INCREASING COMMUNITY BASED HEALTH PROMOTION THROUGH THE FAMILY - - PowerPoint PPT Presentation

INCREASING COMMUNITY BASED HEALTH PROMOTION THROUGH THE FAMILY HEALTH HISTORY TO ENHANCE COMMUNICATION BETWEEN PATIENT AND PROVIDER IN A PRIMARY CARE SETTING

Paula Winkler, M.Ed., Center Director South Central AHEC

SETTING THE STAGE

CLINICAL TRANSLATION SCIENCE AWARD (CTSA)

 Community Engagement Core Function –

 2008 - 2013

 3 Legged Stool  PBRN – School of Public Health – Translational

Advisory Board (AHEC)

 Community Based Participatory Research (CBPR)

TRANSLATIONAL ADVISORY BOARD (TAB) SOUTH CENTRAL AHEC

TAB MISSION

 The mission of the Translational Advisory Board

(TAB) is to serve as a representative body which aims to improve community health through the facilitation of community-based participatory research and educational outreach activities in partnership with the UT Health Science Center at San Antonio.



GOALS OF THE TAB

Setting the health research agenda in the community Partnering with researchers to develop and refine health research protocols in the community Participating in data collection and analysis Reporting health research findings to community members Seeking sustainable resources for community health research initiatives and programs Facilitating community health research partnerships

HEALTH DEMOGRAPHICS OF TABS



Statewide Prevalence of Diabetes

Source: CDC National Diabetes Surveillance System

7.5% 8.0% 8.5% 9.0% Bexar Comal Frio Gillespie Guadalupe 8.7% 8.3% 8.5% 8.2% 8.2% Percen Percent Cou County Diabe Diabetes Prev Preval alence in TAB Cou in TAB Counties 200 2009 0.0% 1.0% 2.0% 3.0% 4.0% Bexar Comal Frio Gillespie Guadalupe 3.3% 2.8% 3.9% 1.2% 1.5% Percen Percent Deaths C aths Caused b used by D Diabetes abetes in in TAB C Counties 2 unties 2009

Source: Texas Health Data

HEALTH DEMOGRAPHICS OF TABS

21.0% 22.0% 23.0% 24.0% 25.0% 26.0% Bexar Comal Frio Gillespie Guadalupe 22.6% 22.5% 25.4% 25.2% 24.0% Percen Percent

Hear Heart Disease Mor t Disease Mortality in ality in TAB Counties 2009 B Counties 2009

Source: Texas Health Data

HEALTH DEMOGRAPHICS OF TABS

0.0 20.0 40.0 60.0 80.0 100.0 120.0 53.1 54.3 103.4 93.4 40.3 Rate per Rate per 100 100k

Str Stroke Mor

Mortality ality Rat

Rates in s in TAB Counties B Counties 2009 2009

0.0 10.0 20.0 30.0 40.0 50.0 60.0 Bexar Comal Frio Gillespie Guadalupe 22.7 18.5 36.9 51.7 22.5 Rate per Rate per 100 100k

Breast Breast Canc Cancer (F (Femal emale) Mor Mortal ality ity Rat Rates in s in TAB B Coun Counties 2009 ties 2009

Source: DHHS Community Health Status Indicator Report 2009

GENOMIC-BASED RESEAR GENOMIC-BASED RESEARCH APPLICA CH APPLICATIONS IONS FOR COMMUNIT R COMMUNITY ENGA Y ENGAGEMENT GEMENT: : GRA GRACE

Nedal Arar., MS., MA., PhD. Associat Associate Pr e Prof

• fessor

essor

Department of Medicine/UTHSCSA. Health Research Scientist, South Texas Veterans Health Care System San Antonio, TX Email: ararn@uthscsa.edu. De Detai tailed F ed Family Healt Health Hist Histor

• ry as a Genom

y as a Genomic and Clin and Clinica ical T Tool

• ol

CTSA PILOT GRANT 2011-2012

 Expand GRACE to Community - $50K  Dr. Nedal Arar - PI  TABs recruit 20 participants per community  TABs assist to identify facility/technology for

study

 AHEC housed Project Coordinator  AHEC staff assisted Project Coordinator

FAMILY HEALTH HISTORY

FHH PURPOSE

 To enhance participants' awareness/knowledge regarding the importance of

FHH information.

 To collect FHH and establish extended three generations pedigree using SG

• nline FHH tool.

 To encourage participants sharing their FHH information with relatives and

providers.

 To document individuals actual behaviors regarding the use of their FHH

information by conducting a follow up visit after 6 months.

 To assess consumers’ satisfaction regarding the utilizations of their FHH

information, assessed by the American Customer Satisfaction Index (ACSI),

WHAT RUNS IN YOUR FAMILY?

Talk Health History Campaign Public Service Announcement (PSA) Video

MY FAMILY HEALTH PORTRAIT

MY FAMILY HEALTH PORTRAIT

 Protects personal

information by not saving it after the end of the session

 Lets the user know exactly

whose information to fill in and doesn’t require names

 Keep the history to share

with family and/or your doctor/other provider

 Because of information

security measures, requires users to print or save on desktop/other external devices

REMEMBER…

 Any information you fill in is good information!  Don’t get frustrated if you don’t know

everything about everyone!

GRACE: PARTICIPANT NUMBERS

Total of 75 participants between 5 counties Bexar 17 Comal 20 Frio 9 Gillespie 12 Guadalupe 17

SUMMARY OF DEMOGRAPHICS

Summary of Demographics Median Age|| 53.4 Age Range || 24.5 ‐ 57 % Non ‐ Hispanic White: Com, Gua, Gil || 88.9% % Non‐Hispanic White: Bex, Fri || 17% Marital Status || 49.8% Married Average Income || 37% ‐ $30k/yr, 33% ‐ $50+/yr Average Educational Level || 38% ‐ 4yr+ degree, 34% ‐ some college

PARTICIPANTS COMMENTS ON FACILITATION AND BARRIERS OF THE SURGEON GENERAL TOOL

Facilitation/Motiv cilitation/Motivation tion Barrier Barriers

Having a mobile application available Lack of computer knowledge Family helping to add to the family health history Lack of computer/internet access Being an online tool for the public to access Time Constraints Encouragement from family/doctor’s

• ffice

Lack of knowledge of family history

• Not knowing their family
• adoption

RESULTS

KAP Assessment Averages Family health history refers to diseases and conditions that run in my family 90.3% Strongly Agreed Knowing my Family Health History will help me to identify my risk for diseases 93.9% Strongly Agreed Being aware of my FHH and making the right healthcare and lifestyle choices can reduce my risks 80.4% Strongly Agreed My familial risk may increase if I have multiple family members with the same or related conditions 76.4% Strongly Agreed I fell I have little control over risks to my health 21.5% Strongly Disagreed There are things I can do to prevent or minimize my risks of developing common chronic diseases 67.6% Strongly Agreed There is not much use in trying to knkow my family health history because the disease will develop anyway 52.5% Strongly Disagreed Health care providers should help patients make informed choices about their health care plans based

• n their family health history

77.3% Strongly Agreed

WHERE DO USERS GO FROM HERE?

 Finding health information online isn’t always

easy

MEDLINEPLUS

MEDLINEPLUS

 Reliable health

information in lay language

 Available in English,

Spanish, and other languages

 Provides links to other

trusted health information sources

 Not easy to browse to

family health history health topic page –

• pportunity for education

FUTURE DIRECTION

 National Library of

Medicine Grant application – awaiting results

 PCORI Grant

Opportunities

 NIH Grants  Expand to Science

Teachers in Classrooms

 Residency Training –

Community Medicine Blocks

 PBRNs

THANK YOU!