Kingshuk Pal (GP and HeLP-Diabetes Technical Lead) Helen Gibson - PowerPoint PPT Presentation

Kingshuk Pal (GP and HeLP-Diabetes Technical Lead) Helen Gibson (Diabetes Nurse Consultant – Clinical Lead for HeLP- Diabetes)

Outline of presentation • Background and development of HeLP-Diabetes • Data on outcomes so far • Feedback from users • Outline of website and structured education programme • Questions

Background • Good self-management is key to better outcomes in long- term conditions • Uptake of face-to-face education can be low • NIHR Programme Grant for Applied Health Research: HeLP-Diabetes website  £2m over 5 years; Multidisciplinary group • Additional development of “ HeLP- Diabetes: Starting Out”: online structured education

Management of a long term condition Medical Management • Taking medicines, working with professionals, adopting healthy behaviours Emotional Management • Guilt, anger, shame, stigma, despair, anxiety Role Management • Adapt to changes in social roles and relationships caused by chronic illness Corbin and Strauss: Unending Work and Care. 1988

Evidence of effectiveness? Source Intervention Evidence Number of patients RCT HeLP-Diabetes -0.2% reduction in 374 website HbA1c at 12 months Pilot study HeLP-Diabetes Reduced diabetes 20 website+ facilitator related distress (PAID) KPI data HeLP-Diabetes Reduced diabetes 25 Starting Out related distress Structured education (4 point improvement in PAID scores) Improved self- efficacy (10 point improvement in DSMSE scores)

Quotes about HeLP- Diabetes….. “To somebody new to diabetes it’s excellent, all “To somebody new to diabetes it’s excellent, all the questions are answered and there are all the questions are answered and there are all kinds of help available.” (Patient) kinds of help available.” (Patient) “Yeah it’s all there for you if you want it and you “Yeah it’s all there for you if you want it and you don’t have to wait to go and see a doctor, you don’t have to wait to go and see a doctor, you don’t have to wait for your annual appointment” don’t have to wait for your annual appointment” (Patient) (Patient) “I immediately thought this is fantastic, what a “I immediately thought this is fantastic, what a brilliant service to be able to offer them, yes. It brilliant service to be able to offer them, yes. It looked so comprehensive……it was very easy looked so comprehensive……it was very easy to navigate” (DSN, Female) to navigate” (DSN, Female)

https://www.help-diabetes.org.uk/ • Home page without being logged in

https://www.help-diabetes.org.uk/understanding- diabetes/how-my-body-can-be-affected/heart-and- blood-vessels

https://www.help-diabetes.org.uk/staying- healthy/eating-drinking

https://www.help-diabetes.org.uk/staying- healthy/physical-activity/exercise-videos

https://www.help- diabetes.org.uk/managing-my-feelings

https://www.help-diabetes.org.uk/my- health-record

https://www.help-diabetes.org.uk/news- and-research

https://www.help-diabetes.org.uk/forum- help/forum

Summary of benefits Patients:  Convenient and accessible, anonymous  Emotional and peer support  Clinical improvements/patient empowerment Health professionals:  Improvement in clinical outcomes  More engaged patients  Teach patients about goal setting/action planning and care plans NHS:  Increasing uptake of structured education  Financial savings with better self-management and lower per-user costs

Thank you! • Any questions? • https://www.help-diabetes.org.uk/ • http://www.helpdigitalcic.org.uk/