Flute Of Light - Israel Aware reness ss week Activities ties - - PowerPoint PPT Presentation

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Mar 19, 2024 447 likes •565 views

Flute Of Light - Israel Aware reness ss week Activities ties About Myself I am 45YO, Married + 3. Diagnosed with High Risk Myelofibrosis in transition to Acute Myeloid Leukemia (AML) on March 2015. My life expectancy was 6 months.

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Flute Of Light - Israel

Aware reness ss week Activities ties

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About Myself

I am 45YO, Married + 3.
Diagnosed with High Risk Myelofibrosis in transition to Acute Myeloid

Leukemia (AML) on March 2015.

My life expectancy was 6 months.
Had Allogenic Stem Cell Transplant (SCT) on June 2015.
Currently on daily drugs only.
A Member of the Flute of Light Org. Committee, engaging MPN patients.
Sport and the sea became my way of life and second nature.
I support and encourage other patients to do so as well.

It with no doubt helped me get better faster.

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About Awareness week

September is the international awareness month for blood cancer.
This year we decided to raise awareness to MPN directly to our “target

audience”, and reach out to hematology patients.

We thought the best place to reach them would be at the daycare

clinic centers at 6 different big hospitals in the country.

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We mapped the different hospitals in Israel, in order to

reach the maximum patients in Israel (North, South, East).

We had booths at 6 different hospitals for a whole week,

September 11-15.

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We teamed up to a public relations manager and published articles, patient stories and publications on our activities on local and national media.

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We explained to MPN patients about our organization and the services we give to patients. (Information, peer to peer support, fighting for patients rights and access to new treatments).

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We handed out patients info booklets and giveaways with the Flute of Light Logo.

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We organized 3 patients meetings at 3 different hospitals on that week.

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What we did ?

We contracted a lobbing company to involve

policy makers and parliament members in

ur activities.

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What have we Achieved ?

500 new registered patients to the organization.

70 patients joined the Facebook groups.

66 page likes on Facebook page.

1,000

000 new entries to our website.

re than 15 15 articles, patients stories, and radio interviews were published

2 Key Opinion Leaders parliament members joined our

activities

We handed out more

e than 1,000 000 patients info booklets

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