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CME TTR Amyloidosis Treating and Empowering the Patient Mo Mori - PowerPoint PPT Presentation

CME TTR Amyloidosis Treating and Empowering the Patient Mo Mori rie A Gert rtz, z, MD MD: Ma Mayo Clinic Treatment Options Symptom relief Liver transplantation TTR stabilizers Tafamidis Diflunisal Tetramer Monomer


  1. CME TTR Amyloidosis Treating and Empowering the Patient Mo Mori rie A Gert rtz, z, MD MD: Ma Mayo Clinic

  2. Treatment Options • Symptom relief • Liver transplantation • TTR stabilizers • Tafamidis • Diflunisal Tetramer Monomer Misfolded protein Amyloid fibrils • TTR production blockers • Inotersen • Patisiran

  3. Managing TTR Amyloidosis is a Team Effort Educating Patients • Long-term management • Compliance Team approach to care • Cardiologists • Nephrologists • Neurologists • Gastrointestinal specialists • Ophthalmologists • Genetic counselors • General practitioners • Nurses

  4. Amyloidosis Support Groups amyloidosissupport.org • Treatment centers • Local chapters • Events • New • Resources • Clinical trail Information • Amyloidosis information

  5. Amyloidosis Research Consortium arci.org • Research • Events • Treatment centers • Patient support resources • Clinical trail Information • Amyloidosis information • My Amyloidosis Pathfinder (MAP)

  6. Amyloidosis Foundation amyloidosis.org • Facts • Research • Toolkits • Webinars • Support material • Stories

  7. Summary TTR Amyloidosis is: • No longer a death sentence • Manageable and treatable @moriegertz • Rare but not as rare as we assume • Awareness campaigns are available • Support is available

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