KernPaeP A Web-Based Pediatric Palliative Documentation System for - - PowerPoint PPT Presentation

KernPaeP – A Web-Based Pediatric Palliative Documentation System for Home Care

Tobias Hartz, Dipl. Math. Medical Informatics and Biomathematics University Clinics Muenster

Background Information: Palliative Care and Scenario

• Pediatric Palliative Home Care
• ~ 400 children each year (in Germany)
• SA(P)PV – specialized (pediatric) palliative care in the community
• PCT – palliative care teams
• SAP(P)V is enforced by law since April 2007 (in Germany)
• Scenario (Needs)
• new SAPPV structures
• health providers with different professions, different institutions

involved

• exchange of information between health providers essential
• immediate access to newest patient data needed
• valid data for scientific research (data standards)

Background Information: Scenario

Palliative home care

Pastor Physio- therapiest Pharmacy Medical & Home Health Care Supplies Ambulant Hospice Service Ambulant Nursing Service Family doctor SAPPV Patient & Family

Background Information: Solution to support PCT

• Solution (& our goal)
• comprehensive documentation in digital form
• data accessible by web browser for pediatric palliative patients

receiving treatment at home

• on- and offline solution for documentation at site

helps saving time and improving the quality of documentation

Background Information: Preliminary Work

• Preliminary Work
• PATE Project
• 2001 – 2004 (project of the German Cancer Aid)
• based on HOPE (Hospiz- und Palliativ-Erfassung Standarddokumentation)
• Implementation of an Access based documentation tool

(KernPäP)

• ongoing patient documentation
• evaluation of patient documentation data

Methods: Concept

• Project plan
• 2 year funding by the Krupp-Stiftung
• cooperation with PCTs of Münster, Datteln & Dresden
• project start April 2008
• Prerequisites
• employment of most current techniques, in terms of security
• separation of identifying and medical data (Data security concept of

the German TMF e.V.)

• being reviewed by local governmental authority (data protection
• fficer)
• Goal
• implementation of a web-based KernPäP system

Methods: 2 year timeline

• So far
• evaluation of existing data
• preparation of data security concept
• implementation of web-based documentation system
• own MVC infrastructure (PHP, Smarty Template Engine, SQL Database)
• testing
• Now
• productive system of online version (October 2009)
• Ahead
• implementation of an offline solution
• data synchronization

Methods: Online version

• KernPäP – Online Systems
• consists of 70 different forms
• structure
• basic patient data
• patient data at admission
• patient history
• assessment

medical | care | psychosocial

• treatment
• time registration (with reminder)
• closing

Methods: Online version

• KernPäP – Online Systems
• medication plan (printout for parents)
• individual printsheet for each PCT
• hard and soft input check
• patient administration
• administration frontend for …
• user
• team
• roles
• medication
• form items
• ICD 10

(International Classification of Diseases)

Online Solution: Screenshot – Symptoms

Online Solution: Screenshot – Nursing care plan

Data Security Concept: Data Classes handled in KernPäP

KernPäP handles different Data Classes:

• Patient Identification Data (IDAT)
• Name
• Date of birth
• Sex
• (…)
• Medical/Diagnostic Data (MDAT)
• Assessment (Symptoms, pain localization, …)
• Medication
• (…)
• Administration Data (ADAT)
• Role Model, Access Matrix, (…)

Data Security Concept: Maximizing Privacy by Separation of Data, as proposed by the German TMF society

• Technical concept will be introduced by Dr. Michael Spitzer on Wednesday

(Oral Paper Session 35. Privacy and Security: Securing a Web-Based Teleradiology Platform According to German Law and “Best Practices”.)

Methods: Offline documentation & synchronization

• Documentation at site
• small net books with surf sticks
• offline documentation possible (only current history & base data)
• local server with secured SQL-Database
• Data synchronization
• insert history data in central data base
• user is informed by conflicting data (only base data)

Perspective: Goal

• First PCTs using KernPäP in October
• Workshops for interested PCTs in November
• Yearly fee applies for PCTs
• Add-ons (features for a 3rd year)
• comprehensive user-role-access management
• automatic evaluation
• Enhancements
• Goal: KernPäP as a nationwide accepted quality assurance instrument

Last but not least: Contact information

Thanks for your interest Questions? Contact: Tobias Hartz (hartz@imfl.de) Medical Informatics and Biomathematics University Clinics Muenster