDE 6

Fea eatures es of

  • f FASD

SD

Smooth Philtrum Thin upper lip. Small eye openings

slide-7
SLIDE 7

Fea eatures es of

  • f FASD

SD

slide-8
SLIDE 8

Fea eatures es of

  • f FASD

SD

slide-9
SLIDE 9

Ho How to diagn gnos

  • se F

e FASD SD?

Mul ulti Disc sciplinary T Team:

  • Paedia

iatric icia ian

  • Occupa

pationa nal T Therapi pist

  • Speech T

h Ther erapi pist

  • Psychol
  • log
  • gist
slide-10
SLIDE 10

Fet etal Alcohol S Syndrom

  • me (FAS)

+ +

Growth Restriction Three facial features. Brain Abnormality

slide-11
SLIDE 11

Partial Fetal A Alcoh

  • hol
  • l Syndrom
  • me

e (P (P-FA FAS) +

Two facial features Brain Abnormality

slide-12
SLIDE 12

Neurode developm pmental D Disorde der- Alcohol Expo posed (ND-AE AE)

Brain Abnormality

slide-13
SLIDE 13

What did w we d do?

  • Located all children born in 2002 or 2003 and

currently living in the Fitzroy Valley

  • Interviewed all parents or carers
  • Asked about pregnancy and birth, health,

development and early life trauma

  • Reviewed health records
  • Information from most (95%) families
  • Each child had full medical check in addition to

FASD assessments.

slide-14
SLIDE 14

Stage 1 – Results from Parent /Carer interviews

47% 5% 3% 45%

Alcohol use in pregnancy by risk category:

Did not drink Drank low risk Drank risky Drank high risk

slide-15
SLIDE 15

Results of Lililwan Project- FASD Prevalence Study

1 in 5 children with FASD

slide-16
SLIDE 16

Results of Lililwan Project – FASD Prevalence study

1 in 8 children with FAS

slide-17
SLIDE 17

Benefits for r children and families..

  • A F

Full ll Medic ical c al check

  • A FASD D

Dia iagnosis is an and Managem emen ent p plan

  • Referral's to

to a appropriate e hea ealth th s ser ervices

slide-18
SLIDE 18

Benefits for r our c r community ty…

  • Clinical guidelines – Diagnosis and

care for those affected by FASD.

  • Marulu Unit – Advocacy and

Support for children and families.

  • Collaborative Circle of Care – to

strengthen the capacity of services to respond to the needs of children and families.

slide-19
SLIDE 19

Acknowled edgem emen ents

June Oscar Maureen Carter Elizabeth Elliott James Fitzpatrick Jane Latimer Meredith Kefford Lorian Hayes Carolyn Hartness Marmingee Hand Emily Carter Stanley Shaw Rhonda Shandley Marilyn Oscar Emily Fitzpatrick Gemma Sinclaire Natalie Davey Annette Kogolo Harry Yungabun Barbara Lucas Heather Carmichael-Olson Claire Salter Robyn Doney Genevieve Hawkes Julianne Try Sharon Eadie Charlie Schmidt Samantha Kaiser Raewyn Mutch John Boulton Carol Bower Alex Martiniuk Juliette O’Brien

slide-20
SLIDE 20

Acknowled edgem emen ents

Department of Health and Ageing Department of Families, Housing, Community Services & Indigenous Affairs National Health and Medical Research Council The Australian Human Rights Commission Yajillara Trust Ashurst Australia Save the Children Foundation for Alcohol Research and Education