KernPaeP A Web-Based Pediatric Palliative Documentation System for - PowerPoint PPT Presentation

Tobias Hartz, Dipl. Math. Medical Informatics and Biomathematics University Clinics Muenster KernPaeP – A Web-Based Pediatric Palliative Documentation System for Home Care

Background Information: Palliative Care and Scenario  Pediatric Palliative Home Care  ~ 400 children each year (in Germany)  SA(P)PV – specialized (pediatric) palliative care in the community  PCT – palliative care teams  SAP(P)V is enforced by law since April 2007 (in Germany)  Scenario (Needs)  new SAPPV structures  health providers with different professions, different institutions involved  exchange of information between health providers essential  immediate access to newest patient data needed  valid data for scientific research (data standards)

Background Information: Scenario Palliative home care SAPPV Family Pastor doctor Patient Ambulant Physio- & Nursing therapiest Family Service Ambulant Hospice Pharmacy Service Medical & Home Health Care Supplies

Background Information: Solution to support PCT  Solution (& our goal)  comprehensive documentation in digital form  data accessible by web browser for pediatric palliative patients receiving treatment at home  on- and offline solution for documentation at site helps saving time and improving the quality of documentation

Background Information: Preliminary Work  Preliminary Work  PATE Project  2001 – 2004 (project of the German Cancer Aid)  based on HOPE (Hospiz- und Palliativ-Erfassung Standarddokumentation)  Implementation of an Access based documentation tool (KernPäP)  ongoing patient documentation  evaluation of patient documentation data

Methods: Concept  Project plan  2 year funding by the Krupp-Stiftung  cooperation with PCTs of Münster, Datteln & Dresden  project start April 2008  Prerequisites  employment of most current techniques, in terms of security  separation of identifying and medical data (Data security concept of the German TMF e.V.)  being reviewed by local governmental authority (data protection officer)  Goal  implementation of a web-based KernPäP system

Methods: 2 year timeline  So far  evaluation of existing data  preparation of data security concept  implementation of web-based documentation system  own MVC infrastructure (PHP, Smarty Template Engine, SQL Database)  testing  Now  productive system of online version (October 2009)  Ahead  implementation of an offline solution  data synchronization

Methods: Online version  KernPäP – Online Systems  consists of 70 different forms  structure  basic patient data  patient data at admission  patient history  assessment medical | care | psychosocial  treatment  time registration (with reminder)  closing

Methods: Online version  KernPäP – Online Systems  medication plan (printout for parents)  individual printsheet for each PCT  hard and soft input check  patient administration  administration frontend for …  user  team  roles  medication  form items  ICD 10 (International Classification of Diseases)

Online Solution: Screenshot – Symptoms

Online Solution: Screenshot – Nursing care plan

Data Security Concept: Data Classes handled in KernPäP KernPäP handles different Data Classes:  Patient Identification Data (IDAT)  Name  Date of birth  Sex  (…)  Medical/Diagnostic Data (MDAT)  Assessment (Symptoms, pain localization, …)  Medication  (…)  Administration Data (ADAT)  Role Model, Access Matrix, (…)

Data Security Concept: Maximizing Privacy by Separation of Data, as proposed by the German TMF society  Technical concept will be introduced by Dr. Michael Spitzer on Wednesday (Oral Paper Session 35. Privacy and Security: Securing a Web-Based Teleradiology Platform According to German Law and “Best Practices”.)

Methods: Offline documentation & synchronization  Documentation at site  small net books with surf sticks  offline documentation possible (only current history & base data)  local server with secured SQL-Database  Data synchronization  insert history data in central data base  user is informed by conflicting data (only base data)

Perspective: Goal  First PCTs using KernPäP in October  Workshops for interested PCTs in November  Yearly fee applies for PCTs  Add-ons (features for a 3 rd year)  comprehensive user-role-access management  automatic evaluation  Enhancements  Goal: KernPäP as a nationwide accepted quality assurance instrument

Last but not least: Contact information Thanks for your interest Questions? Contact: Tobias Hartz (hartz@imfl.de) Medical Informatics and Biomathematics University Clinics Muenster