Faculty Disclosure UPDATE ON CALIFORNIA'S INTELLECTUAL AND DEVELOPMENTAL DISABILITIES • I have no financial relationships to disclose. SYSTEMS AND SERVICES • I have no conflicts of interest to disclose. • I will not promote any commercial products or services. (PART 2 – GOLDEN GATE REGIONAL CENTER) Developmental Disabilities: Update for Health Professionals University of California, San Francisco March 2 nd , 2017 Overview Introduction: The Fifty Year Anniversary 1) (From Selma to San Francisco & LA …) What is the Lanterman “Promise”? 2) Health Care Support within a Social Justice 3) INTRODUCTION Framework The Fifty Year Anniversary (From Selma to San Golden Gate Regional Center: Current Francisco & LA …) 4) Projects & New Directions
“Tell them about the Dream, Martin” - Mahalia Jackson � Civil Rights Act of 1964 � Selma Bus Strike & March “I have a dream that my four little Social � 1964 Democratic Convention Justice children will one day live in a nation � The March on Washington Events & where they will not be judged by � Stonewall Riots Movements the color of their skin but by the of the 1960s � Second Wave of Feminism content of their character.” & 1970s � Native American Rights � Independent Living Movement - Dr. Martin Luther King, Jr. The March On Washington, August 28 th , 963 Disability & Identity – What’s in a Phrase? WHAT IS THE Traditional Language Person-First Language LANTERMAN “PROMISE”? � Disabled � Person with Person a Disability � Autistic � Person with Person Autism
The Lanterman Act (1969): The Lanterman Act Promise California’s DD System What the Law Says… What it Did… “ The State of California accepts a responsibility for 4501. The State of California persons with developmental disabilities and an obligation • Entitlement to Services – accepts a responsibility for to them which it must discharge. persons with developmental Only Law of its Kind in the disabilities and an obligation to United States them which it must discharge... • Establishes Regional Affecting hundreds of thousands of children and adults The complexities of providing Centers directly, and having an important impact on the lives of services and supports to persons with developmental disabilities their families, neighbors, and whole communities, • Establishes Area Boards requires the coordination of developmental disabilities present social, medical, services of many state (SCDD Regional Offices) departments and community economic, and legal problems of extreme importance.” • Establishes the Individual agencies to ensure that no gaps occur in communication or Program Plan provision of services and supports - Welfare and Institutions Code 4500 The Lanterman Act: The Lanterman Act: MEETING THE NEEDS AND CHOICES APPROXIMATING THE PATTERN OF EVERYDAY LIVING What the Law Says… What it Means… What the Law Says… What it Means… Services and supports should be An array of services and • Approximate the pattern • Needs and Choices available to enable persons with supports should be developmental disabilities to of everyday living established which is approximate the pattern of • Regardless of Age sufficiently complete to meet • Participate in Decision for everyday living available to the needs and choices of people without disabilities of the Education, Employment • Regardless of each person with same age. developmental disabilities, and Leisure Time Degree of Disability In providing these services, regardless of age or degree • Pursuit of their Own consumers and their families, when of disability, and at each • Integration into the appropriate, should participate in stage of life and to support Personal Future decisions affecting their own their integration into the Mainstream of • Person-Centered lives, including … the way in mainstream life of the which they spend their time, community . Planning and Thinking Community Life including education, employment, and leisure…”
Health Care within a Social Justice Framework • Our History: The “Medical Model” wanting to “fix” individuals, make HEALTH CARE WITHIN A SOCIAL them as “normal” as possible JUSTICE FRAMEWORK • Our History: Human service professionals, echoing doctors, “diagnosing and treating” individuals Health Care within a Social Justice Framework Health Care within a Social Justice Framework • Individuals get to be experts about themselves, about their feelings, Our Trajectory: From the their bodies, their minds “Medical Model” To “Person Centered Thinking”….or, to • Needs vs. Aspirations “Nothing About Us Without Us” • Listening to the people we serve
Health Care within a Social Justice Framework • The Intersection of Developmental GOLDEN GATE REGIONAL Disabilities and Mental Health issues CENTER: CURRENT PROJECTS and services & NEW DIRECTIONS • Disability Rights Education Defense Fund’s (DREDF’s) “HealthCare Stories” Golden Gate Regional Center From “We’re Here to Speak for Justice” Current Projects & New Directions “In 1966, two pilot regional centers were • A World Without Developmental Centers established at Childrens Hospital of Los – The Sonoma Closure Angeles and Aid for Retarded Children in San Francisco . The 1965-66 budget for the two regional centers was $966,386. They served a • The Agnews Story, SM Health Plan and total of 559 individuals in the first year.” Puente Clinic [For the entire state system, this number is now over • Improving on the “Safety Net” – Serving 300,000 individuals served in CA and DDS’ budget is Individuals with Complex and over $ 6.7 Billion. For GGRC alone, we now serve Challenging Needs in the Community nearly 9000 individuals with a budget of $284 Million]
Golden Gate Regional Center Golden Gate Regional Center Current Projects & New Directions Current Projects & New Directions • The CMS “Final Rule” • Housing/Living Support – Seeing • The Settings Rule Housing as a component of Health • Person Centered Thinking Care • Community Engagement • Employment Opportunities/Support • Disparity Projects (Promotora, Radio) • HCBS Compliance projects • Measuring Individuals’ Experience • Measuring Impact, Outcomes, and Health & • Self Determination – choosing Wellness in more dispersed, integrated alternative therapies settings Golden Gate Regional Center Golden Gate Regional Center Current Projects & New Directions Current Projects & New Directions • GGRC Strategic Planning/ Roadmap 2020 • Health Advocacy Services The Task Forces • Employment & Engagement • Community Living (Housing/Residential Support) • Evolution of Early Start • The CART Model • Quality Systems and Services • Self Determination • Community Inclusion (Educating “Public Responders”) • Inclusive Transportation • Effective Health Supports
Golden Gate Regional Center Questions? Current Projects & New Directions Roadmap Taskforce Recommendations on Health Care • Provide Access to Primary Care, Dental, Therapists and Behavioral Health Services • Support “Paramedical” Services – e.g., Medication Administration or Assistance with Tube Feeding Eric Zigman • Identify and Address Health, Wellness and Executive Director Medication Issues Golden Gate Regional Center • Provide Information on Supported Health Phone: 415-546-9222 Care Decision Making Email: ezigman@ggrc.org Relevant Links • HealthCare Stories (DREDF): https://dredf.org/healthcare-stories/ • Self Determination: http://www.ggrc.org/services/self-determination#SDLAC • The Learning Community: http://www.learningcommunity.us/home.html • Support for Families http://www.supportforfamilies.org/ • We are Here to Speak for Justice http://lanterman.org/were_here_to_speak_for_justice_founding_californ ias_regional_centers#.WKNkP28rL8Y • Golden Gate Regional Center http://www.ggrc.org/
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