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European Huntington Association
Heritable neurodegenerative disease 50% chance Starts normally at the age of 30-50 In Europe 50.000 patients EHA is an umbrella organisation Represented in 28 countries 30.000 members
European Huntington Association Heritable neurodegenerative disease - - PowerPoint PPT Presentation
European Huntington Association Heritable neurodegenerative disease - - PowerPoint PPT Presentation
European Huntington Association Heritable neurodegenerative disease 50% chance Starts normally at the age of 30-50 In Europe 50.000 patients EHA is an umbrella organisation Represented in 28 countries 30.000 members European Huntington
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Cost per patient
Cost per patient (UK) £ 28.000 per year per patient = £ 1.400.000.000 = Euro 1.800.000.000
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Reducing costs
Proper health service = reducing the cost per patient New technology = Aritficial Intelligence
- Dir. Martin Seychell: «Only a fragment of all the health data collected is
- used. The data should be standardized and accessible. Data is the
resource in research.” “The Commission see research to be the main strategy to solve our future challenges. That is why we have 100 billion Euro in the next 5 year budget set aside for research. Digital solutions and infrastructure has a budget for 20 billion euro. “
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Individual level
Change from the expert role to a collaborative teamwork Involve the patient and their partner/relative in the desicion making will make him/her more responsable and proactive in checking out if this works for me Reducing “tons” of medicine being prescribed without any beneficial effect for the patient!
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