CME TTR Amyloidosis Treating and Empowering the Patient Mo Mori - - PowerPoint PPT Presentation

CME TTR Amyloidosis

Treating and Empowering the Patient Mo Mori rie A Gert rtz, z, MD MD: Ma Mayo Clinic

Treatment Options

Tetramer Monomer Misfolded protein Amyloid fibrils

• Symptom relief
• Liver transplantation
• TTR stabilizers
• Tafamidis
• Diflunisal
• TTR production blockers
• Inotersen
• Patisiran

Managing TTR Amyloidosis is a Team Effort

Educating Patients

• Long-term management
• Compliance

Team approach to care

• Cardiologists
• Nephrologists
• Neurologists
• Gastrointestinal specialists
• Ophthalmologists
• Genetic counselors
• General practitioners
• Nurses

amyloidosissupport.org

• Treatment centers
• Local chapters
• Events
• New
• Resources
• Clinical trail Information
• Amyloidosis information

Amyloidosis Support Groups

arci.org

• Research
• Events
• Treatment centers
• Patient support resources
• Clinical trail Information
• Amyloidosis information
• My Amyloidosis Pathfinder

(MAP)

Amyloidosis Research Consortium

amyloidosis.org

• Facts
• Research
• Toolkits
• Webinars
• Support material
• Stories

Amyloidosis Foundation

TTR Amyloidosis is:

• No longer a death sentence
• Manageable and treatable
• Rare but not as rare as we

assume

• Awareness campaigns are

available

• Support is available

Summary

@moriegertz