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Empowering spiritual leaders to support and advocate for improved care, education, protection and inclusion of children with disabilities Am American an Publ ublic He Heal alth h As Associat ation n Conf nferenc nce Presentat ations


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Empowering spiritual leaders to support and advocate for improved care, education, protection and inclusion of children with disabilities

Am American an Publ ublic He Heal alth h As Associat ation n Conf nferenc nce Presentat ations ns No Novemb mber, 2019 Je Jessica a Char harles, MPH

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Presenter Disclosures Jessica Charles The following personal financial relationships with commercial interests relevant to this presentation existed during the past 12 months: No relationships to disclose

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Acknowledgements

Co-Authors

  • Cynthia Bauer, MA

Ø Founder and Director of Kupenda for the Children Ø International development profession and wild life biologist Ø Person living with a disability and disability advocate

  • Leonard Mbonani

Ø Founder and Executive Director of Kuhenza for the Children Ø Kenyan special needs assessment officer and educator Funding: United Kingdom's Department for International Development (DFID)

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The Problem

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Global Prevalence

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Prevalence in Developing Nations

  • 80%

80% of

  • f th

the wor

  • rld

ld’s pop

  • pula

lation tion liv live in in develop lopin ing nation tions

  • 1

1 in 5 5 pe peopl ple living ng in n de developi ping ng na nations ns ha have a di disa sabi bility y

  • 580 million ch

children an and yo youth are living with di disa sabi bilities s in n low w in incom

  • me cou
  • untr

trie ies

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Disability Believed to be Caused By…

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The Problem

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a

Education Inclusion

Employment

Health Care

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Intervention

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Winnie Gona

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Knowledge Attitudes Behavior

Community

Christian, 83%1 Muslim, 11.2%1 Traditionalists, overlap

1 United States Central Intelligence Agency (CIA). Accessed October 24, 2019. https://www.cia.gov/library/publications/the-world-factbook/geos/ke.html 2 K, Leonard. The Contribution of Traditional Herbal Medicine Practitioners to Kenyan Health Care Delivery. January 2011. World Bank. DOI: 10.13140/RG.2.2.33913.88164

World Bank study:

  • ~ 40,000

traditional herbal medicine practitioners

  • 2,000 patients

per year treated by each

  • 80.4 m contacts

per year

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Evidence Based

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Kupenda’s Disability Workshops

Pastors Traditional Healers Government Leaders Muslim Leaders

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Disability Training Workshops

  • Addressing knowledge and attitudes re: disability
  • Participatory discussions and exercises
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Disability Training Workshops

  • Addressing behavior and practices re: disability
  • Action planning as a group and individually
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Program Incentives

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Monitoring & Evaluation to Assess Impact

Knowledge & Attitude Changes Behavior Changes

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The Impact

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Participants’ baseline knowledge and attitudes about disability

Causes Cures

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  • No. of

workshops

  • No. of

participants

  • No. of participants with negative beliefs

about disability Percent of participants with positive belief changes Baseline After workshops Pastors 8 216 173 43 Traditional healers 3 70 70 35 Changes in Advocacy Workshop Participants’ Attitudes about Disability (June 2015 – April 2017)

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Impact: 65% of trainees take action after our workshops

  • 1. Identify & visit children
  • 2. Counsel & referral
  • 3. Establishing support groups
  • 4. Opening special schools
  • 5. Advocacy talks
  • 6. Volunteer days
  • 7. Nutrition support
  • 8. Policy change
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Study Methods to Assess Impact of Disability Training Program

  • Conducted an 18-month, mixed-method longitudinal study (2017-2019)

Ø pre/post surveys Ø 1:1 interviews Ø monthly reports

  • A sample of 100 leaders (pastors, traditional healers and government leaders)
  • After the 1-day, low cost training, the leaders:

Ø Gave advocacy talks reaching 46,000+ people Ø Facilitated 2,825 counseling sessions or referrals for families impacted by disability

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Kupenda’s 1-Day Disability Trainings: Cost-Efficient and Effective

  • 1 workshop costs $300
  • 25 Leaders Participate in Each Workshop
  • On average, 65% or 16 leaders take action on behalf
  • f children with disabilities after the workshop

Each Active Leader Per month Per Year Sensitizes Community Members about Disability Justice 26 312 Counsels and Refers Children with Disabilities for Care 2 24

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Kupenda’s 1-Day Disability Trainings: Cost-Efficient and Effective

  • EFFECTIVE - Each 1-day training:

Ø Improves quality of life for 384 children / year Ø Leads to disability sensitization among 4,992 community members / year

  • COST EFFICIENT – Each $300 workshop

Ø Improves lives for just $0.78 / child Ø Sensitizes the community for just $0.06 / person Each $300 Workshop Per month Per Year Disability Justice Sensitization for Community Members 416 4,992 Counseling and Referrals Children with Disabilities for Care 32 384

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Implications

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Implementing Partners in other Countries

Haiti (i.e., Pazapa) Tanzania (i.e., EMFRED, LOOCIP) Sierra Leone (i.e., Edunations, ITEN, RBI) Zambia (i.e., SHN, government social workers)

Kupenda’s Innovation Center in Kenya Global Partners and Funders

(i.e., World Relief, DFID)

Other Kenya Entities

(i.e., government offices, NGOs, DPOs, pastor fellowships)

Kupenda’s Innovation Center: Kilifi County, Kenya

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Program Expansion

Last year

  • Kupenda’s staff, alumni and partners ran 36 disability trainings workshop in 4 nations
  • Based on our study results and program monitoring and evaluation, these trainings:

Ø Sensitized 179,712 community members about disability justice and care in one year Ø Improved quality of life for 13,824 children with disabilities through counseling and referrals in one year This year

  • Greater program expansion through new partnerships and training of training programs for workshop alumni
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Open Source Disability Training Resources https://kupenda.org/disability-advocacy-training-materials/

Kupenda has these disability training guide sets, tailored for Pastors, Traditional Healers, Government Officials and Families Impacted by Disability

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Program Supplements

Disability Handbook

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Thank you!

For more information, contact: Jessica Charles jessica@kupenda.org Please also visit our website to learn more and download our free Disability Training resources: www.kupenda.org