France Aurlie Untas, Careum, Zurich, November 12 th 2019 1. - - PowerPoint PPT Presentation

France

Aurélie Untas, Careum, Zurich, November 12th 2019

• 1. Recognition and Specific Support for Young Carers

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• 88% did «not know YC»
• Report few actions to help YC,

many barriers and need help from specialists

• 2014: Artistic respite care for YC created by Françoise Ellien
• 2017:
• Research project on French YC «JAID»
• Collaboration between University and French National Association for YC (JADE)
• Results of a 1st survey on 501 YC or former YC (IPSOS/Novartis)
• 17% YC (N=1448)
• 72.2% girls
• 51.9% help a parent and

28.6% a sibling

• 76 YC
• Many benefits reported

by YC, parents and professionals Research in progress

• 2. Definition of Young Carers

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Definition used by the “JAID team” and the French National Association for YC (JADE) :

• A YC is someone under 18 years old who provides significant care,

assistance or support to another family member or significant relative. The person receiving care has a physical or mental illness, or a disability.

• Between 18 and 25 years old, we label them Young Adult Carers

• 3. Current policy and services in France

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• Policy

23rd of October 2019: French Prime Minister announced a strategy for carers’ mobilisation and support «AGIR pour les aidants» It includes a specific part for YC !

• Increase awareness of school professionals to identify and support YC
• Specific arrangements for YAC students
• Complementary measures to screen YC, increase respite and health monitoring
• Services
• Since 2014, only one service for YC through an artistic respite care

 Spread from the region of Paris to 2 others in 2019

• Work in progress

• 4. Specific legislation for YC

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• No specific legislation for YC
• According to a law published in may 2008:

YC can be considered as included in a global definition of family caregivers, but they are not explicitely named

• In may 2019: a new law was enacted but only for adult family caregivers

• 5. Key factors for promoting policy & practice for YC

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• Since 2014: Artistic respite care for YC
• 2016: Creation of the French National Association for YC (JADE)
• 2017:
• Results of a first survey on YC in France (IPSOS/Novartis)
• 1st funding for a scientific research on YC in France and JAID project
• Collaboration between JADE and Université de Paris
• 2019: 1st French Conference on YC
• The huge energy of Françoise Ellien and her knowledge of oncology

Young Carers Classification

achievements within the last 3 years

7

2019 2016 1 2 3 4 5 6 7 1 2 3 4 5 6 7

A lot of energy A growing dynamic But there still is a long way…

To sum it all up

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Aurélie Untas and Géraldine Dorard Université de Paris 71 Avenue E. Vaillant 92100 Boulogne-Billancourt France Phone: +33 1 76 53 30 50 / +33 1 76 53 29 60 Emails: aurelie.untas@u-paris.fr / geraldine.dorard@u-paris.fr Website: https://jaid.recherche.parisdescartes.fr/

Contact details

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