Empowering spiritual leaders to support and advocate for improved - PowerPoint PPT Presentation

Empowering spiritual leaders to support and advocate for improved care, education, protection and inclusion of children with disabilities Am American an Publ ublic He Heal alth h As Associat ation n Conf nferenc nce Presentat ations ns No Novemb mber, 2019 Je Jessica a Char harles, MPH

Presenter Disclosures Jessica Charles The following personal financial relationships with commercial interests relevant to this presentation existed during the past 12 months: No relationships to disclose

Acknowledgements Co-Authors Cynthia Bauer, MA • Founder and Director of Kupenda for the Children Ø International development profession and wild life biologist Ø Person living with a disability and disability advocate Ø Leonard Mbonani • Founder and Executive Director of Kuhenza for the Children Ø Kenyan special needs assessment officer and educator Ø Funding: United Kingdom's Department for International Development (DFID)

The Problem

Global Prevalence

Prevalence in Developing Nations 80% 80% of of th the wor orld ld’s pop opula lation tion liv live in in develop lopin ing nation tions • 1 1 in 5 5 pe peopl ple living ng in n de developi ping ng • na nations ns ha have a di disa sabi bility y 580 million ch children an and • yo youth are living with di disa sabi bilities s in n low w in incom ome cou ountr trie ies

Disability Believed to be Caused By…

The Problem

Education a Health Inclusion Care Employment

Intervention

Winnie Gona

Christian, 83% 1 Muslim, 11.2% 1 Traditionalists , overlap World Bank study: • ~ 40,000 Community traditional herbal medicine practitioners • 2,000 patients per year treated Knowledge Attitudes Behavior by each • 80.4 m contacts per year 1 United States Central Intelligence Agency (CIA). Accessed October 24, 2019. https://www.cia.gov/library/publications/the-world-factbook/geos/ke.html 2 K, Leonard. The Contribution of Traditional Herbal Medicine Practitioners to Kenyan Health Care Delivery. January 2011. World Bank. DOI: 10.13140/RG.2.2.33913.88164

Evidence Based

Kupenda’s Disability Workshops Pastors Traditional Healers Government Leaders Muslim Leaders

Disability Training Workshops Addressing knowledge and attitudes re: disability • Participatory discussions and exercises •

Disability Training Workshops Addressing behavior and practices re: disability • Action planning as a group and individually •

Program Incentives

Monitoring & Evaluation to Assess Impact Knowledge & Attitude Changes Behavior Changes

The Impact

Participants’ baseline knowledge and attitudes about disability Causes Cures

Changes in Advocacy Workshop Participants’ Attitudes about Disability (June 2015 – April 2017) Percent of No. of participants with negative beliefs No. of No. of participants about disability workshops participants with positive belief changes Baseline After workshops Pastors 8 216 173 43 Traditional healers 3 70 70 35

Impact: 65% of trainees take action after our workshops 1. Identify & visit children 5. Advocacy talks 2. Counsel & referral 6. Volunteer days 3. Establishing support groups 7. Nutrition support 4. Opening special schools 8. Policy change

Study Methods to Assess Impact of Disability Training Program • Conducted an 18-month, mixed-method longitudinal study (2017-2019) Ø pre/post surveys Ø 1:1 interviews Ø monthly reports • A sample of 100 leaders (pastors, traditional healers and government leaders) • After the 1-day, low cost training, the leaders: Ø Gave advocacy talks reaching 46,000+ people Ø Facilitated 2,825 counseling sessions or referrals for families impacted by disability

Kupenda’s 1-Day Disability Trainings: Cost-Efficient and Effective • 1 workshop costs $300 • 25 Leaders Participate in Each Workshop • On average, 65% or 16 leaders take action on behalf of children with disabilities after the workshop Each Active Leader Per month Per Year Sensitizes Community Members about Disability Justice 26 312 Counsels and Refers Children with Disabilities for Care 2 24

Kupenda’s 1-Day Disability Trainings: Cost-Efficient and Effective EFFECTIVE - Each 1-day training: • Ø Improves quality of life for 384 children / year Ø Leads to disability sensitization among 4,992 community members / year • COST EFFICIENT – Each $300 workshop Ø Improves lives for just $0.78 / child Ø Sensitizes the community for just $0.06 / person Each $300 Workshop Per month Per Year Disability Justice Sensitization for Community Members 416 4,992 Counseling and Referrals Children with Disabilities for Care 32 384

Implications

Other Kenya Entities (i.e., government offices, NGOs, DPOs, pastor fellowships) Kupenda’s Global Partners Innovation and Funders Kupenda’s Center in Innovation Kenya Center: (i.e., World Relief, Zambia Kilifi County, DFID) (i.e., SHN, government social workers) Kenya Implementing Tanzania Partners (i.e., EMFRED, LOOCIP) in other Countries Haiti Sierra Leone (i.e., Pazapa) (i.e., Edunations, ITEN, RBI)

Program Expansion Last year • Kupenda’s staff, alumni and partners ran 36 disability trainings workshop in 4 nations • Based on our study results and program monitoring and evaluation, these trainings: Ø Sensitized 179,712 community members about disability justice and care in one year Ø Improved quality of life for 13,824 children with disabilities through counseling and referrals in one year This year Greater program expansion through new partnerships and training of training programs for workshop alumni •

Open Source Disability Training Resources https://kupenda.org/disability-advocacy-training-materials/ Kupenda has these disability training guide sets, tailored for Pastors, Traditional Healers, Government Officials and Families Impacted by Disability

Program Supplements Disability Handbook

Thank you! For more information, contact: Jessica Charles jessica@kupenda.org Please also visit our website to learn more and download our free Disability Training resources: www.kupenda.org