Discussion : Health Literacy & Policy Melbourne March 2012 - - PowerPoint PPT Presentation

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Discussion : Health Literacy & Policy Melbourne March 2012 - - PowerPoint PPT Presentation

Seminar & Discussion : Health Literacy & Policy Melbourne March 2012 Rima E. Rudd, Sc.D., MSPH Harvard School of Public Health With Appreciation Australia-Harvard Fellowship The Harvard Club of Australia Foundation : Support for


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Seminar & Discussion: Health Literacy & Policy

Melbourne – March 2012

Rima E. Rudd, Sc.D., MSPH

Harvard School of Public Health

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With Appreciation

Australia-Harvard Fellowship The Harvard Club of Australia Foundation: Support for collaborative scientific research Partners and Colleagues: Maureen Johnson - Melbourne Robert Adams

  • Adelaide

Karen Luxford

  • Sydney

Members of the Kulin Nations, whose land I visit

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  • Dr. Rima E. Rudd - March 2012
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Literacy

Core components

 Reading  Writing  Speaking  Listening  Calculating [math,

math concepts] Development

 Schooling

 K-4 Learn to read  4-> Read to learn  The non-formal

lessons

 Work

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  • Dr. Rima E. Rudd - March 2012
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Literacy in Industrialized Societies

Literacy influences one’s ability to access information and to navigate the highly literate environments of modern society

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Literacy, Power, & Social Justice

Literacy

 Socially determined  A social determinant

Social Meaning

 Identity  Dignity  Inclusion &

participation

 Civic  Economic  Cultural  Intellectual

  • Dr. Rima E. Rudd - March 2012

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International Assessments

IALS 1992-6 22 industralized nations ALLS 2003-6

2003

2006 Bermuda Australia Canada Hungary Italy Netherlands Mexico New Zealand Norway South Korea Switzerland

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Findings

Significant numbers of adults in most industrialized nations have low-level literacy skills that constrain their participation in the economy and in society.

International Findings: Adult Literacy & Lifeskills Survey 2003

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Australian Adults

A majority of Australian adults have difficulty using commonly available materials to accomplish everyday tasks

 Use a bus schedule  Calculate a discount  Determine correct dosage for a medicine  Determine the point of view in an editorial

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Australian Adults

 53% [7 million] have low/limited literacy

skills

 36% [5.4 million] have sufficient literacy

skills for participation in today’s labor market

 18% [2.7] have proficient literacy skills

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Example: Limited Literacy Skills

 What does it mean?

 If you struggle with the material, you may tire

and feel frustrated

 If you are under pressure, you may take short

cuts [and make errors]

 If you focus on the word, you may miss the

meaning in the sentence For example,

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  • Dr. Rima E. Rudd - March 2012
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A Brief Experience

Please follow the directions [quickly please]:

Ecalp ruoy tfel dnah no ruoy thgir redluohs. Neht esiar ruoy thgir mra. Fi uoy era rednu eht ega fo ytrof elggiw eht sregnif fo ruoy thgir dnah.

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Please Read the Message

A decnalab gnitae nalp dna raluger lacisyhp ytivitca era eht gnidliub skcolb fo doog htlaeh. Roop gnitae stibah dna lacisyhp ytivitcani yam dael ot thgiewrevo dna detaler htlaeh smelborp. Yb gntae thgir dna gnieb evitca, uoy yam hcaer ro niatniam a yhtlaeh thgiew. Uoy yam osla evorpmi ruoy lacisyhp htlaeh, latnem gnieb-llew, dna tes na elpmaxe rof srehto. Od ti rof flesruoy dna ruoy ylimaf!

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Message:

 A balanced eating plan and regular physical

activity are the building blocks of good health. Poor eating habits and physical inactivity may lead to overweight and related health problems. By eating right and being active, you may reach

  • r maintain a healthy weight. You may also

improve your physical health, mental well-being, and set an example for others. Do it for yourself and your family!

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Health Literacy

Literacy Skills in the Health Context

 A new field of inquiry  Starting point

 Publication and

dissemination of findings: Literacy skills of adults

 Initial Research

Question: What are the implications for health?

 Health promotion  Health protection  Disease prevention  Health care & disease

management

 System navigation

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Research Studies: Health Outcomes

Key Finding: Patients with limited reading skills have poorer health outcomes

 Less likely to engage in screening & preventive

action

 Less likely to have chronic disease under control  More likely to be hospitalized  More likely to report poor health  More likely to die earlier

Conclusion: Significant differences in health

  • utcomes based on patients’ reading skills

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Rigor

Literacy is linked to health

  • utcomes even controlling

for a variety of factors including SES

IOM, 2004 ETS, 2004 AHRQ 2004, 2011

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Perspective

Medical Practice Clinical Encounter Institutional Needs & Procedures

Patients

Skills, Abilities, Actions

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Perspective

Health Care Public Health Civil Society Individuals & Communities

Skills, Abilities, Actions

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Who is the focus of attention? Who carries the burden of change?

 Focus on individuals,

patients, communities

 Action:

 Participate  Find  Comprehend  Evaluate  Use  Determine

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Interaction

Individual Factors

 Literacy & numeracy

skills

 Language skills  Emotional state  Health status  Experience  Background

knowledge

Health Sector Factors

 Communication skills of

professionals

 Institutional

characteristics

 Procedures & processes  Materials in use  Assumptions

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Refocus

Health Care Public Health Civil Society

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Demands Expectations Processes Culture:

Roles Language Processes

Commercial Sector

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Needed Emphasis: Balancing Act

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Four Areas of Concern*

 Health information and education  Clinical & health communications  Health literate organizations  Partnerships and engagement

*Maureen Johnson

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  • 1. Health Information &

Education

Focus on Public / Patients

 Access to information [accessible

information]

 Access to care & services  Educational support & improvements

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Action Examples: Access to Information & Education

 Make decisions

 Needs & preferences shape information format & structure  Participation in review of materials, messages & tools  Participation in development of materials, messages & tools

 Develop knowledge: participation in

research

 Make meaning: participation in analysis

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  • 2. Clinical & Health Information

Focus on Practice

 Application of tested

principles

 Professional training

& education

 Testing & licensure  Continuing education  Orientation programs

Focus on Materials & Tools

 Apply tested principles

for development & design

 Rigorous Review:

 Provide assessment test

results & modifications

 Pilot with intended

audience and revise as needed

 Regulations for vendors

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Action Examples

Practice

 Deconstruct health

activities

 Apply teach back  Encourage question

asking

 Demand time  Demand

accessible/usable tools & materials

Materials & Tools

 Professional rigor for

materials development [begin with critical texts]

 Apply documented

principles

 Use assessment tools and

document

 Pilot test and report  Regulate processes

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  • 3. Health Literate Organizations

Focus on Health Contexts

 Responsibility for access & comprehension  Physical environment: remove barriers,

enhance dialogue

 Social context: change expectations,

norms, language, & rituals

 Identify and assess critical texts

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Action Examples

 Call to action:

 Joint Commission: institutional responsibility  AMA: shame free environments

 Identify & remove barriers:

 Examples from US, Spain, Italy  Prioritize, focus, evaluate: Instructions, Jump

start, Question posing

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  • 4. Partnership and Engagement

Focus on Community Relations

 Community dialogue: felt & documented

needs, perceptions, perspectives

 Participation on boards and committees  Excursions into community  Community tours and feedback

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Action Examples

 Partnerships

 Adult education:

curriculum integration

 Libraries  Chemists/Pharmacies  Journalism  Workforce initiatives  Education reform

 Brown bag events  Talking circles  Outreach: Family Van  Welcome & Tour:

Harlaam Hospital

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Partners in Action

 Identify stakeholders  Provide opportunities for discussion and

analysis

 Develop consensus re: purview,

responsibilities, actions

 Develop partnerships  Generate ideas and projects

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Consider Regulations

 Standards for critical texts

 Processes for all vendors  Review boards

Environmental standards Accreditation requirements Professional training & licensing

requirements

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Reminder: Focus on the Mismatch

 Develop strategies to improve access  Identify and remove system barriers  Evaluate interventions for ameliorative

action

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Reminder: Identify and Remove Barriers

 Analyses of dialogue [media and interpersonal]  Analyses of texts [on paper and on line]  Analyses of tools [materials and measures]  Analyses of activities & processes

 Deconstruction of health activities [Rudd et al 2004]

 Analyses of environments

 Hospitals and health centers [Rudd & Anderson 2006]  Clinical practices [DeWalt et al 2010]

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Reminder: Renew Attention to Disparities

  • Distribution of literacy skills is linked to

social factors [Rudd, Kirsch, Yamamoto, 2004]

  • Literacy skills have implications for social

justice [Rudd, 2007]

 Access to information  Participation & Agency

 In prevention and early detection  For chronic disease management  For informed choice [personal and policy]

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Time for Outrage

We must rely on our belief in human rights, the violation of which must provoke our indignation

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Time for Outrage

Stephane Hessel Time for Outrage: Indignez-vous! New York, NY: Twelve. 2011.

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Possible Benefits

 Participation  Increased agency  Enhanced access  Reduced Disparities  Social Justice  Equity

Healthy Communities

 Food access & safety  Safe housing  Educational resources  Health promotion &

disease prevention

 Environmental health  Occupational health &

safety

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US Action Plans: Do any of these apply?

 Health Literacy Action Plan 2003  Institute of Medicine report 2004  Joint Commission Whitepaper on Patient

Safety and Health Literacy 2007

 National Action Plan 2011  Plain Language Act

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References [a start]

www.hsph.harvard.edu/healthliteracy Literature review Links to major studies Action examples Workshops and more www.cdc.gov/healthliteracy www.ahrq/healthliteracy/toolkit

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