HIT's 2nd Decade: Getting Value David J. Brailer, MD, PhD Or, - - PowerPoint PPT Presentation

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HIT's 2nd Decade: Getting Value David J. Brailer, MD, PhD Or, - - PowerPoint PPT Presentation

Apr 04, 2024 327 likes •752 views

HIT's 2nd Decade: Getting Value David J. Brailer, MD, PhD Or, After 10 years and $35 Billion, Where Is My Data? Health IT Plan - 2004 Goal 1 - Inform Clinical Practice Goal 2 - Interconnect Clinicians Goal 3 - Personalize Care

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HIT's 2nd Decade: Getting Value

David J. Brailer, MD, PhD

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Or, After 10 years and $35 Billion, Where Is My Data?

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Health IT Plan - 2004

  • Goal 1 - Inform Clinical Practice
  • Goal 2 - Interconnect Clinicians
  • Goal 3 - Personalize Care
  • Goal 4 - Improve Population Health
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Health IT Plan - 2015

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Breathtaking Progress

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Rapid EMR Uptake

HITECH passed Executive Order

Any EHR

Basic EHR

CDC/NCHS, 2014

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Big Data Coming

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KLAS, 2014

Pop Health Build-Up

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Venture Records

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Information Explosion

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IoT Data Growth

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mHealth Growth

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New Models of Care

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Rising Challenges

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MU Frustration

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HIE Far Behind

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Patient Inconvenience

Source: ONC

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Consumers Want Access

Source: Healthcare IT News, 10/19

25 50 75 100 Want Data Would Share Data Can Get Data

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Lax Rules

Source: ONC

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Apps Evade HIPAA

“It’s free, but they sell your information. “

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Insecure Healthcare

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Whose Data Anyway?

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Source: Robert Wood Johnson Foundation

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Consumer Activism

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New Hampshire Alone

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Executive Branch Response

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Senate Information Blocking

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A New Approach

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Three Principals

  • Have a complete, lifetime "consumer health

record" under their control

  • Designate a qualified custodian to manage

their consumer health record

  • Compel all health data holders to send their

data to their custodian

Every person should be able to:

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Consumer Health Record

  • Real time collection of health information from multiple

sources, including hospital, physicians, apps, devices, wellnesses monitors, etc.

  • Follows consumer for life across providers and plans
  • Consumer can access at any time or share with family,

caregivers or researchers

  • Anonymized data for public purposes such as quality

evaluation and transparency

  • Not a legal medical record
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Custodian

  • Entity that consumer designates to collect, store,

validate and transmit their health information

  • Custodians certified by government agency and

compete for consumers

  • Fiduciary obligation to consumer to use best efforts

to collect, protect and share data as directed

  • Enforce standards and security for exchange with

data holders

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Participation

  • Data holders required to share consumer

information with their custodian

  • Data meets form, format and timeliness standards
  • Participation required by all data holders -

including all apps

  • Unlike HIPAA Business Associate, data holders will

be waived of liability for actions of custodian

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What NAHDO Can Do

  • Debate and advocate for potential solutions
  • Measure information access and blocking
  • Use your role as trusted stewards and conveners
  • Advise policymakers on the real long term issues
  • Experiment at the state level